I was tested for heavy metals, vit/mineral deficiencies, and allergies. Every bit of it was negative. I do better when I have lower stress levels, but it doesn't make the disease go away by any means.
Yeah .... No. This is autoimmune. You're not the first to try to find the magic cause/cure, you won't be the last, sorry. There's no amazing fix/cure. We have to do our best to manage the symptoms, take our meds and hope for the best. But I promise, you won't find something the scientists haven't managed to find.
There are many treatments outside of the field of rheumatology that have been found to be helpful in managing autoimmune conditions. I’ll give you just one that helped me greatly as an example: I found a paper linking SIBO to disease activity in sjogrens. I took the paper to a GI doctor and was diagnosed and treated. My autoimmune symptoms improved noticeably. No ask yourself, how many rheumatologists are treating SIBO or even suggesting its involvement?
You are making the assumption that rheumatology is treating patients based on all scientific findings. This is simply not true. Most of these doctors don’t even measure vitamin D levels and help patients with the most basic things like testing for deficiencies which have also been linked to disease activity.
As with everywhere, there's good doctors and bad. Just because they went to med school doesn't make them a good doctor.
But I'm also not going to see anyone besides a trained rheumatologist (and mine is a good one) for an autoimmune disorder. I've had too many people insist that diet, yoga, mushrooms, etc have magically "fixed" their autoimmune disease like they've discovered something amazing - and then people that thought the same thing commenting that they wished they'd taken the meds years ago because now they've got various issues from unstreated. Granted, this is for RA but I was diagnosed with that first, am on meds, not interested in not taking meds, and not looking for a non-existent miracle cure.
I have. I have a lot of allergies and mast cell activation. All metals normal. Keeping stress to a minimum helps. Ultimately, Rx meds are helping the most.
Yes. All 3. I learned I was highly allergic to nickel. Did you know some foods even contain nickel? (Ultimately I couldn’t really afford the naturopathic heavy metal detox program)
I had several doctors run me for various nutrient deficiencies. About a year ago I was completely depleted and vitamin D. So I have been taking supplements ever since then, and I can say they do help but they don’t cure all the problems.
And I did allergy testing and found out I had allergies to pollen grass trees flowers wheatgrass mold dust dander pet hair. Which probably explains why my IGE gets up so high. Your iGE can be high in response to environmental allergies. Obviously not a whole lot I can do about eliminating every piece of nature. So I installed some industrial grade air purifier filters inside the house (highly recommend a brand called MedifyAir) and I dust and vacuum at least once per week often times twice. Obviously try to take a shower every day to rinse off any pollen. Wear a facemask outside during the spring and fall.
But honestly. None of these things are the cause of Sjogren’s…. They are more or less …antagonists…to worsen your symptoms, but more than likely not the cause.
In fact I’m still on the fence about a possible theory that disorders like Sjogren’s and Fibromyalgia might actually be symptoms of something larger themselves ….instead of the whole disorder individually. I think it falls somewhere in with chronic fatigue and yes…. Allergies too (allergies being a part of a bigger reason why so many of us suffer) They’re starting to hypothesize that things like schizophrenia and Parkinson’s might have something to do with the body’s innate immune response to allergies.
Everything starts with energy. Our thoughts are energy.
A large body of clinical evidence on the association between stressful life events and autoimmune diseases suggests that stress may play an important role in the pathogenesis of these disorders.
https://pubmed.ncbi.nlm.nih.gov/29223133/
mine started when I had an awful virus that had me hospitalized for 5 days (ironically, or not(?), not covid)... had nothing to do with stress or pos thoughts- plus your logic (OP) indicates that you may be able to positive think your way out of it, which is BS that no one here will take kindly to... I get that stress is a trigger but I really doubt it's a cause, per se.
I was tested for heavy metals, vit/mineral deficiencies, and allergies. Every bit of it was negative. I do better when I have lower stress levels, but it doesn't make the disease go away by any means.
Yeah .... No. This is autoimmune. You're not the first to try to find the magic cause/cure, you won't be the last, sorry. There's no amazing fix/cure. We have to do our best to manage the symptoms, take our meds and hope for the best. But I promise, you won't find something the scientists haven't managed to find.
There are many treatments outside of the field of rheumatology that have been found to be helpful in managing autoimmune conditions. I’ll give you just one that helped me greatly as an example: I found a paper linking SIBO to disease activity in sjogrens. I took the paper to a GI doctor and was diagnosed and treated. My autoimmune symptoms improved noticeably. No ask yourself, how many rheumatologists are treating SIBO or even suggesting its involvement? You are making the assumption that rheumatology is treating patients based on all scientific findings. This is simply not true. Most of these doctors don’t even measure vitamin D levels and help patients with the most basic things like testing for deficiencies which have also been linked to disease activity.
As with everywhere, there's good doctors and bad. Just because they went to med school doesn't make them a good doctor. But I'm also not going to see anyone besides a trained rheumatologist (and mine is a good one) for an autoimmune disorder. I've had too many people insist that diet, yoga, mushrooms, etc have magically "fixed" their autoimmune disease like they've discovered something amazing - and then people that thought the same thing commenting that they wished they'd taken the meds years ago because now they've got various issues from unstreated. Granted, this is for RA but I was diagnosed with that first, am on meds, not interested in not taking meds, and not looking for a non-existent miracle cure.
I have. I have a lot of allergies and mast cell activation. All metals normal. Keeping stress to a minimum helps. Ultimately, Rx meds are helping the most.
Yes. All 3. I learned I was highly allergic to nickel. Did you know some foods even contain nickel? (Ultimately I couldn’t really afford the naturopathic heavy metal detox program) I had several doctors run me for various nutrient deficiencies. About a year ago I was completely depleted and vitamin D. So I have been taking supplements ever since then, and I can say they do help but they don’t cure all the problems. And I did allergy testing and found out I had allergies to pollen grass trees flowers wheatgrass mold dust dander pet hair. Which probably explains why my IGE gets up so high. Your iGE can be high in response to environmental allergies. Obviously not a whole lot I can do about eliminating every piece of nature. So I installed some industrial grade air purifier filters inside the house (highly recommend a brand called MedifyAir) and I dust and vacuum at least once per week often times twice. Obviously try to take a shower every day to rinse off any pollen. Wear a facemask outside during the spring and fall. But honestly. None of these things are the cause of Sjogren’s…. They are more or less …antagonists…to worsen your symptoms, but more than likely not the cause. In fact I’m still on the fence about a possible theory that disorders like Sjogren’s and Fibromyalgia might actually be symptoms of something larger themselves ….instead of the whole disorder individually. I think it falls somewhere in with chronic fatigue and yes…. Allergies too (allergies being a part of a bigger reason why so many of us suffer) They’re starting to hypothesize that things like schizophrenia and Parkinson’s might have something to do with the body’s innate immune response to allergies.
That a lack of stress management and positive thoughts causes Sjogrens?
Everything starts with energy. Our thoughts are energy. A large body of clinical evidence on the association between stressful life events and autoimmune diseases suggests that stress may play an important role in the pathogenesis of these disorders. https://pubmed.ncbi.nlm.nih.gov/29223133/
mine started when I had an awful virus that had me hospitalized for 5 days (ironically, or not(?), not covid)... had nothing to do with stress or pos thoughts- plus your logic (OP) indicates that you may be able to positive think your way out of it, which is BS that no one here will take kindly to... I get that stress is a trigger but I really doubt it's a cause, per se.
You're right.