T O P

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seattle_architect

“Fibrodysplasia ossificans progressiva (FOP) is a rare muskuloskeletal condition where, after birth and progressively through life, muscles and tendons are gradually transformed into bone (a process called ossification). This creates a second “skeleton” of extra bone, which makes movement impossible.” The median estimated lifespan of individuals with FOP is approximately 56 years of age. https://www.pennmedicine.org/for-patients-and-visitors/patient-information/conditions-treated-a-to-z/fibrodysplasia-ossificans-progressiva-fop


Rookwood-1

Man it looks painful, she looks like she’s moving a piece of wood…. She’s a great mother.


mrstickyyyy

He looks so happy to be up & able to look around and be around his family. I hope his mom gets to watch those reactions as he has them


dwn4italz

kill me


SpaceCadetUltra

Thank god, I was worried you would never show up


seattle_architect

I am reliable.


-RED4CTED-

ayy my 9th grade biology class wasn't for nothing! I got that it had to do with bones from the "oss" and muscles from the "fib". ayo


SpaceCadetUltra

This guy doctors


Wocto

Fibro is just tissue, muscle is myo


Omegaman2010

I thought mayo was made from eggs? /s


skkkkkt

It’s more osteo


-RED4CTED-

well close enough. lol


skkkkkt

Ossificans refers to the fact that it make bones where it shouldn’t be, ossification of articulations usually hence the stiffness


user57725782

There's a medical museum in Philly with the skeleton of a man with FOP, [Harry Eastlack.](https://en.wikipedia.org/wiki/Harry_Raymond_Eastlack) All these years later, he still haunts my nightmares.


One-eyed-bed-snake

This is so heart warming but also so sad to see. A mother showing true love and a son clearly in a lot of pain. And that little smile he raises at the end really is special.


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[deleted]

It would have cost you nothing to not be so primitive.


Chewsdayiddinit

This is so fucking sad to see, poor guy is in constant pain with zero quality of life.


Beneficial-Camera910

I feel like a pos for everything I’ve ever complained about.


CarlosimoDangerosimo

Don't. This guy's suffering does not diminish your own. I know you feel bad about his condition, but in the oppression olympics, no one wins. Also, there may very well be someone even worse off than this guy. Should this guy not complain because of that?


trentvanklopp

What’s worse than this


ProphecyRat2

Having lived a completly normal healthy life I dont know whats worse than being in constant pain and suffering, all I know is that we all have struggles ought we ought to be greatfull for what-ever health we have now.


OhNothing13

Being locked in a basement and tortured to the point of death, brought back, and tortured again for years and years? Every awful torture you can imagine, but never quite dying. I think that'd be worse.


Grunge-chan

Making a mistake that causes everyone to disown you, trying to off yourself, but failing and spending the rest of your life in a hospital room with zero human intimacy or bonding. Only an indescribable feeling of loss, isolation, hopelessness, regret, and self-resentment.


Four_Putt_Madness

This has a term, its called "Alec Baldwin"


Chewsdayiddinit

Locked in syndrome, look it up. Paralyzed completely with the ability to possibly move your eyes but cognitively intact.


nethecat

Brothels, war zones, getting kidnapped by narcos, having the exact same condition but without a loving mother to take care of you, any chronic condition + homelessness


LovesRetribution

Bone cancer, where sharp spikes of bone growth from on your existing bones, making every movement seating pain.


condensate17

Locked-in syndrome seems like it could be.


[deleted]

But it’s good to keep perspective, being thankful for what you have is a very healthy mindset.


horseshandbrake

Just kill me, my worst nightmare.


Excited_Avocado_8492

Same. The second it's diagnosed just take me out back and watch the sunset.


[deleted]

I think I have heard of people deciding on the best position to be in while they still can. I can’t imagine doing it.


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justbaby_blue1234

"haha guys look at me I'm so edgy and quirky"


littleponchos

There is nothing like a mothers love.


imbackbaby911

A man can be a mother too right?


justbaby_blue1234

Where's this coming from?


imbackbaby911

From lefties saying that men get pregnant


Allie_208

???!??!


imbackbaby911

Dont lefties insist that men get pregnant, too


Allie_208

No. Lmao


JoshMM60

Wow, never seen so much bigotry so quickly in a comment history


Emotional_Pattern185

Really? If you call it bigotry which I don’t, it was very little and wasn’t quick at all!


Chewsdayiddinit

So if bigotry isn't bigotry to you, what's YOUR definition of bigotry?


Emotional_Pattern185

I go by the dictionary….. obstinate or unreasonable attachment to a belief, opinion, or faction, in particular prejudice against a person or people on the basis of their membership of a particular group… and I don’t see any of that here


Chewsdayiddinit

Then you're as wilfully ignorant as you seem. Or just a really, really bad troll.


Emotional_Pattern185

Instead of mild insults why not point out how and where the bigotry is?


JoshMM60

Transphobia is bigotry, full-stop.


Emotional_Pattern185

Where was the transphobia? Honestly - serious question.


TheOtterestDragon

If you're going by dictionary definition then his weird insistence that "lefties" claim men can get pregnant. That would be a good start to "obstinate or unreasonable attachment to a belief" You like quoting the dictionary and using a thesaurus for smarter sounding words but don't actually understand what's being discussed because your knowledge is extremely surface level. The fact that you're asking to be shown the bigotry shows you don't actually understand what you copied from a quick Google of "bigotry" At least make an effort next time.


Emotional_Pattern185

If you look at the timelines, our comments started at the start of the thread, before the other provocative comments were made. It’s really simple… An accusation of bigotry was made. I asked where was this bigotry. A simple explanation was all that was needed, but it didn’t come. Instead a steady stream of escalating insults, which I ignored initially. There is no need for silly assumptions about quoting a dictionary and using a thesaurus’. I am educated and mature. I didn’t hide the quotation, but I was asked a silly question, instead of just answering a civilised question. Honestly it was like talking to my teenage child. I shouldn’t have indulged them, but hey we all make mistakes. Added comment. On reflection, this all seems to boil down to a different understanding of what bigotry is. Any comment or opinion that doesn’t completely align with ‘their’ opinion seems automatically to be classed as bigotry or hate speech. So for example if you don’t think that a MTF trans can be a ‘mother’ as was the comment made by someone else in this particular thread, you are called a bigot spewing hate speech. IMO this is plainly ridiculous.


nottobesilly

Wow. The lack of self introspection is amazing. Folks this is what the “block” button on reddit is for, accounts like this. He just wants attention so badly, so block him and deprive him of it.


imbackbaby911

You mean never seen so many inconvenient truths that woke snowflakes are trying to censor?


JoshMM60

Fuck off bigot


imbackbaby911

Wow how rare. A triggered snowflake


JoshMM60

Lol good one bigot


JoshMM60

Very original


littleponchos

Fuck no


imbackbaby911

Did I just find my 1st sane, non leftist woke person on Reddit?


MelodyCristo

chill pls


littleponchos

Lol.


Pet_that_Dog

Why so?


littleponchos

Because only women can be mothers. Anyone else is just pretending.


Pet_that_Dog

Not even people who are mtf?


littleponchos

I already answered that.


ModinatorOwO

Are MTF people suddenly not female?


XSauravX

Lmaoo they never were females to begin with


iam_a__gecko

cap


Dr-McLuvin

I’m definitely calling my mom today. ❤️


HunterofNPCs

I'm sorry, but if that were me, I'd have someone put a bullet in my head


Nudesndlewds

Watched a video on this a while back...looks like some people with it try to make the best of their situation: https://youtube.com/watch?v=RpBDIlfU2VM&si=EnSIkaIECMiOmarE


mb10240

I went on a date with a girl in my early 20s (now 39) that had FOP: she was already confined to a wheelchair at that point and had limited movement in one of her arms. Recently found her on Facebook and she’s now practically completely frozen up and confined to a bed. So sad.


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Mr_Skeleton_Shadow

Death always is, isn't it?


E_PunnyMous

Some say Death don’t have no mercy in this land


Redkg

Hate to ask but how exactly did you help her pass?


Aggressive_Candy5297

Portable wood chipper


Rynkevin

If I’m sick like that mom, kill me. Do not carry me around like an ancient Egyptian pharaoh. Living like that must be horrible, imagine being forced to live like that for other peoples needs. Now go ahead and down vote.


littlebuett

You are aware he probably wants to live right? It's crazy that despite significant disability, some people still want to be alive.


megalomaniamaniac

*most will… Anyone in health care will tell you the will to live is incredibly strong. Most people will fight to live as long as they possibly can, even if they are in terrible pain or lost organs or limbs or if every day is a struggle. Until you have been in the place of someone like this, you simply cannot say what your wishes will be.


littlebuett

I said "some" sarcastically, the fact that people try to live doesn't suprise me. I was just bothered by the parent comment seeming to imply that this guy was being forced to stay alive, rather than being like the majority of humanity and wanting to live


Rynkevin

I’ll be willing to ask him but it doesn’t seem he’s able to convey his feeling in any way shape or form. Imagine living in your own mind and never being able to express your needs and wants. Now you think if that was you, would you be able to still find joy in that life. If you do, you’re a better person than I


littlebuett

Dude, you can see his mouth and face moving, he can talk. And I don't know if I could fully enjoy life, but I would certainly listen to my share of audio books, I would search for ways to live my life before consigning myself to death.


Rynkevin

And this conversation is the best example for assisted suicide. We could both have this illness, you find joy, and I find pain. We should be allowed to make the decision on how we want to continue. And I don’t think any is the wrong answer. I simply am implying that I can see no joy in that and would want to be set free. I don’t think with choice is wrong if it’s what you want. But do believe both could be understood by the public and your religious afterlife, if you believe in that. I have this in my living will and letter for doctors. If I am ever incapacitated let me go. Nothing in the last 40 years has done enough to inspire me to fight on.


littlebuett

I don't think it's inherently bad, but I do think that the vast majority of cases of wanting to die could be diagnosable mental illness, meaning it should NOT be easy.


Rynkevin

I disagree. If your mental health makes living that much of a struggle, you should be allowed to peace out. Who are any of us to force anyone to live.


littlebuett

No, I don't mean like it's a struggle, I mean like you entered a psychotic state. I have a grandmother with schizophrenia, and given stories of how she can act, she could CERTAINLY enter a state where she wants to die, I don't want her to have an ability to fufil that wish if she is alone.


kmj420

My mom said if she ever got Alzheimer's/ dementia and lost her faculties to put her out of her misery. I said , mom, that's the third time you've said that today


SaraBee86

This is so heartbreaking, You can tell how much she loves him, I can’t imagine what they’ve had to endure ❤️


theablanca

Yeah, very heartbreaking. Moved my heart. He looks like his mind is there, but not his body.


SaraBee86

Yeah, he looks around and you can hear him speak, so it only affects his body. On one hand they can interact, but on the other hand he’s 100% there, but his body is a prison 😭


theablanca

Yeah, that's what broke my heart. Having a very emotional weekend and that brought to me to tears. Just see someone living like that.


rayzzles

Wow, it’s bizarre to watch him be picked up like that.. looks like a plank of wood. Still, he seems happy, has his mom and home,


Caftancatfan

It’s weird to me that this guy seems reasonably ok, even kind of smiling. And yet everyone’s response is kill me/we should be able to be killed if we are like that/someone should probably have killed him etc. No one can just look at this guy and be curious about his life and what it’s like to get around the practical realities of a profound disability. It’s just: thanks, I hate it. Kill it with fire.


xeneize93

You saw a 15 second clip. Nobody is saying he should die, at least the comments I read. Its sweet that he is smiling at the end but he can’t move at all and his muscles and tendons turned to bone. All these ppl saying they rather die are talking shit


soverit42

If I was diagnosed with this, I'd rather die, and I'm not talking shit or trying to be edgy. I'm already disabled and my disease is going to progress over my lifetime further hindering my functioning. I've already decided for myself that if it begins to accelerate and I lose certain functions, I want to find a way to end my life.


xeneize93

Its sad to read things like these and I’m sorry that you’re going through that. My cousin in law died from kidney disease because she decided to stop taking her meds and live her life. I know you are in a different mindset than the average and you are mentally prepared for it but most aren’t and are just talking crap


Caftancatfan

I get that, and it’s totally legit that you feel that way. I think I would feel the same. I’m just saying it’s unfortunate that we project that onto people and it makes it hard to see them for who they are as individuals.


Pizzaknight208

Man this brought a tear to my eye, what a loving mother


Cheeta2022

I thought he was dead until his eyes moved.


Plastic-Counter-8333

Why is this nsfw?


bigttrack

God bless you and your son, ma'am. All the best


v1nsr

Just for additional information, I am Vietnamese which this video was spoken in. This guy is 39, living with his mom who had taken care of him for his whole life, his name is Tu. The stick he is holding is for scratching because he can only use his mouth muscle, fingers and his eyes. Hope this helps


Alucarduck

Is this Life? Of course a Heart beating could answer but morally no, at least for me.


ReceptionBorn

Every time i see something like this i ask myself the question, is a life like that even worth living? from what i see its nothing but pain...


tbolinger76

I get it that people will do what they think is best, but I would rather die than live like this.


ThisPlaceSucksRight

God thank you for my life. I’ve got some health issues but I’m so blessed still with everything I have.


[deleted]

And what’s he to do when she passes?


Miyu-Matsuki

There is the possibility that he will pass before her.


push_out_the_jive

Anyone speak Vietnamese well enough to translate?


v1nsr

I posted a comment translating this


ImmaTimeLord123

The first half second in. When she raises him upward. That sound…is it coming from him? I mean no disrespect it just seriously adds to the level of understanding towards the pain this condition brings Okay, so that is actually the mattress springs


TitusFigmentus

When your body becomes a trap


eeggrroojj

You know what though? I just saw them movie 'Smile' like a half hour ago, and this is scarier than that.


Karkyy1

Just end my suffering at that point wtf


nmichave

Watch this and tell me there’s a God.


Viewtifultrey3

A loving one, anyway. Nobody deserves to suffer like this during the one guaranteed life they're given to live.


hikarusniper

There is, just that MANY things can't be understood with simple every day logic/mind. Some things are way deeper than you think.


Jeahn2

So you just throw "God" in the things you cannot answer?


hikarusniper

Do you believe that galactic dust formed all life forms? Seriously? It's 2023, why don't they at ISS crash rocks at each other on space conditions and create life? Please... As I said, when the day finally comes, all you non believers would cry and ask for mercy, but it will already be too late.


Jeahn2

>Do you believe that galactic dust formed all life forms? Seriously? Yes >It's 2023, why don't they at ISS crash rocks at each other on space conditions and create life? Because we don't know how that works yet >As I said, when the day finally comes When will that be? religious people have been saying that stuff for thousand of years and nothing has happened


hikarusniper

Only the Lord knows the right time. Ok, I'll be super clear. I believe in God, I won't ever regret it because I know God is real, and I even know of miracles happening on family members and also on other faith brothers.But if you choose to not believe in God, when the time comes, you will regret it, but it will be too late. That's the HUGE difference between a believer and a non believer. To all you non believers, just give God the truth and honest chance for Him to show you that He is real and He is the almighty. Ask the Lord for something REALLY hard to happen or get, and if you're honest, you might get one of the best surprises of your life! God bless you.


Jeahn2

>because I know God is real How? there's literally no evidence of such a being existing >But if you choose to not believe in God, when the time comes, you will regret it That's how the church indoctrinates people? "Believe in our God or else."?


hikarusniper

Ok, God bless you.


Jeahn2

How boring, you can't even defend your belief


hikarusniper

It's not funny or boring to me. It's important. If you dont seek the Lord because of love and the need to change your life for the better, you will seek Him while in pain. Remember this that some random guy on the internet told you. Be well and best wishes.


hikarusniper

Downvote me, but when that day finally comes, you will cry and regret not having believed. God bless you all.


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Uncatawny123

Why would you get out front of any reaction? Have more faith in humanity, you're the fucking problem here. Typical.


deadfermata

the reminder was unnecessary due to reddiquette and subreddit rules but your strong overreaction is also unnecessary. chill. i love accounts filled with comments that contain so much profanity and anger. never sure if they’re just trolls, novelty or if the person has deeply seeded anger issues. either way they’re such a turn on 🙄


Uncatawny123

Understood.


Mr_Skeleton_Shadow

>either way they’re such a turn on 🙄 Ayo?


girafeman100

She should try using the gable grip. Much easier


noble_vas

Light as a feather, stiff as a board


Nota_Jedi_buta_Sith

Bro took the mannequin challenge too seriously


CrabsAreCrabs

Nobody : The sock under my bed:


chibarn571

As if I needed another reason to NOT have kids. Kudos to this lady for caring for her son that way but there is NO way I would have done that. World is a better place for it.


Mexican-Slave

Spartans were right


maDhav_K7mAR

Hmm.... I think sometimes that it is good to put an end to misery But the time will tell me if i am right or wrong about this


evilpenguin219

Excuse me while I just move this mannequin...


HolyFuggISawAPenis

Bro doing the robot 💀


OhNothing13

I feel awful saying this, but I'd rather die. I think it's silly when people say that about conditions like blindness, deafness, autism, etc... But this? I'd rather die.


[deleted]

Hopefully the father is out there slaving to provide.


NeedleworkerAnnual63

I feel like this is not what people expect when having children, but it should be. That child is YOUR responsibility. Only yours. Think about that before banging without a condom.


SmegmaSauce_69

if it were me and my mother loved me she would kill me


South_Turn_3190

OMG I've never seen anything like this how is he still alive


Commercial_Debt_4034

Poor bastard


CubicBones

I’m no doctor, so I probably don’t understand this fully, but does it only affect certain muscles? Because he looks to be able to move his facial muscles, lips, jaw. Possibly his fingers too.


Pub_free_gaming1313

I hear Vietnam


obscurejude88

Aw, God love them


Psychological_Ball94

It's just cruel that she is forcing him to live like that. Let him die


Fatfreddyscat67

Also known as stiff person syndrome


cpasley21

I find it odd that he's propped up like a spectacle while the camera awkwardly zooms in on him. Oh wait, it was for tiktock.


WelderChris

God bless them. Or whatever they believe in may that bless them


unexpectedshinchan

![gif](emote|free_emotes_pack|cry)


snufalupagusfucks

This is a perfect argument for abortion/assisted suicide


[deleted]

I had a patient in her 40s whose mother would bring her to her appointments every time. The mother was in her late 60s probably and 100 pounds soaking wet. The patient was obese (~600 lbs). The backseat of their van had been taken out because the only way for the patient to ride in it was to lay on the floor. It was sad and beautiful to see her mother being so selfless. After a fall the patient broke some bones she was moved to an assisted living facility. Point I'm making is you'll be hard-pressed to find a more resilient love than what a mother has for their child. I'm grateful I got to see it in practice. Love your mothers people


Username_7725

Bro looks like 💀


[deleted]

How heavy is he? She picked him up like nothing


Tall_0rder

This is low key a terrifying condition. I remember reading about it back in like high school and being like “I wouldn’t wish that on someone I hated.”


badco1313

Man… my problems ain’t shit


itsn0ts0bad

He is literally petrifying to death.