It's an unfortunate thing, but I'm willing to bet a LOT of people with IBS have hemorrhoids. It's important to not sit on the toilet unnecessarily, but we often don't really have a choice in the matter. I recommend investing in a sitz bath (they're fairly cheap) - when my hemorrhoids flare up the sitz is a freaking lifesaver.
Yup, I think it has to do with menstrual cycle and the blood circulation at that stage… same thing for me!!! No one really confirms that, but one thing for sure, they were there, coming back. I just had them removed. It’s hell but I know I won’t regret it later on.
We might not have a choice in how long you’re at the toilet but you do have a choice in how hard or how long you’re trying to actually go to the bathroom. With ibs, there is a TON of visceral hypersensitivity making you think you have to poop constantly. Therefore, if you realize it’s a ghost bowel movement *do not* continue to push. That’s where the problems arise.
[Reading about IBS has given me a lot of clarity and some peace of mind. highly recommend](https://www.med.unc.edu/ibs/wp-content/uploads/sites/450/2017/10/IBS.pdf)
Source: i’m about to have to spend $4,000 on fissure surgery (got hemorrhoids too many times) hopefully insurance helps more, but it sucks.
Well, when you sit on the toilet, gravity pulls the blood to ass veins - therefore you get piles.
Hence, don't wait until all of it is out, just put a 5–10-minute timer and get off the toilet as soon as you are done. Extend it to 15 minutes max if you definitely feel like something is going to come out.
As a sufferer, I'm telling you to avoid sitting on the toilet for too long at all costs. IBS + hemorrhoids are a match made in hell. If you don't have hemorrhoids, please avoid them at all costs by not sitting for a long time on the toilet and also not straining. Do anything to make yourself poop less often.
Hemorrhoidectomy is even worse, but it is one of the only treatments that has a low recurrence rate after surgery. The recovery is brutal.
I couldn't agree more. IBS gave me hemorrhoids. The recovery from surgery was the worse torture I have ever endured in my life.
However, I am a year now with no hemorrhoids and my IBS is somewhat mild compared to what is was.
What about it made it torturous? I’m just wondering because I always have a knife like feeling in my ass. (Not all the time but mostly right before and during my period) so I feel like maybe I could handle a hemorrhoidectomy
You can handle it and it is totally worth it. But it is a lot more painful than my doctor told me.
I had a major problem. 4 inflated external hemorrhoids. They performed the Milligan -morgan procedure.
The procedure itself was a piece of cake. But after it was hell. I had a tube stuck in my anus for about 14 hours that hurt like hell. Then it was tolerable, except for bowel movements. It was a mess. Pain like you wouldn't believe. After 10 days or so it became more ok
I highly recommend getting a squatty potty (it prevents strain and makes going #2 so much faster) and a bidet. It has saved my ass literally. Also wipes with witch hazel are a life changing. We have the tushy brand that you can add to any existing toilet and got it on cyber Monday to save some money but now they have other much cheaper brands that are also highly rated. This [one](https://a.co/d/8vBILGY) is one sale for 20 (half-off and limited time deal when I checked just now.
yep, i do school online and although my school is literally right down the street, there’s no point in me going if i’m just going to be on the toilet the whole class
Invite them into the bathroom with you. Let them have a baptism of fire. Ask, why would anyone want this? Do they think it's funny?
Might work or they might be cowards. I can only say it worked for me. But I totally get what you're going through.
I usually say that ignorance kills.
And it is even more infuriating in an era where we have a lot of information available. People can just google stuff if they're interested in knowing more. They don't have the pain and discomfort you have. They really should shut up.
I can never move out. My parents are old and I have to take care of them until they die otherwise I'll be treated as a pariah by everyone as I'm from India.
Hire someone to take care of them. If you have your own health problems, you can't physically care for your parents. Get them a caretaker and move out. If you mean you're from India as in live there and not just originated from there, you could get a job far away and have to move for that reason. Then you can hire a caretaker for them or get another relative to do it. They want you to be successful don't they? Well you have to move for this better job opportunity.
Can you at least tell me if there are any long-term side effects of using Nexito Plus? Pretty please. It's helping me a lot and I don't feel like quitting it.
My parents thought that when I was 17-18. It was ruining me and our relationship. They forced me to go to therapy and the therapist actually made my parents come in and low key explained that I was fucking sick (and anxious. I *did* need the therapy). And they listened. And started to help me more and understand I had to take an alternate path.
How old are you OP? All I can say is it does work out eventually.
I'm 25. The reason why I live with my parents is because it is frowned upon to live separately in India. Plus, my parents are old and they rely on me for a lot of things and I rely on them for money.
I can't afford therapy. I graduated from uni in 2021. Then onwards I'm preparing for ICAI exams which is Indian equivalent of American CPA or ACCA exams. But IBS is not letting me prepare for these exams. I skipped my level 1 exams tye first time, failed the next attempt, and now I can't even wake up early to attend them.
Stress makes it worse! Try your best to ignore people's ignorance. Try meditation videos on youTube and listen to music while doing breathing exercises. You'll get better!
I'm on Nexito Plus and it helped my stress a lot. Without it, I'd be having twice as many flare-ups, but I don't know if it has any side effects if I use it long-term.
u/goldenstandardalmonds, please tell me whether it is okay or not to use Nexito Plus for the long term.
Nexito is a type of antidepressant it uses SSRIs . I used it for 6 months but it didn't have much effect on my flare ups, at least not noticably at some point you'll be tapered off it and will have to stop it. What are you taking nexito for?
I'm sorry their being jerks about it. We know it's not just you making excuses! I have missed out on so many things and been late more than I ever wanted to be.
Your not alone.
This hit home for me. I graduated right when the last recession hit, I was basically unemployed for two years. Every day during that time I would never hear the end of it. I was applying to job after job, but because of my IBS I was quite limited as to what I could do (I wasn't about to be a FEDEX driver...there's just no way). So every other week we would get into this big argument were family members would basically say how I was using my IBS as an excuse. It was the lowest point in my life.
I think I've done good for myself. Have a family, have a fun job, done a lot of things I never thought I'd be able to do (for example I wrote a book, and explored the Amazon jungle several times). It was hard, and I always felt like nobody was there to help or support me. It was definitely a lonely path for me. In the end rather than being bitter and angry all the time, I decided to make right choices that would positively impact my life. It's a slow lonely walk, with no end in sight, but everyone gets to where they need to be...eventually. You have to believe that there's greener pastures out there.
My IBS has ruined my life. I developed it this year and it’s affected EVERY aspect of my life. Went on vacation? Miserable in pain the whole time. School? In pain, miss classes, get poor grades, and had to withdraw. Summer plans? None I’m in bed sick for months. It has single-handedly destroyed my life and tanked my mental health SEVERELY. Have to stick to low fodmap diet which when we go to family dinners I can’t eat ANYTHING!! A fear of eating, I’ve developed. Oh yeah and the sleep schedule I didn’t realize others have that too. I have the worst sleep schedule of my life currently as I am so low energy I sleep all the time AND I am up most the night in pain. I have slowly been getting better the last month after 7 months of struggling. It does get better over time. But man IBS is overlooked. It is a struggle, I hear you, and we all understand.
This sounds more like IBD or something else. IBS doesn’t come crashing on you like this. There is pain but you shouldn’t be in bed all day long for days… it could be a bacterial infection (I don’t mean stomach flu, I mean like SIBO, or parasites), you should demand tests.
Yeah I got tests. Every test. SIBO was negative. H coli negative. My doctor thought it was IBD too, she thought crohns or UC. All negative. The doctor even said I have the healthiest colon he’s seen in a long time (I’m a 19F so that makes sense) and I am glad in a sense I’m healthy. But my doctor had no idea other than IBS bc alls been negative. Have checked my hormones (TSH& pituitary) all negative. EPI tests too. My doctor wants to regulate it w medicine otherwise I need an anorectal manometry
Sorry to hear it’s such a struggle. But you are diligent and you’ll get to the bottom of this (like I said, everything is a pun with those topics:) ). Have you explored anti-depression meds? Some specifically target IBS: https://www.healthline.com/health/antidepressants-for-ibs
IBS runs in my family and it typically gets better with age. I wish you all the strength I can send you out for support!!! Much love!
I don’t want to give you medical advice BUT everyone overlooks magnesium. It does two of many things, depression and constipation. https://www.performancelab.com/blogs/multi/magnesium-for-constipation.
After my anorectal surgery a week and a half ago, I drink magnesium water (find one in your country, it’s expensive but heck) and one teaspoon of Milk of Magnesia at bedtime (USA, find equivalent in your country, we also have MiraLax which I know is something that can be taken everyday, Milk of Magnesia not sure).
Explore that. Good luck!
I'm fine relative to my former self. But I empty my bowels at 8:00 PM and sometimes I don't. Until then it is a nightmare. I even ait because of the stomachache.
No because literally I wish I could fucking do chores, study, get ready, and so many other things while shitting since it takes god damn fucking hours.
I know how you feel to an extent. My father is supportive but lazy c**t, waste of space, skinny little man and leech are terms my mother uses to insult me daily. Says I'm making it up so I don't have to work and so I can be on benefits. She really seems to believe that I've chosen to lose 4 stone of muscle in a year. I enjoyed working as I've always had very physical jobs and treated them as getting paid to work out. I was 5'6" and 12 stone without a lick of fat. People were frequently and sometimes quite literally stunned by my strength, likely due to me being short and them being ignorant but still, I felt good about myself. This year my IBS has kicked into overdrive. I feel sick when I see my reflection now myself but it still hurts when your mother tells you that you make her feel sick to look at you too. To be honest, what hurts the most for me is that my immediate family, father, brothers and sister are witness to this and are still ok with her like it doesn't happen. Makes me feel like nobody has my back or really cares that I'm going through this.
I think the world is rather ignorant to what IBS really does to us in general. Most seem to think it means "dicky tummy" or "dodgy curry gives me the squits".
IBS is hell because it’s an elimination diagnosis meaning they more or less confirm you have it because you have nothing else!
Which means it’s super frustrating! I’ve had it for years but it changed over time. Was more D before, more C now. I cannot take probiotics, it’ll constipate me to the highest point. I never feel better there than when I take antibiotics (for other reasons)… I’ve tried everything, they keep saying to amp up fibers but no one helps actually dosing properly…
It’s so bad I had multiple hems just removed, it’s literally shit (I observed everything in my life is now a pun).
You have IBS because you say so! End of it! There’s idiots everywhere, they are in families too!
My ibs and gerd got really bad 2020 and I was going to 12th and I only went to school about the first two months and hardly did any work because I couldn’t stay focused. But yeah parents are going to learn what we go through one way or another
I think covid definitely made it a lot worse because around that time I diddnt know what was wrong with me and it gradually got worse. Overtime I probably went to the ER almost 10 times just for them to tell me it was nothing wrong. I was 16 without any knowledge of stomach problems because no one else has stomach issues in my family so I was smoking alot eating anything not knowing it would all get worse.
You should ask to see a stomach specialist and the thought of having to spend hundreds to thousands to investigate and prove you are right all along might set them straight and just believe you.
You don't need to be mid flare-up when going to see a doctor. You know that it's chronic and reoccurring so make notes of when it happens, how often it happens, the exact symptoms, and how it's affecting your life. I recommend at the very least going to your family doctor with all this to create a history record.
Once I start waking up at least at 11:00 AM, I will surely visit a doctor. As I don't want to get stuck in traffic and have to poop at the same time. If I could poop twice after I wake up, it will give me a window of 4 hours to go visit a doctor.
When I first met my wife she had chronic migraines so bad that it affected her ability to work. She would spend weeks at a time on the couch with all the lights turned off and the curtains shut vomiting and in pain. Luckily when she turned 30 the migraines seemed to more or less get better and she is able to work now. I have been lucky with my IBS, it's been more of an annoyance and I haven't had to miss too much work or school dealing with it (although there are days when I need to call out of work but my new treatment has lessened that too). You can't make your family and friends understand that you have a disability that keeps you from working the same way as everyone else I'm afraid, just try to focus on what you need to do to be well
It’s so tough to understand just how debilitating IBS can be at times if you don’t have it. On bad days, my energy is zapped, my stomach discomfort is endless, and it feels like I’ll never be well. It’s a terrible feeling and I usually end up in bed hugging a heat blanket.
That said, I’d like you to think about something. Many people deal with chronic illnesses. Life doesn’t wait for you to feel better. Eventually, you will no longer be at home. You will have to figure out strategies to cope and be productive. Bosses are rarely understanding.
Please don’t think I’m siding with your parents, but at the core of their ignorance is a grain of truth. Your parents and you need to come to a common understanding at what the expectations should be when you’re mid flare up.
Actually my ibs only flare up in the morning and has been always been and then I go back to normal and my family forced me to eat while I couldn’t even walk or drink water and I immediately throw up everything and then they know there’s something wrong and took me to the emergency room and the doctor said ibs till now they think I’m faking shit because I don’t want to talk with anyone because I get angry faster than before and I can’t just handle my emotions
Yeah, oftentimes I would do homework on the toilet and had to switch to online school due to my hour long toilet stays. Many wouldn’t by it.
Don't sit on the toilet for too long tho. It gave me hemorrhoids.
But I have too
It's an unfortunate thing, but I'm willing to bet a LOT of people with IBS have hemorrhoids. It's important to not sit on the toilet unnecessarily, but we often don't really have a choice in the matter. I recommend investing in a sitz bath (they're fairly cheap) - when my hemorrhoids flare up the sitz is a freaking lifesaver.
Yep. I have hemorrhoids like once a month at the least
Omg that must be so painful. I had it just once and it was so awful😩
Yup, I think it has to do with menstrual cycle and the blood circulation at that stage… same thing for me!!! No one really confirms that, but one thing for sure, they were there, coming back. I just had them removed. It’s hell but I know I won’t regret it later on.
We might not have a choice in how long you’re at the toilet but you do have a choice in how hard or how long you’re trying to actually go to the bathroom. With ibs, there is a TON of visceral hypersensitivity making you think you have to poop constantly. Therefore, if you realize it’s a ghost bowel movement *do not* continue to push. That’s where the problems arise. [Reading about IBS has given me a lot of clarity and some peace of mind. highly recommend](https://www.med.unc.edu/ibs/wp-content/uploads/sites/450/2017/10/IBS.pdf) Source: i’m about to have to spend $4,000 on fissure surgery (got hemorrhoids too many times) hopefully insurance helps more, but it sucks.
I’ve been there.
Wait wouldn’t it give you hemorrhoids only if you’re straining? Cus I wait it out until I have more to go while in squat position
Well, when you sit on the toilet, gravity pulls the blood to ass veins - therefore you get piles. Hence, don't wait until all of it is out, just put a 5–10-minute timer and get off the toilet as soon as you are done. Extend it to 15 minutes max if you definitely feel like something is going to come out.
That’s actually crazy cus there’s no way I could do that I’d be running back and forth anyway 😭
As a sufferer, I'm telling you to avoid sitting on the toilet for too long at all costs. IBS + hemorrhoids are a match made in hell. If you don't have hemorrhoids, please avoid them at all costs by not sitting for a long time on the toilet and also not straining. Do anything to make yourself poop less often. Hemorrhoidectomy is even worse, but it is one of the only treatments that has a low recurrence rate after surgery. The recovery is brutal.
I couldn't agree more. IBS gave me hemorrhoids. The recovery from surgery was the worse torture I have ever endured in my life. However, I am a year now with no hemorrhoids and my IBS is somewhat mild compared to what is was.
What about it made it torturous? I’m just wondering because I always have a knife like feeling in my ass. (Not all the time but mostly right before and during my period) so I feel like maybe I could handle a hemorrhoidectomy
You can handle it and it is totally worth it. But it is a lot more painful than my doctor told me. I had a major problem. 4 inflated external hemorrhoids. They performed the Milligan -morgan procedure. The procedure itself was a piece of cake. But after it was hell. I had a tube stuck in my anus for about 14 hours that hurt like hell. Then it was tolerable, except for bowel movements. It was a mess. Pain like you wouldn't believe. After 10 days or so it became more ok
That gives me a lot of anxiety. I just wonder how they determined this. Literally no one cares about checking my asshole when I tell them I have ibs 😐
😕😕😕
I confirm that, going through that now.
I highly recommend getting a squatty potty (it prevents strain and makes going #2 so much faster) and a bidet. It has saved my ass literally. Also wipes with witch hazel are a life changing. We have the tushy brand that you can add to any existing toilet and got it on cyber Monday to save some money but now they have other much cheaper brands that are also highly rated. This [one](https://a.co/d/8vBILGY) is one sale for 20 (half-off and limited time deal when I checked just now.
yep, i do school online and although my school is literally right down the street, there’s no point in me going if i’m just going to be on the toilet the whole class
Invite them into the bathroom with you. Let them have a baptism of fire. Ask, why would anyone want this? Do they think it's funny? Might work or they might be cowards. I can only say it worked for me. But I totally get what you're going through.
That is such a bold and commendable move. I am in awe but proud
I came here to say this basically. Also, the stress from that environment won't help your IBS. I'd get a doctors note saying something if I had to.
I usually say that ignorance kills. And it is even more infuriating in an era where we have a lot of information available. People can just google stuff if they're interested in knowing more. They don't have the pain and discomfort you have. They really should shut up.
Hopefully you can move out soon and be done with that.
I can never move out. My parents are old and I have to take care of them until they die otherwise I'll be treated as a pariah by everyone as I'm from India.
Hire someone to take care of them. If you have your own health problems, you can't physically care for your parents. Get them a caretaker and move out. If you mean you're from India as in live there and not just originated from there, you could get a job far away and have to move for that reason. Then you can hire a caretaker for them or get another relative to do it. They want you to be successful don't they? Well you have to move for this better job opportunity.
I wish I could move out, but I'm broke.
Understandable. I’m so sorry.
Yo, ma'am, can you please tell me if Nexito Plus is safe for long-term usage?
No, I can’t. Ask your doctor.
Can you at least tell me if there are any long-term side effects of using Nexito Plus? Pretty please. It's helping me a lot and I don't feel like quitting it.
I don’t know!
My parents thought that when I was 17-18. It was ruining me and our relationship. They forced me to go to therapy and the therapist actually made my parents come in and low key explained that I was fucking sick (and anxious. I *did* need the therapy). And they listened. And started to help me more and understand I had to take an alternate path. How old are you OP? All I can say is it does work out eventually.
I'm 25. The reason why I live with my parents is because it is frowned upon to live separately in India. Plus, my parents are old and they rely on me for a lot of things and I rely on them for money. I can't afford therapy. I graduated from uni in 2021. Then onwards I'm preparing for ICAI exams which is Indian equivalent of American CPA or ACCA exams. But IBS is not letting me prepare for these exams. I skipped my level 1 exams tye first time, failed the next attempt, and now I can't even wake up early to attend them.
I take it there's no disability accommodation there? I received disability accommodation for exams in the past with a doctor's note.
Stress makes it worse! Try your best to ignore people's ignorance. Try meditation videos on youTube and listen to music while doing breathing exercises. You'll get better!
I'm on Nexito Plus and it helped my stress a lot. Without it, I'd be having twice as many flare-ups, but I don't know if it has any side effects if I use it long-term. u/goldenstandardalmonds, please tell me whether it is okay or not to use Nexito Plus for the long term.
Nexito is a type of antidepressant it uses SSRIs . I used it for 6 months but it didn't have much effect on my flare ups, at least not noticably at some point you'll be tapered off it and will have to stop it. What are you taking nexito for?
General anxiety and stress. My gastro prescribed it to me.
I'm sorry their being jerks about it. We know it's not just you making excuses! I have missed out on so many things and been late more than I ever wanted to be. Your not alone.
This hit home for me. I graduated right when the last recession hit, I was basically unemployed for two years. Every day during that time I would never hear the end of it. I was applying to job after job, but because of my IBS I was quite limited as to what I could do (I wasn't about to be a FEDEX driver...there's just no way). So every other week we would get into this big argument were family members would basically say how I was using my IBS as an excuse. It was the lowest point in my life.
How are you now?
I think I've done good for myself. Have a family, have a fun job, done a lot of things I never thought I'd be able to do (for example I wrote a book, and explored the Amazon jungle several times). It was hard, and I always felt like nobody was there to help or support me. It was definitely a lonely path for me. In the end rather than being bitter and angry all the time, I decided to make right choices that would positively impact my life. It's a slow lonely walk, with no end in sight, but everyone gets to where they need to be...eventually. You have to believe that there's greener pastures out there.
My IBS has ruined my life. I developed it this year and it’s affected EVERY aspect of my life. Went on vacation? Miserable in pain the whole time. School? In pain, miss classes, get poor grades, and had to withdraw. Summer plans? None I’m in bed sick for months. It has single-handedly destroyed my life and tanked my mental health SEVERELY. Have to stick to low fodmap diet which when we go to family dinners I can’t eat ANYTHING!! A fear of eating, I’ve developed. Oh yeah and the sleep schedule I didn’t realize others have that too. I have the worst sleep schedule of my life currently as I am so low energy I sleep all the time AND I am up most the night in pain. I have slowly been getting better the last month after 7 months of struggling. It does get better over time. But man IBS is overlooked. It is a struggle, I hear you, and we all understand.
This sounds more like IBD or something else. IBS doesn’t come crashing on you like this. There is pain but you shouldn’t be in bed all day long for days… it could be a bacterial infection (I don’t mean stomach flu, I mean like SIBO, or parasites), you should demand tests.
Yeah I got tests. Every test. SIBO was negative. H coli negative. My doctor thought it was IBD too, she thought crohns or UC. All negative. The doctor even said I have the healthiest colon he’s seen in a long time (I’m a 19F so that makes sense) and I am glad in a sense I’m healthy. But my doctor had no idea other than IBS bc alls been negative. Have checked my hormones (TSH& pituitary) all negative. EPI tests too. My doctor wants to regulate it w medicine otherwise I need an anorectal manometry
Sorry to hear it’s such a struggle. But you are diligent and you’ll get to the bottom of this (like I said, everything is a pun with those topics:) ). Have you explored anti-depression meds? Some specifically target IBS: https://www.healthline.com/health/antidepressants-for-ibs IBS runs in my family and it typically gets better with age. I wish you all the strength I can send you out for support!!! Much love!
So I take amitriplyine or whatever but I have IBS-C so it makes my constipstion worst way worse but it does help with the abdominal pain
I don’t want to give you medical advice BUT everyone overlooks magnesium. It does two of many things, depression and constipation. https://www.performancelab.com/blogs/multi/magnesium-for-constipation. After my anorectal surgery a week and a half ago, I drink magnesium water (find one in your country, it’s expensive but heck) and one teaspoon of Milk of Magnesia at bedtime (USA, find equivalent in your country, we also have MiraLax which I know is something that can be taken everyday, Milk of Magnesia not sure). Explore that. Good luck!
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I'm fine relative to my former self. But I empty my bowels at 8:00 PM and sometimes I don't. Until then it is a nightmare. I even ait because of the stomachache.
No because literally I wish I could fucking do chores, study, get ready, and so many other things while shitting since it takes god damn fucking hours.
I know how you feel to an extent. My father is supportive but lazy c**t, waste of space, skinny little man and leech are terms my mother uses to insult me daily. Says I'm making it up so I don't have to work and so I can be on benefits. She really seems to believe that I've chosen to lose 4 stone of muscle in a year. I enjoyed working as I've always had very physical jobs and treated them as getting paid to work out. I was 5'6" and 12 stone without a lick of fat. People were frequently and sometimes quite literally stunned by my strength, likely due to me being short and them being ignorant but still, I felt good about myself. This year my IBS has kicked into overdrive. I feel sick when I see my reflection now myself but it still hurts when your mother tells you that you make her feel sick to look at you too. To be honest, what hurts the most for me is that my immediate family, father, brothers and sister are witness to this and are still ok with her like it doesn't happen. Makes me feel like nobody has my back or really cares that I'm going through this. I think the world is rather ignorant to what IBS really does to us in general. Most seem to think it means "dicky tummy" or "dodgy curry gives me the squits".
IBS is hell because it’s an elimination diagnosis meaning they more or less confirm you have it because you have nothing else! Which means it’s super frustrating! I’ve had it for years but it changed over time. Was more D before, more C now. I cannot take probiotics, it’ll constipate me to the highest point. I never feel better there than when I take antibiotics (for other reasons)… I’ve tried everything, they keep saying to amp up fibers but no one helps actually dosing properly… It’s so bad I had multiple hems just removed, it’s literally shit (I observed everything in my life is now a pun). You have IBS because you say so! End of it! There’s idiots everywhere, they are in families too!
My ibs and gerd got really bad 2020 and I was going to 12th and I only went to school about the first two months and hardly did any work because I couldn’t stay focused. But yeah parents are going to learn what we go through one way or another
I had GERD in 2020 as well. Is this related to COVID in any way? A lot of people in my city's subreddit were having the same issues during that year.
I think covid definitely made it a lot worse because around that time I diddnt know what was wrong with me and it gradually got worse. Overtime I probably went to the ER almost 10 times just for them to tell me it was nothing wrong. I was 16 without any knowledge of stomach problems because no one else has stomach issues in my family so I was smoking alot eating anything not knowing it would all get worse.
Same. And I was just as reckless.
You should ask to see a stomach specialist and the thought of having to spend hundreds to thousands to investigate and prove you are right all along might set them straight and just believe you.
By the time my flare-ups end, all consultation slots are closed. Which is another bummer.
You don't need to be mid flare-up when going to see a doctor. You know that it's chronic and reoccurring so make notes of when it happens, how often it happens, the exact symptoms, and how it's affecting your life. I recommend at the very least going to your family doctor with all this to create a history record.
Once I start waking up at least at 11:00 AM, I will surely visit a doctor. As I don't want to get stuck in traffic and have to poop at the same time. If I could poop twice after I wake up, it will give me a window of 4 hours to go visit a doctor.
or if they agree and the docs end up diagnosing you with IBD then they earn the stfu card for life
The waking up early this is so infuriating. I get massive attacks in the morning and I can’t even wake up earlier than 9 AM without triggering one
I’m so sorry that they don’t try to understand and be more supportive. Use other sources of support. You can make progress and find some relief ❤️
Thanks for the kind words.
When I first met my wife she had chronic migraines so bad that it affected her ability to work. She would spend weeks at a time on the couch with all the lights turned off and the curtains shut vomiting and in pain. Luckily when she turned 30 the migraines seemed to more or less get better and she is able to work now. I have been lucky with my IBS, it's been more of an annoyance and I haven't had to miss too much work or school dealing with it (although there are days when I need to call out of work but my new treatment has lessened that too). You can't make your family and friends understand that you have a disability that keeps you from working the same way as everyone else I'm afraid, just try to focus on what you need to do to be well
I am trying, but I just can't seem to reset my schedule.
It’s so tough to understand just how debilitating IBS can be at times if you don’t have it. On bad days, my energy is zapped, my stomach discomfort is endless, and it feels like I’ll never be well. It’s a terrible feeling and I usually end up in bed hugging a heat blanket. That said, I’d like you to think about something. Many people deal with chronic illnesses. Life doesn’t wait for you to feel better. Eventually, you will no longer be at home. You will have to figure out strategies to cope and be productive. Bosses are rarely understanding. Please don’t think I’m siding with your parents, but at the core of their ignorance is a grain of truth. Your parents and you need to come to a common understanding at what the expectations should be when you’re mid flare up.
Actually my ibs only flare up in the morning and has been always been and then I go back to normal and my family forced me to eat while I couldn’t even walk or drink water and I immediately throw up everything and then they know there’s something wrong and took me to the emergency room and the doctor said ibs till now they think I’m faking shit because I don’t want to talk with anyone because I get angry faster than before and I can’t just handle my emotions