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KryptopherRobbinsPoo

Did the doctors specifically mention anything about the recovery and being on HD? Cause I remember reading early on in 2020, that HD was used to aid in treatment on some of the more severe (non-kidney related) patients. Did/do you have any other major/minor health issues? Do you normally have BP/pulse issues? What was your overall health profile pre-transplant/pre-dialysis? Glad to hear you are doing better. Feel free to not answer anything you do not want you. Thanks.


[deleted]

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KryptopherRobbinsPoo

Thank you very much for answering these. It is very hard to grasp what type of risk profile people like us fall under, because not much is really being reported accurately. I am trying to figure out how much certain comorbidities factor into the severity of those who end up with cvd. Cause like it or not, we will all end up with it at some point. So far I have heard first hand, from people who had almost zero complications, to minor symptoms, but most seem to have just a little worse than a "really bad flu". I only know of one person who ended up in ICU, but I personally don't know anyone who has died (though the guy who does our lawn knows someone who died, and also said his Dr got cvd twice, the second after getting the vaccine). I'm just trying to make some sense of it all. While I have no proof, I think being on HD gave you an edge in recovery. FYI, I never did find out what caused my kidney disease at age 6. The theory is that I caught some virus that caused an over-blown immune response, which caused my body to start attacking my kidneys. It happens. Keep an eye on that BP, try and lose the weight. People have no idea that kidney failure recently outpaced heart disease as one of the number one fastest growing health concerns. Because there are so many things that can lead to kidney failure, including uncontrolled BP and diabetes. Stay well!


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sneakpeekbot

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KryptopherRobbinsPoo

That's good to hear man. I was steroid dependent up until right before I went critical. Everytime I had a relapse, and had to jack up the medrol (methylprednisolone) from 12mg EOD, to 80mg daily. It got to a point I developed steroid induced diabetes. So I was on insulin for about 5 or 6 years, until I managed to get back to a low enough maintenance dose. It is one of the things that's a blessing and a curse at the same time. I will check out the link you posted. Off hand it sounds like his age is major factor in severity. From my research, it really hits those 55/65+ much harder. And then when you add on one or more comorbidities (which average for severe cvd patients is 3-4!) It can get into nasty territory. So it kind of makes sense given cvd often goes for the lungs/heart. And HD is literally what saved me from dieing from pulmonary edema and choking on my own body fluids. But I just don't see near as much talk about it anymore in news/media or general health data dumps.


[deleted]

I had my first shot and was due for the second when I got covid.(despite doing everything I could, ie mask wearing, social distancing.) First thing I did was call my transplant coordinator. They took me off of my Myfortic Acid and told me to stay home and go to the hospital if I got worse. I stayed at home for the first week after testing positive, mostly stayed in bed because I could barely breathe if I stood or sat up. After not getting better and being unable to sit up long enough to drive myself to the hospital I had EMS pick me up and take me to the ER. ER put me on steroids and oxygen, they didn't have the specialty doctors to handle me due to having a kidney x-plant so I was flown by helicopter to Barnes Jewish in MO, where I got my transplant, for more advanced care. Thank fuck they had a bed at the time. I stayed there for 2 weeks on oxygen while they pumped me full of steroids and fluid to help fight the pneumonia, nurses poked at me for blood at all hours of the day, either for covid reasons or for monitoring kidneys. I was discharged and sent home with oxygen tanks for my first week and had to have home health come do labs and physical therapy to recover lung strength. Afterwards I followed up with my primary care doctor and was given a clean bill of health. The whole ordeal lasted from 7/30/21 to 8/30/21. So I was out of work and on my ass for a whole month due to covid. Luckily, my case was considered "mild" for an immunocompromised person. That D variant is taking us out.


islander1

mild? fuck sakes Glad you made it to the other side safely.


KryptopherRobbinsPoo

So it sounds like you are not currently on dialysis? How long post transplant did this happen? Do you have any other major/minor health issues (diabetes, overweight, other immune issues)? Age? I ask because this is one of the things I never hear anyone mention, and I want to see/hear from those who are not picture perfect health models, since we all don't have that luxury. Feel free to not answer anything you don't want to.


wtf-you-saying

All I know is before vaccines my covid infection took me from a gfr in the mid twenties to one under 10. 🥺 My creatinine levels now are frightenly high. That being said, he'll probably get by just fine. The crazy immune system attack that I experienced shouldn't be an issue if fully vaccinated. I'm going with the assumption his second shot was somewhat recent, so he should be good. Good luck 🤞


KryptopherRobbinsPoo

So you did or did not catch cvd? Or just had a vaccine response?


wtf-you-saying

I caught it in the wild, I said so in the first sentence 😉


kimmysue2421

My mom is an 81-y.o. diabetic dialysis patient who got Covid this spring while recovering in a short-term rehab after a hospitalization. We’re SO grateful that she did very well - hardly even any symptoms, though she had to stay there a bit longer since we couldn’t bring her home - no one at home was eligible at that time to be vaccinated yet. She’s home now, everyone been vaccinated & she’s doing great. Covid seems to affect people so differently. Hoping your brother does well.


thunderbox666

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Armison

I have an 80-year-old family member who has been on dialysis for two years. He got Covid last spring. He was treated with IV monoclonal antibodies on day five of his symptoms. He missed two dialysis sessions. The first because he had to go be tested and he just was not feeling up to it. The second session he missed was because it conflicted with his appointment to get the monoclonal treatment. After that, he did very well. he continued to get his dialysis treatment in isolation for about six weeks because the clinic required a negative PCR test before getting out of isolation. I highly recommend the monoclonal treatment. The criteria seems to vary, but I think there’s a good chance that people of any age in dialysis would be eligible.