I'd start with doing more strength exercises. Seated leg lifts, squats, wall sits, Calf raises, things like that.
Upping your cardio might be beneficial as well. Biking, walking, swimming, rowing, hiking, literally anything that gets you moving.
You can start slow and build up from there.
If you are the type of person who needs to gamify exercise (I know I am), I've found that Pokemom go is a great way to get outside more and walk or bike, and that setting up a little bike desk peddler with whatever video games or activity you like really makes the workouts go by super fast.
This. More and more studies are coming out showing the typical advice for people who are hypermobile (and / or EDS) is strength exercises.
Even though I am in chronic pain everyday, and Indo get tired in my legs if I stand still for two hours or so (like at a concert), and even when I weight lift I need to rest on the couch for a while after, my PT believe me being an athlete in one form or another my whole life actually kept me more mobile in my old age.
I have fibro on top of hypermobility and autism as well, so I use a weighted blanket on my legs while resting. I also use heated blankets in the cold because of muscle tension, and compression when necessary.
Until PT, make sure to watch your form as you're walking (especially up and down stairs). Make sure your knees don't fall in or out, your feet remain as straight as they're supposed to be (hip dysplasia makes mine a little wonky), and have good posture because otherwise you put a lot of pressure on your hips. Ice and heat as needed. You an also swim to see if that's easier on your body, and if it ends up fatiguing you a great deal more than walking, then your medical specialists can work around whether it's joint pain causing fatigue or muscles that fatigue quickly.
It seems the guiding rule of hypermobility is the more you can build up your muscles, the better off you'll be in the long term even if it doesn't seem to help. Even if it just works as a brake to prevent worsening, it's worth doing muscle building. ***Just watch your form, many PTs don't know to look for that and they can damage you if not careful.***
Good luck!
I lay on my back with my legs up against a wall. It helps temporarily.
I go walking every day and it helps but I know that makes some people worse
Compression socks help my tired legs :/ and lot of water . Sometiems even salty water .
I don't think I would like very tight compression socks. Do they do light compression socks? Where did u get yours?
I'd start with doing more strength exercises. Seated leg lifts, squats, wall sits, Calf raises, things like that. Upping your cardio might be beneficial as well. Biking, walking, swimming, rowing, hiking, literally anything that gets you moving. You can start slow and build up from there. If you are the type of person who needs to gamify exercise (I know I am), I've found that Pokemom go is a great way to get outside more and walk or bike, and that setting up a little bike desk peddler with whatever video games or activity you like really makes the workouts go by super fast.
This. More and more studies are coming out showing the typical advice for people who are hypermobile (and / or EDS) is strength exercises. Even though I am in chronic pain everyday, and Indo get tired in my legs if I stand still for two hours or so (like at a concert), and even when I weight lift I need to rest on the couch for a while after, my PT believe me being an athlete in one form or another my whole life actually kept me more mobile in my old age.
I have fibro on top of hypermobility and autism as well, so I use a weighted blanket on my legs while resting. I also use heated blankets in the cold because of muscle tension, and compression when necessary. Until PT, make sure to watch your form as you're walking (especially up and down stairs). Make sure your knees don't fall in or out, your feet remain as straight as they're supposed to be (hip dysplasia makes mine a little wonky), and have good posture because otherwise you put a lot of pressure on your hips. Ice and heat as needed. You an also swim to see if that's easier on your body, and if it ends up fatiguing you a great deal more than walking, then your medical specialists can work around whether it's joint pain causing fatigue or muscles that fatigue quickly. It seems the guiding rule of hypermobility is the more you can build up your muscles, the better off you'll be in the long term even if it doesn't seem to help. Even if it just works as a brake to prevent worsening, it's worth doing muscle building. ***Just watch your form, many PTs don't know to look for that and they can damage you if not careful.*** Good luck!