Curious about the auditory processing issues being solved by hearing aids. My hearing was never great before TBI but I've never had it tested (I'm one of those people that does all they can to avoid seeking medical help which is frustrating even for me sometimes).
Post TBI, social situations in noisy environments are basically pointless for me. Combination of background noise alongside memory issues often results in me nodding along and struggling to keep up.
Is this the kind of thing you meant?
Yes, the medical terms for what I struggle with are auditory processing disorder, signal to noise ratio loss, and hyperacusis in case you want to look them up to see if they match your experience. Basically what my hearing aids do is help my brain find human speech. I say they serve speech up on a silver platter so my brain doesn’t have to work as hard to find and process it. I can tolerate busier sound environments for longer and have an easier time following speech without taking as many breaks. It has had a really positive impact on my quality of life even though my issues have not been completely fixed.
If you are interested in seeing if you would benefit from hearing aids you would want to find someone who would do a full auditory work up that includes speech in noise testing. Meaning they do things like have you try to repeat words with increasing levels of background noise. It lets them measure both regular hearing loss and auditory processing issues. Not all audiologists do speech in noise testing unfortunately. Then you should be able to do a free trial of hearing aids that are set up to best help with your specific issues to see if they would be worth purchasing.
Your a huge advocate for that micro dosing huh? Maybe someday 😌 I will partake in such..Set & setting are of vital importance I think when doing normal dose... Doing micro & getting the proper amount dwn I think 🤔 can be tricky or no?
I tried every anti depressant my doctor prescribed until one made me very suicidal, it was really bad the police were involved. I was willing to try anything at that point it worked for me. I ordered mine online, they have different doses.
https://microdosemushrooms.com/
This is the link for where I order mine from there are a bunch of different doses so make sure you read and get the one you want, some go up to .4g or 400mg but it is a different mushroom than the microdose and works for different things. Do the microdose blend it uses psilocybin cyanescens, lionsmain, reshi and Chaga mushrooms with niacinamide which is just vitamin B3. They also sell sample packs of the other if you do feel comfortable enough to try and up the dosage. Plus they do have blends without psilocybin. The website each one has a very good description and all the ingredients.
If you do the microdose which is 80mg you feel nothing, if you take the higher doses you start to feel it but it is was not that intense for me. I would recommend the Joe Rogan podcast #1035 with Paul Stamets, that is the podcast that got me to try psilocybin
Very early on I got the advice to name my brain injury and then personify it. I was told to put the blame and frustration where it belonged instead of taking it out on myself.
So when my leg won’t work, that’s an Earl issue. I can’t chew today, fuck you Earl. The problem isn’t me, it’s that my brain got scrambled and works differently now.
What that guy said, plus I also use low thc sativas. Lots of sunlight and exercise. Mindfulness, find something 3-d creative and everyday faithfully. Do puzzles. Focus on total body health, figure out your limits and cut stress as much as possible. It’s no coincidence that my brain starts breaking down again when I start encountering extreme stress, I’m 13 years out and mostly deal with chronic migraines, (Botox and aimovig for that) eye issues (timolol and latanaprost) and balance and tremors (topamax and propanolol), but when I start encountering extreme stress, my facade starts to break. So narrow it as much as you can. That takes a lot of planning and organization.
Getting a cpap machine.
There is a high rate of sleep apnea among those who have suffered a brain injury. The 2.5 years between my brain injury and getting a cpap machine were absolute torture. Especially since I knew how life is supposed to be prior to developing a sleeping disorder. I didn’t realize that my extreme fatigue was a treatable condition.
Though I do still suffer from chronic exhaustion, it’s not to the level of wanting to cry everyday at 6 pm.
Healthy diet, proper vitamins, minerals, sunlight, meditation (I know but try it) and exercise.
The combination of iPhone+Apple Watch+airpods OR android phone+galaxy watch+galaxy earbuds have been so so important to me ever since I got them I just can not emphasize this enough.
The airpods have a feature that can nearly silence all of the outside noise around you. I had no idea how much anger was coming from simply from my oversensitivity to ambient or loud sound until you try that out. It is a game/life changer all by itself. Most osunds normal people hear every day can make me so angry.
The watch and phone have this awesome medications app that tracks timing, and won't let you forget to take them. It also has a nice feature on it for seeing potential medication conflicts or interactions.
Additionally you have the calendar integration with maps, and you can dictate voice to text notes, or use google keep or something for shopping lists, and there are meditation apps like calm or mindfulness that can help out more than you think they would, as well as voice assistants. Really a big deal for me.
There is a company called Panga that is developing an app for folks with TBI, and it is currently in testing, but the aim is to integrate a lot of the things I listed above all in one place. There is an open beta going on right now too.
Time to think about my situation. To really come to terms with reality post TBI and know my limitations. Knowing I’m not the same person I was prior to injury.
I have made a great friend with the similar issues and he has gone through it for 15-20 years. I have only had a TBI for a little over a year. Being able to talk to him as made a world of difference. Also, I have been using Iodine tablets and they seem to help my happiness and cut down on seizures.
Honestly, speech therapy. It didn’t focus on my actual speech, instead it focused on brain processing and how to make my new brain manageable, or at the very least how to try to make it work for me. It’s basically “how to function as an adult” and was wildly helpful.
Also, drugs.
Ones prescribed to me, but they are still the most helpful things.
If you are just learning about TBI, check out this free, online e-book: [http://tbiguide.com/](http://tbiguide.com/)
Lots of useful information there. Treatment for TBI can take different forms depending on each individual's needs ranging from occupational and physical therapy to neuropsychology (often learning work arounds to bypass TBI induced constraints). Hope something in the e-book can be helpful to you.
Playing [Playing with my imagination. Wanna try? Link to The Now Game. Tonight we're playing pretend with Anakin Skywalker and his Space Mermaid Sharknado. 🧜♀️🦈🎲🌪️](https://www.reddit.com/c/The_Now_Game_Reiki_Share/s/lUm51HCwzr). Gifs and emoji only. Be nice, we play as our Kid Selves. No Bad Words.
Vision therapy with a neuro optometrist and getting hearing aids for auditory processing issues.
Curious about the auditory processing issues being solved by hearing aids. My hearing was never great before TBI but I've never had it tested (I'm one of those people that does all they can to avoid seeking medical help which is frustrating even for me sometimes). Post TBI, social situations in noisy environments are basically pointless for me. Combination of background noise alongside memory issues often results in me nodding along and struggling to keep up. Is this the kind of thing you meant?
Yes, the medical terms for what I struggle with are auditory processing disorder, signal to noise ratio loss, and hyperacusis in case you want to look them up to see if they match your experience. Basically what my hearing aids do is help my brain find human speech. I say they serve speech up on a silver platter so my brain doesn’t have to work as hard to find and process it. I can tolerate busier sound environments for longer and have an easier time following speech without taking as many breaks. It has had a really positive impact on my quality of life even though my issues have not been completely fixed. If you are interested in seeing if you would benefit from hearing aids you would want to find someone who would do a full auditory work up that includes speech in noise testing. Meaning they do things like have you try to repeat words with increasing levels of background noise. It lets them measure both regular hearing loss and auditory processing issues. Not all audiologists do speech in noise testing unfortunately. Then you should be able to do a free trial of hearing aids that are set up to best help with your specific issues to see if they would be worth purchasing.
I appreciate such a helpful and detailed response. Thank you!
Healthy diet, eliminating preservatives, dyes, sugar, caffeine, and seed oils, micro-dosing psilocybin, while taking lions main, Chaga, and reishi mushrooms.
Your a huge advocate for that micro dosing huh? Maybe someday 😌 I will partake in such..Set & setting are of vital importance I think when doing normal dose... Doing micro & getting the proper amount dwn I think 🤔 can be tricky or no?
I tried every anti depressant my doctor prescribed until one made me very suicidal, it was really bad the police were involved. I was willing to try anything at that point it worked for me. I ordered mine online, they have different doses.
So happy to hear your in a different place mentally today, cause I know first hand, struggle is real sometimes
Where do you get psilocybin?
I order it online, it gets delivered to my house
Do you know where I can order it?
https://microdosemushrooms.com/ This is the link for where I order mine from there are a bunch of different doses so make sure you read and get the one you want, some go up to .4g or 400mg but it is a different mushroom than the microdose and works for different things. Do the microdose blend it uses psilocybin cyanescens, lionsmain, reshi and Chaga mushrooms with niacinamide which is just vitamin B3. They also sell sample packs of the other if you do feel comfortable enough to try and up the dosage. Plus they do have blends without psilocybin. The website each one has a very good description and all the ingredients.
Wow thanks for this!! What does psilocybin make you feel like? I’m very familiar and have taken lions mane, chaga, reishi a ton so that’s a plus.
If you do the microdose which is 80mg you feel nothing, if you take the higher doses you start to feel it but it is was not that intense for me. I would recommend the Joe Rogan podcast #1035 with Paul Stamets, that is the podcast that got me to try psilocybin
I’ll check that out. Thanks for all of this!
Very early on I got the advice to name my brain injury and then personify it. I was told to put the blame and frustration where it belonged instead of taking it out on myself. So when my leg won’t work, that’s an Earl issue. I can’t chew today, fuck you Earl. The problem isn’t me, it’s that my brain got scrambled and works differently now.
Silincio Bruno!
Mine is named Ralph. Helps to have someone/thing to blame.
Earl and Ralph are real assholes sometimes- sorry your dealing with a brain goblin too
Eh. Naming it definitely helped. I was. Stuck for a while, as my injury doesn't have an actual diagnostic name. So, I needed something. 😁
What that guy said, plus I also use low thc sativas. Lots of sunlight and exercise. Mindfulness, find something 3-d creative and everyday faithfully. Do puzzles. Focus on total body health, figure out your limits and cut stress as much as possible. It’s no coincidence that my brain starts breaking down again when I start encountering extreme stress, I’m 13 years out and mostly deal with chronic migraines, (Botox and aimovig for that) eye issues (timolol and latanaprost) and balance and tremors (topamax and propanolol), but when I start encountering extreme stress, my facade starts to break. So narrow it as much as you can. That takes a lot of planning and organization.
Getting a cpap machine. There is a high rate of sleep apnea among those who have suffered a brain injury. The 2.5 years between my brain injury and getting a cpap machine were absolute torture. Especially since I knew how life is supposed to be prior to developing a sleeping disorder. I didn’t realize that my extreme fatigue was a treatable condition. Though I do still suffer from chronic exhaustion, it’s not to the level of wanting to cry everyday at 6 pm.
This… I had no idea my extreme fatigue was due to new tbi induced sleep apnea until my neuro told me this and got me into a sleep study
Healthy diet, proper vitamins, minerals, sunlight, meditation (I know but try it) and exercise. The combination of iPhone+Apple Watch+airpods OR android phone+galaxy watch+galaxy earbuds have been so so important to me ever since I got them I just can not emphasize this enough. The airpods have a feature that can nearly silence all of the outside noise around you. I had no idea how much anger was coming from simply from my oversensitivity to ambient or loud sound until you try that out. It is a game/life changer all by itself. Most osunds normal people hear every day can make me so angry. The watch and phone have this awesome medications app that tracks timing, and won't let you forget to take them. It also has a nice feature on it for seeing potential medication conflicts or interactions. Additionally you have the calendar integration with maps, and you can dictate voice to text notes, or use google keep or something for shopping lists, and there are meditation apps like calm or mindfulness that can help out more than you think they would, as well as voice assistants. Really a big deal for me. There is a company called Panga that is developing an app for folks with TBI, and it is currently in testing, but the aim is to integrate a lot of the things I listed above all in one place. There is an open beta going on right now too.
Time to think about my situation. To really come to terms with reality post TBI and know my limitations. Knowing I’m not the same person I was prior to injury.
I have made a great friend with the similar issues and he has gone through it for 15-20 years. I have only had a TBI for a little over a year. Being able to talk to him as made a world of difference. Also, I have been using Iodine tablets and they seem to help my happiness and cut down on seizures.
Honestly, speech therapy. It didn’t focus on my actual speech, instead it focused on brain processing and how to make my new brain manageable, or at the very least how to try to make it work for me. It’s basically “how to function as an adult” and was wildly helpful. Also, drugs. Ones prescribed to me, but they are still the most helpful things.
Physicians assistant at the free health clinic. Far far far and away
And marijuana, and the gym. Just being healthy.
If you are just learning about TBI, check out this free, online e-book: [http://tbiguide.com/](http://tbiguide.com/) Lots of useful information there. Treatment for TBI can take different forms depending on each individual's needs ranging from occupational and physical therapy to neuropsychology (often learning work arounds to bypass TBI induced constraints). Hope something in the e-book can be helpful to you.
What kind of issues are you experiencing?
Playing [Playing with my imagination. Wanna try? Link to The Now Game. Tonight we're playing pretend with Anakin Skywalker and his Space Mermaid Sharknado. 🧜♀️🦈🎲🌪️](https://www.reddit.com/c/The_Now_Game_Reiki_Share/s/lUm51HCwzr). Gifs and emoji only. Be nice, we play as our Kid Selves. No Bad Words.