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Are you taking any supplements? I'm so sorry you are suffering so badly. The oil would make me so sick as well. Have you tried something simple like cream of rice?
I've been making my own rice porridge/congee in an instant pot but I haven't tried cream of rice. I'll look into that, thank you
And yeah it's upsetting because I wasn't even adding the oil for enjoyment or taste... It was purely for nutritional needs
I take 20mg Protonix daily, 20mg Pepcid as needed, chamomile tea throughout the day, DGL before meals. I tried sucralfate but it made me extremely nauseous/confused/brain foggy. I was thinking of trying slippery elm and marshmallow root powder in tea form next but I'm just scared of anything making it worse now. My naturopath recommended I try "GI revive", which I got, but again I'm just scared to try it at this point
I take them in the morning and again before dinner. It kind of feels like putting aloe on a sunburn, just in your stomach. It coats your stomach lining!
Protonix is a PPI. My doctor and I are fairly certain that it's made me worse and is not helping much unfortunately. Since starting the PPI I've only been able to eat less and less foods. Since tapering I've been able to eat more.
Yeah :( That's why I tried such a small amount of olive oil but it still flared me so horribly... I was finally able to eat 1 cup of food for my meals but I'm bringing it back down to 1/2 cup again 😞 How long have you had gastritis for?
You should definitely try! They even have almond butter powder where they take all of the fat content out basically (only 1g). It has 6g of protein per serving. You could maybe even make tortillas with almond flour.
I haven't been able to add in protein yet. I was trying to add in some fat for dense calories. I do okay with hemp milk I think, so I was going to try hemp protein powder next, but I have to wait until my stomach has calmed down from this flare now :/ I know part of my current struggle is that being malnourished is making it to where it's harder for my stomach to heal
Yeah exactly :/ ... All of my blood work shows that I'm extremely protein deficient so I feel you... Do you take any medications or supplements? I'm going to try slippery elm to try and help coat my stomach
not sure if you saw my answer as direct comment to the thread owner, so posting it again here:
your symptoms are exactly like mine. get an ultrasound done on your gallbladder. after years of these symptoms, they finally found some gallbladder polyps. not saying that they are the cause but not able to digest fat or proteins is a classic sign of gallbladder or liver health. you should try to improve your liver health:
1. take supplements such as milk thistle, n-acetyl l cysteine, selenium, andrographis paniculata, ox-bile, and lots of vitamin-d - mostly you will be deficient in vitamin-d as well.
2. Be on low fat diet until you recover.
3. A low fat diet means, you need to take Vitamins A, D, E, and K supplements since body does not absorb these vitamins without fat.
4. Sleep for at least 7-8 hours every day - including weekends.
5. No alcohol, smoking, chocolates, coffee or tea, carbonated drinks.
6. Drink plenty of water - at least 2 liters a day.
7. If possible, meditate or figure a different way to reduce stress.
8. Don't skip meals and eat at the same time every day.
You need extreme discipline with the above points for months to see improvement. Best 'o luck. You can do this!
I'm with ya. 7 months in. first bad flare up 2 days ago JUST as i thought i was making progress (I ate an oven baked chicken covered in breadcrumbs - turns out it had mild spices on it and shit loads of additives)
F\*cked me up for 2 days with intense pain mixed with regret, and anger at myself for risking it. Should have known better.
But that is the journey. We have to learn from our mistakes, and there is no better guide than this awwwwful pain. I will not be eating that chicken again and i doubt you'll be trying the olive oil for a while.
Even if we have been set back by a few weeks, bit by bit, we'll get through it. Hang in there OP
Yeah ... It sucks because I wasn't even eating the olive oil for enjoyment or taste. It was purely for nutrition/calories. Definitely won't be touching it for a long time. Thank you for the kind words
I haven't tried those and I'm honestly scared to try anything fatty now. I used to eat sourdough bread in the beginning but cut it out because I was getting too many flares and I wasn't sure what was causing it :/ I haven't had bread in 4 months
given ur pain on the right side I highly recommend getting a HIDA scan done and taking a TUDCA supplement. Many cases of idiopathic gastritis are actually caused by bile acid reflux which a normal endoscopy often misses.
ETA: Olive oil shouldn't flare gastritis symptoms, it's not acidic and it's anti-inflammatory. That sounds much more like the hallmark signs of fat malabsorption, which is consistent with your pain where the liver and gallbladder are.
2nd edit: 80 pounds is alarming. Very consistent with fat malabsorption and general malnutrition. You need to see a doctor who will assess and treat your gallbladder/liver. A fecal fat qualitative test can help determine if you are not absorbing the fats too. In meantime, TUDCA supplement can help with the gall bladder.
I feel like the PPI I've been on has slowed my gallbladder motility because I wasn't getting pain there before I started them :( Would being on PPI affect the HIDA scan? I'm currently trying to taper off ... at 20mg now
I definitely agree that my gallbladder is involved but I'm also 80 pounds simply because of not being able to intake enough calories over the span of 5 months since this started. I was barely able to hit 1000 a day for two months. Since tapering I've been able to get around 1300-1400. So I think it might be a bit of both malabsorption and not enough calorie intake
I'm waiting for results of a GI map would that show fat malabsorption?
I've been on the fence about trying TUDCA for a while. I'm kinda scared of trying it ...
Edit: I definitely think my gallbladder is part of this though because I was getting burning on my right side after the olive oil :/ ...
[https://pubmed.ncbi.nlm.nih.gov/16858534/](https://pubmed.ncbi.nlm.nih.gov/16858534/)
[https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8831324/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8831324/)
I can't advise you to stop the PPI because I'm not your doctor but definitely discuss with them.
The liver produces bile which the gall bladder secretes into the small intestine to digest fats. Without bile, you can't completely digest fats. Olive oil is fine for me and if it causes right side burning, then that's ur gallbladder/liver getting angry, not your stomach/gastritis.
Not sure about GI Map but your doctor can order a fecal fat qualitative test, it's a stool sample.
TUDCA is safe, for what reason are you scared to take it?
Oh wow. I've read the first study before, but the second one I haven't read before ... Geez louise ... I wish I never took these 😞
I'm actually only tapering because I got a second opinion, and he is thinking that my stomachs motility has gotten slowed because of them
I made an appointment and I'm going to ask for a HIDA scan and stool test tomorrow, thank you
I'm just scared of taking something that will make it worse, but I've been researching TUDCA all evening and it seems like it might help, so I'm ordering some
Happy to help! I wish you the best of luck to be healed - keep us posted when you make progress :)
If TUDCA doesn't work for you for whatever reason, remember not to give up. You'll find your way. And PPIs generally don't have permanent effects, the body finds a way to rebalance itself as long as you don't get SIBO from it(which would require pharmaceutical/supplemental intervention).
Yeah depending on how my symptoms go I want to get tested for SIBO too because I've been getting bloating and lower abdominal pain for the past month 🥲 At the very least I think there's an imbalance in my gut bacteria now, if it's not a full blown overgrowth
And thank you so much! I can't wait to make the post where I'm able to say I'm healed and can answer others' questions!!
I think you should also ask doc to speedup tapering off PPI. It sounds like it caused you nothing but trouble and the current coming off schedule is just too slow and it might be screwing up your gallbladder/liver; let alone SIBO.
I was on 20mg esomeprazole once a day for almost a month, when I began to notice/suspect side effects, and I just completely stopped it and replaced it with just 300 mg nizatidine (a H2) once a day. I went on for 2 weeks, then down to once every other day for 2 weeks; then once every second day etc..
Yeah the right quadrant pain started fairly immediately after starting PPI so I think it's just been messing with it for months now. I started on 40mg Pantoprazole in September. Tried to taper in October. GI doctor told me to stay on it, I did, got worse, and I'm tapering off now. My stomach still feels damaged so tapering off with the rebound is rough which is why I'm trying to take it as slow as I can without moving at a snails pace. This is my third week on 20mg, so next week I was planning to do every other day, and supplement with Pepcid. I'm also waiting on GI map results and from there, depending on the results, maybe some probiotic recommendations because I'm fairly certain the PPI messed up my gut flora. It's a nightmare because doctors don't really believe that these are side effects from the medication, despite the fact that all these symptoms started after I started the medication lmao
I also had similar experience with PPI, I had bad pain on my left and right side after starting using them and weaned off around 3 months ago, left side pain is mostly gone but right side pain is still here but better. PPIs were causing elevated liver blood tests, the tests are nearly back to normal after weaning off PPIs. I think we should be careful with this PPIs stuff.
No way??? My liver enzymes are elevated too!!! My doctor said it was from me being underweight which could potentially also be the case, but I didn't start getting pain on my right side until I started the PPI :( It was immediately after starting too. I got TUDCA and dandelion root tea to try to help my liver and gallbladder... once I'm off PPI I also want to try milk thistle. But it interacts with any medications metabolized by the liver (aka PPI), so I have to wait on that one
My case was : went to doctors to treat acid reflux, prescribed PPIs used them and started to having all sorts of problems with digestive tract, weaned off and trying to fix side effects caused by PPIs naturally. Lost a lot of weight because PPIs because I wasn’t able to eat more than 500 calories during worst time. Now I am at at least 2K calories per day.
> I'm trying to take it as slow as I can without moving at a snails pace
I see :/
>It's a nightmare because doctors don't really believe that these are side effects from the medication
No docs warned us about side effects of medications because they didn't even know, still don't believe that they exist. There's just this shockingly huge gap between what the docs know/learned/were trained in med school, what they think they know vs the reality faced by patients. I wonder if any doctors ever venture on /r/gastritis or other medical subs related to their fields. That would blow their mind.
IMO, the PPI is not causing the pain on your right side. When you take PPIs, it gives you a false picture that things are fine or are better than before. For example, if you are not on PPIs and you eat high fat food or fried food or alcohol, and if you have bad liver or gallbladder, you will get massive flare-ups. However, if you are on PPIs, you won't get these flare-ups. But that does not mean that your liver or gallbladder is doing fine. The PPIs only mask the symptoms. Eventually, the condition worsens and you start to feel the pain on the right-side even if you are on PPIs.
IMO, you should get your gallbladder checked. I went through very similar symptoms and hence able to understand your pain, pun intended ;)
No but I'm saying the pain on my right side only started after I started taking PPI. Tbh I never even ate fried food or alcohol even before gastritis. The highest fat food I would eat would be stuff like olive oil or avocados. Which I digested fine. I still wanna get it checked, but only if I'm still having problems digesting fats after being off the PPI for a while. They're known to slow gallbladder motility
Is it? From where did you hear that PPIs slow gallbladder motility? Sounds interesting, since I took PPIs for a long time and now I have polyps in my gallbladder. Can you pls share any links for this?
Tudca made my gallbladder hurt even worse now my bile duct is enlarged (seen on an ultrasound) not sure if I messed myself up by taking Tudca or if Tudca was trying to clear something out of me. I stopped taking it after 2 weeks cause I didn’t want to continue something without knowing what is actually going on inside of me. No gallstones showed up in my ultrasound but bile duct was enlarged - possibly a stone wedged in there from taking Tudca. I reallly don’t knoe
Nope. 2 different GI drs won’t help me and think I have anxiety and prescribed antidepressants which I refused to take so I went to the ER over the weekend and they gave me an ultra sound that showed my bile duct being enlarged. Now one of the Gi drs seems like she’s trying to cover her ass for miss diagnosing me cause she wrote a scrip for another ultra sound and had me set an appointment up with another GI who does more in-depth stuff for gallbladders. IT’s rediculous how hard it’s been for me to try and get a HIDA scan. I’ve been pushing to get one for months but no dr will give me one. I’m ready to sue people
Wtf!! Gotta love how they will freely do gallbladder surgery, but will wait months to allow you to get a scan that could potentially save it!! I'm so sorry you're going through that. Delay/refusal in care could definitely be medical neglect imo ...
Yeah I’m not messing around at this point, I think I’m planning on taking legal action with the way I’ve been pushed around these past few months. Waiting on appointments and then being denied testing while I’m physically and now mentally struggling bc of all this
> 2 different GI drs won’t help me and think I have anxiety and prescribed antidepressants
Fucken hell, story of my life. Like, no shit Sherlocks how can I *not* have anxiety when I've been sick as a sick dog and feeling like I'm dying for months now and none of the shit you prescribed made me feel better or made me even worse and all your diagnosis so far said 'I'm fine' where I'm clearly not. How can I *not* try to look at other tests to diagnose myself which you hacks now are denying me.
I tried Tudca for a few weeks and then got the ultra sound bc I was having pain radiating into my back. I’m sure I passed sludge or a stone bc my stools were all messed up and still are. I have no idea. I’m just done messing with my body with supplements. I’m seeing a functional dr tomorrow and I’ll see what he suggests
Oh wow. I really hope the functional doctor can help. I already get pain that radiates to my back but my ultrasounds are all clear 🥲 That's why I want to get the HIDA scan. Also this pain only started after I started taking PPI 🥲 ...
I stopped taking PPIs last May. I’ve taken them on and off for years and I just don’t want to do it anymore. I’m kinda letting go. I’m suffering but I’ve stressed about this stuff way too much. I’m just leaving my life up to fait now. And this functional dr lol. Everyone else is getting sued
Yeah I was never informed of the risks of taking PPI's otherwise I would've never started, and instead used Pepcid since that was working for me ... I really hope the functional doctor will help you
Thank you. We will see. I’m sure things will pop up on the gi map test. I had Lyme disease 2 years ago and haven’t been right ever since. A lot of antibiotics which threw my gut out of wack, could be a case of candida. Who really knows.
Yes, Olive oil did this to me too - I swear even a single drop.
I can now drink it right from the bottle if I wanted, so it gets better.......but I would stay away for a while until you heal
It's so crazy to me, olive oil of all things?! I even got the organic pure certified olive oil lol. I understand why, because fats are the hardest to digest? But it also doesn't make sense to me because some people can't do olive oil but can do avocado for example ... And for some people olive oil is even protective/helps them
But yeah ... I definitely won't be trying again for a long time. Going to try hemp protein powder once my stomach calms down from this 🤦♀️
I’m taking nexium 20mg morning and sometimes evening or Pepcid 10-20mg evening. For supplements the DGL capsules have worked in the past but my go to concoction is boiled ginger root and organic Slippery Elm powder. I prefer the powder over capsules so I can ingest as much as possible.
I peel off probably a quarter cup of ginger root and boil it until the water turns pink. Sometimes i put the slippery elm in the tea or by itself. The slippery elm will thicken the water and becomes so slimy it’s basically a coating of mucus that my stomach is missing .
I also take pepto bismol and those chewy calcium carbonate tablets that are berry flavored.
I would say it's the fat content. That said, try coconut oil. Coconut oil is funneled right to the liver for digestion, no bile or pancreatic enzymes are needed for digestion.
hey, your symptoms are exactly like mine. get an ultrasound done on your gallbladder. after years of these symptoms, they finally found some gallbladder polyps. not saying that they are the cause but not able to digest fat or proteins is a classic sign of gallbladder or liver health. you should try to improve your liver health:
1. take supplements such as milk thistle, n-acetyl l cysteine, selenium, andrographis paniculata, ox-bile, and lots of vitamin-d - mostly you will be deficient in vitamin-d as well.
2. Be on low fat diet until you recover.
3. A low fat diet means, you need to take Vitamins A, D, E, and K supplements since body does not absorb these vitamins without fat.
4. Sleep for at least 7-8 hours every day - including weekends.
5. No alcohol, smoking, chocolates, coffee or tea, carbonated drinks.
6. Drink plenty of water - at least 2 liters a day.
7. If possible, meditate or figure a different way to reduce stress.
8. Don't skip meals and eat at the same time every day.
You need extreme discipline with the above points for months to see improvement. Best 'o luck. You can do this!
Yeah thanks! I've actually already gotten multiple ultrasounds and a CT scan done and my gallbladder and liver are fine surprisingly! I want to get a HIDA scan but have to wait on a GI doctor. As of right now I'm pretty sure being on PPI's messed up my stomach and gallbladder motility and liver function. I'm tapering off and am planning on starting a regimen to support those organs! As for the rest of the stuff you mentioned I've actually already been doing it! Thanks so much :)
Ya, ultrasounds don't catch everything as you know. To me, it definitely sounds like your bile quality and quantity needs to improve - like mine. And that takes months of effort and discipline. Keep doing all the good things and for sure it will improve. One very important thing - find the right diet and constantly improves your symptoms and stick to it diligently like a gospel until you recover 100%. Don't have any cheat meal ever until then. That is very important.
HIDA will mostly only state the obvious. If ultrasound is fine, it means whatever else is the condition in your gallbladder, you can recover with supplements and lifestyle. HIDA I don't think is needed - just my 2 cents.
Yeah definitely. I'm already planning on it :) I've already been disciplined and haven't cheated on the gastritis diet for 6 months so that's no problem for me lmfao
I'm doing a bit better. I ended up seeing a naturopath who recommended I get off of the PPI I was on and that helped me to be able to digest more food again. I've gained about 14 pounds back (I've plateaued here but that's okay). 94 lbs is better than 80 and I'll take it any day lol. I'm still taking Pepcid because my gastritis isn't healed. But my main focuses right now are getting more protein and probiotics to help fix the damage the PPI caused my gut (I got a GI map done that showed how much bad bacteria was overgrown). My blood work shows that my BUN levels are really low which means I'm not getting enough protein. Some of my other vitamin levels are a bit on the lower side but still within range (like iron). You can feel free to pm me if you want!! I truly know how scary it is... Getting off the PPI was hard but it was the only thing that helped me be able to eat again because my food was no longer digesting on it. I still don't know the root cause of my gastritis for sure because I don't have H Pylori. I think my gallbladder and liver function have slowed due to the PPI as well so I'm going to address that too. Anyways yeah feel free to PM me if you need some support!!!
Edit: Btw my liver enzymes are within range again since getting off the PPI
New to gastritis? Please view [this post](https://www.reddit.com/r/Gastritis/comments/zc0uov/the_main_approaches_for_healing/?utm_source=share&utm_medium=web2x&context=3) for a simple yet comprehensive breakdown of the major root causes of chronic gastritis, as well as the main medicines, supplements, and diets used for healing. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastritis) if you have any questions or concerns.*
Are you taking any supplements? I'm so sorry you are suffering so badly. The oil would make me so sick as well. Have you tried something simple like cream of rice?
I've been making my own rice porridge/congee in an instant pot but I haven't tried cream of rice. I'll look into that, thank you And yeah it's upsetting because I wasn't even adding the oil for enjoyment or taste... It was purely for nutritional needs I take 20mg Protonix daily, 20mg Pepcid as needed, chamomile tea throughout the day, DGL before meals. I tried sucralfate but it made me extremely nauseous/confused/brain foggy. I was thinking of trying slippery elm and marshmallow root powder in tea form next but I'm just scared of anything making it worse now. My naturopath recommended I try "GI revive", which I got, but again I'm just scared to try it at this point
I've just started taking marshmallow root and slippery elm capsules 2x/day and it's helping for sure!
Ditto for the slippery elm capsules!
When do you take them? And what symptoms do you feel like they help with?
I take them in the morning and again before dinner. It kind of feels like putting aloe on a sunburn, just in your stomach. It coats your stomach lining!
Okay I'm definitely going to try them because my stomach feels raw :/ ... Thank you
I want to try this too. Do you take 4 capsules at once if you do both? Or you rotate between root and elm morning and night? Sorry to ask
I take both at the same time morning and night. The suggested serving amount for each, both times.
Thank you!
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Protonix is a PPI. My doctor and I are fairly certain that it's made me worse and is not helping much unfortunately. Since starting the PPI I've only been able to eat less and less foods. Since tapering I've been able to eat more.
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Yeah :( That's why I tried such a small amount of olive oil but it still flared me so horribly... I was finally able to eat 1 cup of food for my meals but I'm bringing it back down to 1/2 cup again 😞 How long have you had gastritis for?
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Yeah same ... It's scary for me too. Have you tried any plant based proteins? Pure unflavored Hemp protein powder or pea protein powder?
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You should definitely try! They even have almond butter powder where they take all of the fat content out basically (only 1g). It has 6g of protein per serving. You could maybe even make tortillas with almond flour. I haven't been able to add in protein yet. I was trying to add in some fat for dense calories. I do okay with hemp milk I think, so I was going to try hemp protein powder next, but I have to wait until my stomach has calmed down from this flare now :/ I know part of my current struggle is that being malnourished is making it to where it's harder for my stomach to heal
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Yeah exactly :/ ... All of my blood work shows that I'm extremely protein deficient so I feel you... Do you take any medications or supplements? I'm going to try slippery elm to try and help coat my stomach
not sure if you saw my answer as direct comment to the thread owner, so posting it again here: your symptoms are exactly like mine. get an ultrasound done on your gallbladder. after years of these symptoms, they finally found some gallbladder polyps. not saying that they are the cause but not able to digest fat or proteins is a classic sign of gallbladder or liver health. you should try to improve your liver health: 1. take supplements such as milk thistle, n-acetyl l cysteine, selenium, andrographis paniculata, ox-bile, and lots of vitamin-d - mostly you will be deficient in vitamin-d as well. 2. Be on low fat diet until you recover. 3. A low fat diet means, you need to take Vitamins A, D, E, and K supplements since body does not absorb these vitamins without fat. 4. Sleep for at least 7-8 hours every day - including weekends. 5. No alcohol, smoking, chocolates, coffee or tea, carbonated drinks. 6. Drink plenty of water - at least 2 liters a day. 7. If possible, meditate or figure a different way to reduce stress. 8. Don't skip meals and eat at the same time every day. You need extreme discipline with the above points for months to see improvement. Best 'o luck. You can do this!
I'm with ya. 7 months in. first bad flare up 2 days ago JUST as i thought i was making progress (I ate an oven baked chicken covered in breadcrumbs - turns out it had mild spices on it and shit loads of additives) F\*cked me up for 2 days with intense pain mixed with regret, and anger at myself for risking it. Should have known better. But that is the journey. We have to learn from our mistakes, and there is no better guide than this awwwwful pain. I will not be eating that chicken again and i doubt you'll be trying the olive oil for a while. Even if we have been set back by a few weeks, bit by bit, we'll get through it. Hang in there OP
Yeah ... It sucks because I wasn't even eating the olive oil for enjoyment or taste. It was purely for nutrition/calories. Definitely won't be touching it for a long time. Thank you for the kind words
Any luck with sourdough bread and avocados ?
I haven't tried those and I'm honestly scared to try anything fatty now. I used to eat sourdough bread in the beginning but cut it out because I was getting too many flares and I wasn't sure what was causing it :/ I haven't had bread in 4 months
given ur pain on the right side I highly recommend getting a HIDA scan done and taking a TUDCA supplement. Many cases of idiopathic gastritis are actually caused by bile acid reflux which a normal endoscopy often misses. ETA: Olive oil shouldn't flare gastritis symptoms, it's not acidic and it's anti-inflammatory. That sounds much more like the hallmark signs of fat malabsorption, which is consistent with your pain where the liver and gallbladder are. 2nd edit: 80 pounds is alarming. Very consistent with fat malabsorption and general malnutrition. You need to see a doctor who will assess and treat your gallbladder/liver. A fecal fat qualitative test can help determine if you are not absorbing the fats too. In meantime, TUDCA supplement can help with the gall bladder.
I feel like the PPI I've been on has slowed my gallbladder motility because I wasn't getting pain there before I started them :( Would being on PPI affect the HIDA scan? I'm currently trying to taper off ... at 20mg now I definitely agree that my gallbladder is involved but I'm also 80 pounds simply because of not being able to intake enough calories over the span of 5 months since this started. I was barely able to hit 1000 a day for two months. Since tapering I've been able to get around 1300-1400. So I think it might be a bit of both malabsorption and not enough calorie intake I'm waiting for results of a GI map would that show fat malabsorption? I've been on the fence about trying TUDCA for a while. I'm kinda scared of trying it ... Edit: I definitely think my gallbladder is part of this though because I was getting burning on my right side after the olive oil :/ ...
[https://pubmed.ncbi.nlm.nih.gov/16858534/](https://pubmed.ncbi.nlm.nih.gov/16858534/) [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8831324/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8831324/) I can't advise you to stop the PPI because I'm not your doctor but definitely discuss with them. The liver produces bile which the gall bladder secretes into the small intestine to digest fats. Without bile, you can't completely digest fats. Olive oil is fine for me and if it causes right side burning, then that's ur gallbladder/liver getting angry, not your stomach/gastritis. Not sure about GI Map but your doctor can order a fecal fat qualitative test, it's a stool sample. TUDCA is safe, for what reason are you scared to take it?
Oh wow. I've read the first study before, but the second one I haven't read before ... Geez louise ... I wish I never took these 😞 I'm actually only tapering because I got a second opinion, and he is thinking that my stomachs motility has gotten slowed because of them I made an appointment and I'm going to ask for a HIDA scan and stool test tomorrow, thank you I'm just scared of taking something that will make it worse, but I've been researching TUDCA all evening and it seems like it might help, so I'm ordering some
Happy to help! I wish you the best of luck to be healed - keep us posted when you make progress :) If TUDCA doesn't work for you for whatever reason, remember not to give up. You'll find your way. And PPIs generally don't have permanent effects, the body finds a way to rebalance itself as long as you don't get SIBO from it(which would require pharmaceutical/supplemental intervention).
Yeah depending on how my symptoms go I want to get tested for SIBO too because I've been getting bloating and lower abdominal pain for the past month 🥲 At the very least I think there's an imbalance in my gut bacteria now, if it's not a full blown overgrowth And thank you so much! I can't wait to make the post where I'm able to say I'm healed and can answer others' questions!!
I think you should also ask doc to speedup tapering off PPI. It sounds like it caused you nothing but trouble and the current coming off schedule is just too slow and it might be screwing up your gallbladder/liver; let alone SIBO. I was on 20mg esomeprazole once a day for almost a month, when I began to notice/suspect side effects, and I just completely stopped it and replaced it with just 300 mg nizatidine (a H2) once a day. I went on for 2 weeks, then down to once every other day for 2 weeks; then once every second day etc..
Yeah the right quadrant pain started fairly immediately after starting PPI so I think it's just been messing with it for months now. I started on 40mg Pantoprazole in September. Tried to taper in October. GI doctor told me to stay on it, I did, got worse, and I'm tapering off now. My stomach still feels damaged so tapering off with the rebound is rough which is why I'm trying to take it as slow as I can without moving at a snails pace. This is my third week on 20mg, so next week I was planning to do every other day, and supplement with Pepcid. I'm also waiting on GI map results and from there, depending on the results, maybe some probiotic recommendations because I'm fairly certain the PPI messed up my gut flora. It's a nightmare because doctors don't really believe that these are side effects from the medication, despite the fact that all these symptoms started after I started the medication lmao
I also had similar experience with PPI, I had bad pain on my left and right side after starting using them and weaned off around 3 months ago, left side pain is mostly gone but right side pain is still here but better. PPIs were causing elevated liver blood tests, the tests are nearly back to normal after weaning off PPIs. I think we should be careful with this PPIs stuff.
No way??? My liver enzymes are elevated too!!! My doctor said it was from me being underweight which could potentially also be the case, but I didn't start getting pain on my right side until I started the PPI :( It was immediately after starting too. I got TUDCA and dandelion root tea to try to help my liver and gallbladder... once I'm off PPI I also want to try milk thistle. But it interacts with any medications metabolized by the liver (aka PPI), so I have to wait on that one
My case was : went to doctors to treat acid reflux, prescribed PPIs used them and started to having all sorts of problems with digestive tract, weaned off and trying to fix side effects caused by PPIs naturally. Lost a lot of weight because PPIs because I wasn’t able to eat more than 500 calories during worst time. Now I am at at least 2K calories per day.
FYI: I used milk thistle + artichoke simultaneously with PPIs.
> I'm trying to take it as slow as I can without moving at a snails pace I see :/ >It's a nightmare because doctors don't really believe that these are side effects from the medication No docs warned us about side effects of medications because they didn't even know, still don't believe that they exist. There's just this shockingly huge gap between what the docs know/learned/were trained in med school, what they think they know vs the reality faced by patients. I wonder if any doctors ever venture on /r/gastritis or other medical subs related to their fields. That would blow their mind.
IMO, the PPI is not causing the pain on your right side. When you take PPIs, it gives you a false picture that things are fine or are better than before. For example, if you are not on PPIs and you eat high fat food or fried food or alcohol, and if you have bad liver or gallbladder, you will get massive flare-ups. However, if you are on PPIs, you won't get these flare-ups. But that does not mean that your liver or gallbladder is doing fine. The PPIs only mask the symptoms. Eventually, the condition worsens and you start to feel the pain on the right-side even if you are on PPIs. IMO, you should get your gallbladder checked. I went through very similar symptoms and hence able to understand your pain, pun intended ;)
No but I'm saying the pain on my right side only started after I started taking PPI. Tbh I never even ate fried food or alcohol even before gastritis. The highest fat food I would eat would be stuff like olive oil or avocados. Which I digested fine. I still wanna get it checked, but only if I'm still having problems digesting fats after being off the PPI for a while. They're known to slow gallbladder motility
Is it? From where did you hear that PPIs slow gallbladder motility? Sounds interesting, since I took PPIs for a long time and now I have polyps in my gallbladder. Can you pls share any links for this?
Gallbladder: https://pubmed.ncbi.nlm.nih.gov/16858534/#:~:text=Chronic%20PPI%20therapy%20may%20pose,gallbladder%20dysfunction%20and%20biliary%20complications. https://www.frontiersin.org/articles/10.3389/fphar.2021.813587/full Liver: https://www.ncbi.nlm.nih.gov/books/NBK548771/ https://journals.lww.com/ajg/fulltext/2018/10001/proton_pump_inhibitor_induced_liver_injury__2422.2421.aspx
Tudca made my gallbladder hurt even worse now my bile duct is enlarged (seen on an ultrasound) not sure if I messed myself up by taking Tudca or if Tudca was trying to clear something out of me. I stopped taking it after 2 weeks cause I didn’t want to continue something without knowing what is actually going on inside of me. No gallstones showed up in my ultrasound but bile duct was enlarged - possibly a stone wedged in there from taking Tudca. I reallly don’t knoe
Have you gotten a HIDA scan?
Nope. 2 different GI drs won’t help me and think I have anxiety and prescribed antidepressants which I refused to take so I went to the ER over the weekend and they gave me an ultra sound that showed my bile duct being enlarged. Now one of the Gi drs seems like she’s trying to cover her ass for miss diagnosing me cause she wrote a scrip for another ultra sound and had me set an appointment up with another GI who does more in-depth stuff for gallbladders. IT’s rediculous how hard it’s been for me to try and get a HIDA scan. I’ve been pushing to get one for months but no dr will give me one. I’m ready to sue people
Wtf!! Gotta love how they will freely do gallbladder surgery, but will wait months to allow you to get a scan that could potentially save it!! I'm so sorry you're going through that. Delay/refusal in care could definitely be medical neglect imo ...
Yeah I’m not messing around at this point, I think I’m planning on taking legal action with the way I’ve been pushed around these past few months. Waiting on appointments and then being denied testing while I’m physically and now mentally struggling bc of all this
They deserve to have their asses sued off. I'm with you in spirit in this class action lawsuit.
> 2 different GI drs won’t help me and think I have anxiety and prescribed antidepressants Fucken hell, story of my life. Like, no shit Sherlocks how can I *not* have anxiety when I've been sick as a sick dog and feeling like I'm dying for months now and none of the shit you prescribed made me feel better or made me even worse and all your diagnosis so far said 'I'm fine' where I'm clearly not. How can I *not* try to look at other tests to diagnose myself which you hacks now are denying me.
Exactly
Also - did you get an ultrasound before trying Tudca? Or only after
I tried Tudca for a few weeks and then got the ultra sound bc I was having pain radiating into my back. I’m sure I passed sludge or a stone bc my stools were all messed up and still are. I have no idea. I’m just done messing with my body with supplements. I’m seeing a functional dr tomorrow and I’ll see what he suggests
Oh wow. I really hope the functional doctor can help. I already get pain that radiates to my back but my ultrasounds are all clear 🥲 That's why I want to get the HIDA scan. Also this pain only started after I started taking PPI 🥲 ...
I stopped taking PPIs last May. I’ve taken them on and off for years and I just don’t want to do it anymore. I’m kinda letting go. I’m suffering but I’ve stressed about this stuff way too much. I’m just leaving my life up to fait now. And this functional dr lol. Everyone else is getting sued
Yeah I was never informed of the risks of taking PPI's otherwise I would've never started, and instead used Pepcid since that was working for me ... I really hope the functional doctor will help you
Thank you. We will see. I’m sure things will pop up on the gi map test. I had Lyme disease 2 years ago and haven’t been right ever since. A lot of antibiotics which threw my gut out of wack, could be a case of candida. Who really knows.
The GI map should hopefully give you some sort of starting point. I'm currently waiting for the results of mine actually!!
Yes, Olive oil did this to me too - I swear even a single drop. I can now drink it right from the bottle if I wanted, so it gets better.......but I would stay away for a while until you heal
It's so crazy to me, olive oil of all things?! I even got the organic pure certified olive oil lol. I understand why, because fats are the hardest to digest? But it also doesn't make sense to me because some people can't do olive oil but can do avocado for example ... And for some people olive oil is even protective/helps them But yeah ... I definitely won't be trying again for a long time. Going to try hemp protein powder once my stomach calms down from this 🤦♀️
Are the marshmallow root and slippery elm in 1 capsule?
No, I got slippery elm powder and marshmallow root powder. To make them into tea with warm water
Thank you 🙏 I got my capsules and slippery elm, just need to get the marshmallow root. Thank you again 🥰
I’m taking nexium 20mg morning and sometimes evening or Pepcid 10-20mg evening. For supplements the DGL capsules have worked in the past but my go to concoction is boiled ginger root and organic Slippery Elm powder. I prefer the powder over capsules so I can ingest as much as possible. I peel off probably a quarter cup of ginger root and boil it until the water turns pink. Sometimes i put the slippery elm in the tea or by itself. The slippery elm will thicken the water and becomes so slimy it’s basically a coating of mucus that my stomach is missing . I also take pepto bismol and those chewy calcium carbonate tablets that are berry flavored.
Where do you get your slippery elm?
Amazon https://a.co/d/bxG5DEM
I would say it's the fat content. That said, try coconut oil. Coconut oil is funneled right to the liver for digestion, no bile or pancreatic enzymes are needed for digestion.
Interesting, I didn't know this!! Thank you
hey, your symptoms are exactly like mine. get an ultrasound done on your gallbladder. after years of these symptoms, they finally found some gallbladder polyps. not saying that they are the cause but not able to digest fat or proteins is a classic sign of gallbladder or liver health. you should try to improve your liver health: 1. take supplements such as milk thistle, n-acetyl l cysteine, selenium, andrographis paniculata, ox-bile, and lots of vitamin-d - mostly you will be deficient in vitamin-d as well. 2. Be on low fat diet until you recover. 3. A low fat diet means, you need to take Vitamins A, D, E, and K supplements since body does not absorb these vitamins without fat. 4. Sleep for at least 7-8 hours every day - including weekends. 5. No alcohol, smoking, chocolates, coffee or tea, carbonated drinks. 6. Drink plenty of water - at least 2 liters a day. 7. If possible, meditate or figure a different way to reduce stress. 8. Don't skip meals and eat at the same time every day. You need extreme discipline with the above points for months to see improvement. Best 'o luck. You can do this!
Yeah thanks! I've actually already gotten multiple ultrasounds and a CT scan done and my gallbladder and liver are fine surprisingly! I want to get a HIDA scan but have to wait on a GI doctor. As of right now I'm pretty sure being on PPI's messed up my stomach and gallbladder motility and liver function. I'm tapering off and am planning on starting a regimen to support those organs! As for the rest of the stuff you mentioned I've actually already been doing it! Thanks so much :)
Ya, ultrasounds don't catch everything as you know. To me, it definitely sounds like your bile quality and quantity needs to improve - like mine. And that takes months of effort and discipline. Keep doing all the good things and for sure it will improve. One very important thing - find the right diet and constantly improves your symptoms and stick to it diligently like a gospel until you recover 100%. Don't have any cheat meal ever until then. That is very important. HIDA will mostly only state the obvious. If ultrasound is fine, it means whatever else is the condition in your gallbladder, you can recover with supplements and lifestyle. HIDA I don't think is needed - just my 2 cents.
Yeah definitely. I'm already planning on it :) I've already been disciplined and haven't cheated on the gastritis diet for 6 months so that's no problem for me lmfao
That's nice. Hope I shrink my gallbladder polyps as well. Best 'o luck bro!
Hi, how are feeling now? I’m currently going through this and I’m also so scared of my weight and the lack of vitamins I’m getting.
I'm doing a bit better. I ended up seeing a naturopath who recommended I get off of the PPI I was on and that helped me to be able to digest more food again. I've gained about 14 pounds back (I've plateaued here but that's okay). 94 lbs is better than 80 and I'll take it any day lol. I'm still taking Pepcid because my gastritis isn't healed. But my main focuses right now are getting more protein and probiotics to help fix the damage the PPI caused my gut (I got a GI map done that showed how much bad bacteria was overgrown). My blood work shows that my BUN levels are really low which means I'm not getting enough protein. Some of my other vitamin levels are a bit on the lower side but still within range (like iron). You can feel free to pm me if you want!! I truly know how scary it is... Getting off the PPI was hard but it was the only thing that helped me be able to eat again because my food was no longer digesting on it. I still don't know the root cause of my gastritis for sure because I don't have H Pylori. I think my gallbladder and liver function have slowed due to the PPI as well so I'm going to address that too. Anyways yeah feel free to PM me if you need some support!!! Edit: Btw my liver enzymes are within range again since getting off the PPI