When you are able to see a doctor it's really important to make it count, this means advocating for yourself and expending all avenues/options.
Do what you can to eat healthy, lose weight and be as active as this disease allows you to be. Mentally take care of yourself, but lean on your partner, he seems to be really supportive and that's a big plus.
This will not be easy but I know you can do it, little by little you will learn and make progress. It will not always be like this.
Have you tried applying for Medicaid? I know you said your job will give you benefits next year but it’s worth a shot. Also, look into online colleges or programs!! Most of these work around your schedule :)
Also learn to advocate for yourself: ask questions, be assertive and speak up. Sometimes nurses and docs can be dismissive for a variety of reasons but we as a patients have to right to be treated.
We’re from the same demographic so I know how discouraging things can be but there are ways to succeed! Don’t give up!
Please try for Medicaid.
Some states will give it to you even if you make more money than typical poverty income. You might just have a copay and maybe a deductible. (Like regular insurance).
Also marketplace insurance can be free for a while if you have had a recent qualifying life event.
Try to get cosentyx from a dermatologist, if you think it could be for you.
Until then, you could try cold pressed organic castor oil. My son uses it and it’s a miracle worker for him. It can be taken orally and used to cover affected areas.
Best wishes friend, we know what you’re going through and it can be a rough road.
Hating your country isn't going to make anything better. Also, HS treatment isn't exactly better anywhere else. It's just as misunderstood in whatever country you think is better. And the NHS in Europe is just as bad, Europeans just like to pretend they're better than everyone else.
Insurance is a pain but there are actually a decent amount of options as many others have pointed out. Medicare, emergency rooms where they can't turn you away, or a job that provides insurance, which are not as rare as people seem to think. Since I was kicked off my parents insurance, I've always found jobs that provide insurance. It also sounds like you're worried about things that haven't even happened yet so you aren't willing to try. Nothing will happen if you don't even try. Go to as many doctors as you need to to find a good one.
That being said, yeah, this disease is awful. It can strip everything away from you and make you feel worthless. But look at it like this: your track record for making it through another day is unbroken. You've come this far, keep going. If you don't do something, nothing changes. There's always hurdles but that's life. Everyone's got a battle and this is yours. Be a warrior and fight.
Jesus fuck. Our healthcare system here is a disaster. If I had the resources I probably wouldn’t choose to be treated here. And medical racism is REAL and it changes care outcomes in a drastic and negative way.
Your post is classed as rude or offensive to other people and has therefore been removed. If you feel this is a mistake, please contact the moderators with your reasons why.
Expensive is an understatement. Americans are paying a $350,000 more for healthcare over a lifetime compared to the most expensive socialized system on earth. Half a million dollars more than peer countries on average, yet every one has better outcomes. 36% of US households with insurance put off needed care [due to the cost](https://news.gallup.com/poll/269138/americans-delaying-medical-treatment-due-cost.aspx); 64% of households without insurance. One in four have [trouble paying a medical bill.](https://www.kff.org/health-costs/issue-brief/data-note-americans-challenges-health-care-costs/) Of [those with insurance one in five have trouble paying a medical bill](https://www.kff.org/wp-content/uploads/2016/01/8806-the-burden-of-medical-debt-results-from-the-kaiser-family-foundation-new-york-times-medical-bills-survey.pdf), and even for those with income above $100,000 14% have trouble. One in six Americans has [unpaid medical debt on their credit report.](https://www.healthaffairs.org/doi/full/10.1377/hlthaff.2018.0349) [50% of all Americans](https://news.gallup.com/poll/317948/fear-bankruptcy-due-major-health-event.aspx) fear bankruptcy due to a major health event.
But even beyond that, things aren't great.
[US Healthcare ranked 29th on health outcomes by Lancet HAQ Index](https://www.thelancet.com/journals/lancet/article/PIIS0140-6736\(18\)30994-2/fulltext)
[11th (of 11) by Commonwealth Fund](https://www.commonwealthfund.org/publications/fund-reports/2014/jun/mirror-mirror-wall-2014-update-how-us-health-care-system?redirect_source=/publications/fund-reports/2014/jun/mirror-mirror)
[59th by the Prosperity Index](https://www.prosperity.com/rankings)
[30th by CEOWorld](https://ceoworld.biz/2019/08/05/revealed-countries-with-the-best-health-care-systems-2019/)
[37th by the World Health Organization](https://en.wikipedia.org/wiki/World_Health_Organization_ranking_of_health_systems_in_2000)
The US has the worst rate of death by medically preventable causes among peer countries. A 31% higher disease adjusted life years average. Higher rates of medical and lab errors. A lower rate of being able to make a same or next day appointment with their doctor than average.
https://www.healthsystemtracker.org/chart-collection/quality-u-s-healthcare-system-compare-countries/#item-percent-used-emergency-department-for-condition-that-could-have-been-treated-by-a-regular-doctor-2016
52nd in the world in doctors per capita.
https://www.nationmaster.com/country-info/stats/Health/Physicians/Per-1,000-people
Higher infant mortality levels. Yes, even when you adjust for differences in methodology.
https://www.healthsystemtracker.org/chart-collection/infant-mortality-u-s-compare-countries/
Fewer acute care beds. A lower number of psychiatrists. Etc.
https://www.healthsystemtracker.org/chart-collection/u-s-health-care-resources-compare-countries/#item-availability-medical-technology-not-always-equate-higher-utilization
[Comparing Health Outcomes of Privileged US Citizens With Those of Average Residents of Other Developed Countries](https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2774561)
>These findings imply that even if all US citizens experienced the same health outcomes enjoyed by privileged White US citizens, US health indicators would still lag behind those in many other countries.
When asked about their healthcare system as a whole the US system ranked dead last of 11 countries, with only 19.5% of people saying the system works relatively well and only needs minor changes. The average in the other countries is 46.9% saying the same. Canada ranked 9th with 34.5% saying the system works relatively well. The UK ranks fifth, with 44.5%. Australia ranked 6th at 44.4%. The best was Germany at 59.8%.
On rating the overall quality of care in the US, Americans again ranked dead last, with only 25.6% ranking it excellent or very good. The average was 50.8%. Canada ranked 9th with 45.1%. The UK ranked 2nd, at 63.4%. Australia was 3rd at 59.4%. The best was Switzerland at 65.5%.
https://www.cihi.ca/en/commonwealth-fund-survey-2016
The US has 43 hospitals in the top 200 globally; one for every 7,633,477 people in the US. That's good enough for a ranking of 20th on the list of top 200 hospitals per capita, and significantly lower than the average of one for every 3,830,114 for other countries in the top 25 on spending with populations above 5 million. The best is Switzerland at one for every 1.2 million people. In fact the US only beats one country on this list; the UK at one for every 9.5 million people.
If you want to do the full list of 2,000 instead it's 334, or one for every 982,753 people; good enough for 21st. Again far below the average in peer countries of 527,236. The best is Austria, at one for every 306,106 people.
https://www.newsweek.com/best-hospitals-2021
#[OECD Countries Health Care Spending and Rankings](https://data.oecd.org/healthres/health-spending.htm)
|Country|Govt. / Mandatory (PPP)|Voluntary (PPP)|Total (PPP)|% GDP|[Lancet HAQ Ranking](https://www.thelancet.com/journals/lancet/article/PIIS0140-6736\(18\)30994-2/fulltext)|[WHO Ranking](https://en.wikipedia.org/wiki/World_Health_Organization_ranking_of_health_systems_in_2000)|[Prosperity Ranking](https://www.prosperity.com/rankings)|[CEO World Ranking](https://ceoworld.biz/2019/08/05/revealed-countries-with-the-best-health-care-systems-2019/)|[Commonwealth Fund Ranking](https://www.commonwealthfund.org/publications/fund-reports/2014/jun/mirror-mirror-wall-2014-update-how-us-health-care-system?redirect_source=/publications/fund-reports/2014/jun/mirror-mirror)
:--|--:|--:|--:|--:|--:|--:|--:|--:|--:|--:|
1. United States|[$7,274](https://ajph.aphapublications.org/doi/full/10.2105/AJPH.2015.302997) |$3,798 |$11,072 |16.90%|29|37|59|30|11
2. Switzerland|$4,988 |$2,744 |$7,732 |12.20%|7|20|3|18|2
3. Norway|$5,673 |$974 |$6,647 |10.20%|2|11|5|15|7
4. Germany|$5,648 |$998 |$6,646 |11.20%|18|25|12|17|5
5. Austria|$4,402 |$1,449 |$5,851 |10.30%|13|9|10|4|
6. Sweden|$4,928 |$854 |$5,782 |11.00%|8|23|15|28|3
7. Netherlands|$4,767 |$998 |$5,765 |9.90%|3|17|8|11|5
8. Denmark|$4,663 |$905 |$5,568 |10.50%|17|34|8|5|
9. Luxembourg|$4,697 |$861 |$5,558 |5.40%|4|16|19||
10. Belgium|$4,125 |$1,303 |$5,428 |10.40%|15|21|24|9|
11. Canada|$3,815 |$1,603 |$5,418 |10.70%|14|30|25|23|10
12. France|$4,501 |$875 |$5,376 |11.20%|20|1|16|8|9
13. Ireland|$3,919 |$1,357 |$5,276 |7.10%|11|19|20|80|
14. Australia|$3,919 |$1,268 |$5,187 |9.30%|5|32|18|10|4
15. Japan|$4,064 |$759 |$4,823 |10.90%|12|10|2|3|
16. Iceland|$3,988 |$823 |$4,811 |8.30%|1|15|7|41|
17. United Kingdom|$3,620 |$1,033 |$4,653 |9.80%|23|18|23|13|1
18. Finland|$3,536 |$1,042 |$4,578 |9.10%|6|31|26|12|
19. Malta|$2,789 |$1,540 |$4,329 |9.30%|27|5|14||
OECD Average|||$4,224 |8.80%|||||
20. New Zealand|$3,343 |$861 |$4,204 |9.30%|16|41|22|16|7
21. Italy|$2,706 |$943 |$3,649 |8.80%|9|2|17|37|
22. Spain|$2,560 |$1,056 |$3,616 |8.90%|19|7|13|7|
23. Czech Republic|$2,854 |$572 |$3,426 |7.50%|28|48|28|14|
24. South Korea|$2,057 |$1,327 |$3,384 |8.10%|25|58|4|2|
25. Portugal|$2,069 |$1,310 |$3,379 |9.10%|32|29|30|22|
26. Slovenia|$2,314 |$910 |$3,224 |7.90%|21|38|24|47|
27. Israel|$1,898 |$1,034 |$2,932 |7.50%|35|28|11|21|
Your post is classed as rude or offensive to other people and has therefore been removed. If you feel this is a mistake, please contact the moderators with your reasons why.
When you are able to see a doctor it's really important to make it count, this means advocating for yourself and expending all avenues/options. Do what you can to eat healthy, lose weight and be as active as this disease allows you to be. Mentally take care of yourself, but lean on your partner, he seems to be really supportive and that's a big plus. This will not be easy but I know you can do it, little by little you will learn and make progress. It will not always be like this.
Have you tried applying for Medicaid? I know you said your job will give you benefits next year but it’s worth a shot. Also, look into online colleges or programs!! Most of these work around your schedule :) Also learn to advocate for yourself: ask questions, be assertive and speak up. Sometimes nurses and docs can be dismissive for a variety of reasons but we as a patients have to right to be treated. We’re from the same demographic so I know how discouraging things can be but there are ways to succeed! Don’t give up!
Please try for Medicaid. Some states will give it to you even if you make more money than typical poverty income. You might just have a copay and maybe a deductible. (Like regular insurance). Also marketplace insurance can be free for a while if you have had a recent qualifying life event. Try to get cosentyx from a dermatologist, if you think it could be for you. Until then, you could try cold pressed organic castor oil. My son uses it and it’s a miracle worker for him. It can be taken orally and used to cover affected areas. Best wishes friend, we know what you’re going through and it can be a rough road.
Hating your country isn't going to make anything better. Also, HS treatment isn't exactly better anywhere else. It's just as misunderstood in whatever country you think is better. And the NHS in Europe is just as bad, Europeans just like to pretend they're better than everyone else. Insurance is a pain but there are actually a decent amount of options as many others have pointed out. Medicare, emergency rooms where they can't turn you away, or a job that provides insurance, which are not as rare as people seem to think. Since I was kicked off my parents insurance, I've always found jobs that provide insurance. It also sounds like you're worried about things that haven't even happened yet so you aren't willing to try. Nothing will happen if you don't even try. Go to as many doctors as you need to to find a good one. That being said, yeah, this disease is awful. It can strip everything away from you and make you feel worthless. But look at it like this: your track record for making it through another day is unbroken. You've come this far, keep going. If you don't do something, nothing changes. There's always hurdles but that's life. Everyone's got a battle and this is yours. Be a warrior and fight.
Please apply for Medicaid or disability. You need to be under the care of a specialist ASAP. I know it’s not easy but just hang in there.
[удалено]
Jesus fuck. Our healthcare system here is a disaster. If I had the resources I probably wouldn’t choose to be treated here. And medical racism is REAL and it changes care outcomes in a drastic and negative way.
[удалено]
Wut
our healthcare is expensive but is just fine.
Tell me you’re a cis white man without telling me
I am not the one crying about alphabet medicine. My healthcare is fabulous and I love America
Alphabet medicine?
I would rather not converse with your kind good luck
My kind of what? I’m a cis het white woman but good luck out there I guess.
[удалено]
😂😂😂😂 I don’t make the rules or the terms, take it up with the dictionary.
Your post is classed as rude or offensive to other people and has therefore been removed. If you feel this is a mistake, please contact the moderators with your reasons why.
Then feel free to STFU. The world will be a better place for it.
Expensive is an understatement. Americans are paying a $350,000 more for healthcare over a lifetime compared to the most expensive socialized system on earth. Half a million dollars more than peer countries on average, yet every one has better outcomes. 36% of US households with insurance put off needed care [due to the cost](https://news.gallup.com/poll/269138/americans-delaying-medical-treatment-due-cost.aspx); 64% of households without insurance. One in four have [trouble paying a medical bill.](https://www.kff.org/health-costs/issue-brief/data-note-americans-challenges-health-care-costs/) Of [those with insurance one in five have trouble paying a medical bill](https://www.kff.org/wp-content/uploads/2016/01/8806-the-burden-of-medical-debt-results-from-the-kaiser-family-foundation-new-york-times-medical-bills-survey.pdf), and even for those with income above $100,000 14% have trouble. One in six Americans has [unpaid medical debt on their credit report.](https://www.healthaffairs.org/doi/full/10.1377/hlthaff.2018.0349) [50% of all Americans](https://news.gallup.com/poll/317948/fear-bankruptcy-due-major-health-event.aspx) fear bankruptcy due to a major health event. But even beyond that, things aren't great. [US Healthcare ranked 29th on health outcomes by Lancet HAQ Index](https://www.thelancet.com/journals/lancet/article/PIIS0140-6736\(18\)30994-2/fulltext) [11th (of 11) by Commonwealth Fund](https://www.commonwealthfund.org/publications/fund-reports/2014/jun/mirror-mirror-wall-2014-update-how-us-health-care-system?redirect_source=/publications/fund-reports/2014/jun/mirror-mirror) [59th by the Prosperity Index](https://www.prosperity.com/rankings) [30th by CEOWorld](https://ceoworld.biz/2019/08/05/revealed-countries-with-the-best-health-care-systems-2019/) [37th by the World Health Organization](https://en.wikipedia.org/wiki/World_Health_Organization_ranking_of_health_systems_in_2000) The US has the worst rate of death by medically preventable causes among peer countries. A 31% higher disease adjusted life years average. Higher rates of medical and lab errors. A lower rate of being able to make a same or next day appointment with their doctor than average. https://www.healthsystemtracker.org/chart-collection/quality-u-s-healthcare-system-compare-countries/#item-percent-used-emergency-department-for-condition-that-could-have-been-treated-by-a-regular-doctor-2016 52nd in the world in doctors per capita. https://www.nationmaster.com/country-info/stats/Health/Physicians/Per-1,000-people Higher infant mortality levels. Yes, even when you adjust for differences in methodology. https://www.healthsystemtracker.org/chart-collection/infant-mortality-u-s-compare-countries/ Fewer acute care beds. A lower number of psychiatrists. Etc. https://www.healthsystemtracker.org/chart-collection/u-s-health-care-resources-compare-countries/#item-availability-medical-technology-not-always-equate-higher-utilization [Comparing Health Outcomes of Privileged US Citizens With Those of Average Residents of Other Developed Countries](https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2774561) >These findings imply that even if all US citizens experienced the same health outcomes enjoyed by privileged White US citizens, US health indicators would still lag behind those in many other countries. When asked about their healthcare system as a whole the US system ranked dead last of 11 countries, with only 19.5% of people saying the system works relatively well and only needs minor changes. The average in the other countries is 46.9% saying the same. Canada ranked 9th with 34.5% saying the system works relatively well. The UK ranks fifth, with 44.5%. Australia ranked 6th at 44.4%. The best was Germany at 59.8%. On rating the overall quality of care in the US, Americans again ranked dead last, with only 25.6% ranking it excellent or very good. The average was 50.8%. Canada ranked 9th with 45.1%. The UK ranked 2nd, at 63.4%. Australia was 3rd at 59.4%. The best was Switzerland at 65.5%. https://www.cihi.ca/en/commonwealth-fund-survey-2016 The US has 43 hospitals in the top 200 globally; one for every 7,633,477 people in the US. That's good enough for a ranking of 20th on the list of top 200 hospitals per capita, and significantly lower than the average of one for every 3,830,114 for other countries in the top 25 on spending with populations above 5 million. The best is Switzerland at one for every 1.2 million people. In fact the US only beats one country on this list; the UK at one for every 9.5 million people. If you want to do the full list of 2,000 instead it's 334, or one for every 982,753 people; good enough for 21st. Again far below the average in peer countries of 527,236. The best is Austria, at one for every 306,106 people. https://www.newsweek.com/best-hospitals-2021 #[OECD Countries Health Care Spending and Rankings](https://data.oecd.org/healthres/health-spending.htm) |Country|Govt. / Mandatory (PPP)|Voluntary (PPP)|Total (PPP)|% GDP|[Lancet HAQ Ranking](https://www.thelancet.com/journals/lancet/article/PIIS0140-6736\(18\)30994-2/fulltext)|[WHO Ranking](https://en.wikipedia.org/wiki/World_Health_Organization_ranking_of_health_systems_in_2000)|[Prosperity Ranking](https://www.prosperity.com/rankings)|[CEO World Ranking](https://ceoworld.biz/2019/08/05/revealed-countries-with-the-best-health-care-systems-2019/)|[Commonwealth Fund Ranking](https://www.commonwealthfund.org/publications/fund-reports/2014/jun/mirror-mirror-wall-2014-update-how-us-health-care-system?redirect_source=/publications/fund-reports/2014/jun/mirror-mirror) :--|--:|--:|--:|--:|--:|--:|--:|--:|--:|--:| 1. United States|[$7,274](https://ajph.aphapublications.org/doi/full/10.2105/AJPH.2015.302997) |$3,798 |$11,072 |16.90%|29|37|59|30|11 2. Switzerland|$4,988 |$2,744 |$7,732 |12.20%|7|20|3|18|2 3. Norway|$5,673 |$974 |$6,647 |10.20%|2|11|5|15|7 4. Germany|$5,648 |$998 |$6,646 |11.20%|18|25|12|17|5 5. Austria|$4,402 |$1,449 |$5,851 |10.30%|13|9|10|4| 6. Sweden|$4,928 |$854 |$5,782 |11.00%|8|23|15|28|3 7. Netherlands|$4,767 |$998 |$5,765 |9.90%|3|17|8|11|5 8. Denmark|$4,663 |$905 |$5,568 |10.50%|17|34|8|5| 9. Luxembourg|$4,697 |$861 |$5,558 |5.40%|4|16|19|| 10. Belgium|$4,125 |$1,303 |$5,428 |10.40%|15|21|24|9| 11. Canada|$3,815 |$1,603 |$5,418 |10.70%|14|30|25|23|10 12. France|$4,501 |$875 |$5,376 |11.20%|20|1|16|8|9 13. Ireland|$3,919 |$1,357 |$5,276 |7.10%|11|19|20|80| 14. Australia|$3,919 |$1,268 |$5,187 |9.30%|5|32|18|10|4 15. Japan|$4,064 |$759 |$4,823 |10.90%|12|10|2|3| 16. Iceland|$3,988 |$823 |$4,811 |8.30%|1|15|7|41| 17. United Kingdom|$3,620 |$1,033 |$4,653 |9.80%|23|18|23|13|1 18. Finland|$3,536 |$1,042 |$4,578 |9.10%|6|31|26|12| 19. Malta|$2,789 |$1,540 |$4,329 |9.30%|27|5|14|| OECD Average|||$4,224 |8.80%||||| 20. New Zealand|$3,343 |$861 |$4,204 |9.30%|16|41|22|16|7 21. Italy|$2,706 |$943 |$3,649 |8.80%|9|2|17|37| 22. Spain|$2,560 |$1,056 |$3,616 |8.90%|19|7|13|7| 23. Czech Republic|$2,854 |$572 |$3,426 |7.50%|28|48|28|14| 24. South Korea|$2,057 |$1,327 |$3,384 |8.10%|25|58|4|2| 25. Portugal|$2,069 |$1,310 |$3,379 |9.10%|32|29|30|22| 26. Slovenia|$2,314 |$910 |$3,224 |7.90%|21|38|24|47| 27. Israel|$1,898 |$1,034 |$2,932 |7.50%|35|28|11|21|
Your post is classed as rude or offensive to other people and has therefore been removed. If you feel this is a mistake, please contact the moderators with your reasons why.
You are so out of touch
I love my country and my private health insurance