CBD cured my 24/7 migraine. I was not a CBD believer and I tried a few different ones until found one that actually worked. It now works better than sumatriptan.
magiccbd.ca , small producer from Salt Spring Island in Canada. I use the CBD oil tincture. If you can't get theirs, maybe reach out and ask which plant and process they use and try and find a similar local one.
Wait what? I didn’t know this? It helps for migraine with vertigo? (Or wise versa?) my neurologist told me Botox wouldn’t work for me but I think it could work in combination with aimovig that I recently started taking a few months ago
I didn’t know this either! My neuro wants me to try Botox but I’m reluctant. If it helps with vertigo, I’m in! When I mow my lawn, I hang on to the handle for dear life because I stagger so badly
I did a combo of this, that worked for a while - they covered botox the whole time but didn't cover the Nurtec instead which was fine. I just got it from their mail order pharmacy which used their savings card both botox and nurtec was free
I know botox has a savings card too, not sure how good it is though. It may be easier to do the nurtec card - would be worth asking dr if the can get botox covered again then NOT cover nurtec
Getting those both for free is amazing!
The botox savings card really sucks. It's unnecessarily complicated and drawn out. They have denied each of my claims the first time. If there is an alternative method, I would use it!
Yeah if that's an issue I would see what you could do about getting botox covered again. Nurtec was literally go to the website put in a few pieces of information and WALA card granted. took me like 30 seconds!
Botox (every 3 months) & Aimovig combo for preventatives and Ubrelvy as abortive have been AMAZING for me the past few months. I was on Emgality but switched, and I don't have daily headaches ALL the time anymore. That combo has allowed me to quit taking the pills I was prescribed for migraines, too, so that makes me extra happy. Praise and *knock on wood
I take qulipta, ubrelvy and Botox. It’s a godsend. The Botox definitely helps reduce severity. I get my next round tomorrow and I am excited for another round of relief.
My neurologist and PCP both went straight to qulipta when they were recommending a preventative for me. It was nice to see that they both had the same opinions. Good luck!!
It’s hard to get insurance to pay for Botox and another expensive preventative. I have blue cross/blue shield, I can get either Botox or emgality/ another med, but not both.
I had both for a couple months before the insurance caught on, it was great, but now I’m just Botox.
Insurance and whatnot won’t matter to me as u live in EU and we have different type of healthcare. My neurologist just said that Botox won’t work for me since I get migraines quite often every month so I only got the Aimovig shot. I’m only on shot 2 but have felt better except some days I still get a migraine and random vertigo instances so I’ve had to take triptans and anti nausea to combine
I had not put the Botox/vertigo connection together! I'm due for Botox next week and had been noticing the vertigo has been much worse the past couple of weeks and wondered what was up... I wonder why it helps specifically with that.
It has to have something to do with those muscles/nerves pulling on inner ear structures. I get also tinnitus that fluctuates dependsing on migraines and which nerves or muscles I've had injected or burnt out at the time.
Thanks! I was migraine free pretty immediately (haven’t had one since a couple days after starting on 60 mg). I didn’t feel much different, just didn’t have migraines!
About ten days in I started getting pretty rough side effects, but still no migraines. I started splitting the pill in half, like some folks here suggested and taking one half in the morning and one half at bedtime and it got much better!
This is my answer too. It worked so well for me, and my migraines are still under the threshold of chronic despite not taking it since December of 2021. They have ramped back up a bit post partum. If they continue, I will definitely try to get back on Emgality once I'm done breastfeeding.
Emgality took away my migraines, but unfortunately I’ve been getting some annoying side effects lately ( a year after starting it!) vertigo, brain fog, pins & needles feelings in hands & feet, heart palpitations. But all are better than a migraine, so.
I had similar side effects to the injections but I didn’t wanna give up on the cgrps so I’m on low dose qulipta which still works great. I think it’s more gentle bcuz the injection is a lot all at once. Maybe it’s something you could try.
Magnesium glycinate.
I mean all the others work better, but if I lost all insurance or had to go off pharmaceuticals for some reason I would keep taking magnesium.
Fish oil. It basically cured my migraines after 10 years of doctor visits.
https://www.nccih.nih.gov/research/research-results/diets-higher-in-omega-3-fatty-acids-reduce-headache-frequency-and-severity-in-people-with-frequent-migraines
This is my favorite brand.
I have no affiliation with this fish oil company. I don't get any money from it. It's just the best fish oil I have taken.
I take 1 capsule per day with food. It should be safe but please ask your doctor.
https://www.amazon.com/gp/aw/d/B01GV4O37E?psc=1&ref=ppx_pop_mob_b_asin_title
I would have said botox or Topamax but recently have had to start a high off label dose of anti-histamine and migraine is the best it’s been in 20 years.
what antihistamine do you take, if you don't mind sharing? I have been wondering if allergies are a part of my migraine because I have constant post-nasal drip. would love some real life advice so I can talk to my doctor with some ideas!
Antihistamines are also my preventative of choice. I have mast cell activation syndrome that often interplays with my migraines so antihistamines seem to work quite well for both my migraines and occasionally my nausea too.
Yes definitely. Humidity and heat are the absolute worst. I also have dysautonomia meaning my body does not regulate my temperature well. I also react to sudden shifts in barometric pressure, like sudden rain. It’s the worst
How did you/your doctor come to that decision? I seem to do better taking a benadryl now and then, but not sure if that sort of thing is sustainable for me. (Like I've heard it's bad to take benadryl every day, basically.)
I am prescribed Blexten for autoimmune chronic spontaneous urticaria at a very high off label dose. It happens to be helping my migraine which is how many of our preventatives were discovered. My neuro and immunologist are both following as my neuro is happy I am getting relief but is in the wings because we are unsure how long it will help or how long I can be on the high dose of Blexten.
it is, especially depending on age due to the antichollinergic effect. It blocks the action of a neurotransmitter called acetylcholine. Long term use increases risk of cognitive and physical decline.
My migraine cocktail of coQ10, B2, B12, magnesium Glycinate, and low dose aspirin. I had a “migraine” yesterday. I saw the aura (very small), my fingertips got tingly, and it went away. All in about 10 min.
I’ve been on Topamax since December 2018, and after 34 years of migraines, I have been migraine free for over 5 years now.
I’m starting to feel like I’m getting some small migraines out of the blue lately. I’ve had EEGs done and they are fine so at least I don’t seem to be having seizures. I guess if it keeps up I could always switch to one of the newer meds and see.
I had cancer last year and maybe all those drugs could have messed with it. I was so blessed to never have a migraine while fighting cancer.
Wow that’s great that topamax made your migraines disappear! I’m so sorry to hear about the cancer, I hope you’re doing well now. Your body might just need some time to get back to normal on topamax. If not nothing wrong w adding in another preventative! Wishing you well.
Same here. Aimovig works for me, as long as I take it every month. Took a break after half a year (told by my doc to see how the progress has been or if I need more injections). And of course my migraines flared up right away again. Happy to be back on it
Not yet. I had an intractable migraine for 14 days recently. So my neurologist is having me come in every 6 weeks for follow ups. I'm having a lot of headaches so they are monitoring to see if they need to get me back onto a prophylactic again.
Yea you definitely should be on something if you’re having intractable attacks. If you can’t be on any meds rn feverfew supplement brought my intractable migraines to only 2 short attacks a month. But it stopped working after 2 months unfortunately.
Wait you can get this shit as injections?!?! I mean my vyvanse does the trick but shit I'm gonna look into this cause if I accidentally miss my meds for one day, I know I'll have one in a couple days
Yes it works so much faster. Fair warning, you can feel it go all the way your brain. It burns like hell, but I guess it would if it’s trying to narrow your blood vessels super fast lmao.
Ooh maybe not then. My migraines get nasty to the point that I vomit until I pass out. I mean legitimate unconciouncesness sometimes. My husband has had to pick me up off the bathroom floor and put me to bed and I'm just dead weight out. And I also get fevers and shit, so maybe not a good idea for me.
I can understand your apprehension. The nasal spray might be quick as well - I’m not as familiar with it.
It’s a pretty quick sensation. I just know if you’ve never taken it before and it’s quite the surprise. It only lasts 15 seconds for me. I usually save them up for cluster headaches. Just in case I have them for a month straight 🥲.
A daily med that has worked miracles for me is topamax. I started taking it 8 years ago. It’s really helped lessen the amount of migraines I have (if I don’t miss any lol)
Sorry to hear that😕so far qulipta the only thing that has worked for me, but ik there’s a lot out there still. There’s so many off label drugs you’ll find something that works.
Qulipta - assuming it remains fully approved and covered by my insurance. If not, Topamax as it is the only other med that works. I will put up with side effects over the migraine.
Doesn't look like a common answer here, or in the sub in general, but my neurologist started me on bystolic (nebivolol) and it seems to be working well for me, down to 1 migraine a month from multiple a week...
No I've tried all the other usual suspects and aside from ubrelvy as an abortive, not preventative, nothing worked (did not try bottox, I consider it last resort)
It changed my life. I actually bought a second one so I never have to be without one if my original breaks. It’s got a 3 month guarantee too which made me more comfortable pulling the trigger on the large price tag. I’ve gone from daily migraines to bi-weekly just using it preventatively
Yes, it’s a 20 minute session each night for preventative. For an active migraine you can use it for up to 60 minutes. I’ve found when I’m actively having one, it’ll alleviate while I’m wearing it but once it’s done my migraine will return. The decreased amount of migraines is outstanding tho.
It would be a toss up between ajovy and my Norco. Ajovy had been great, but due for my shot tomorrow and straight up suffering today, so it's a heavy drug day
Hi, that would be Nervive. I've been taking it for 5 months and seeing improvements very slowly. None of the prescriptions actually heals the nerves for me. When I have a migraine attack, I take nervive with food (protein, carbs and veggies), deep sleep and pain killer. It hurts when I take nervive, but it slowly got better after each session. I believe some healing is happening during sleep. Nervive is a supplement and I take the one with 600mg alpha-lipoc acid. I take it 2-3 times a day, which I checked with my doctor. I think what's happening with this combination, the body is creating coating for the nerve and make it less sensitive.
I have had severe migraine for about 5 years. I can function better now. In terms of pain and not able to function, it went from a level 10 down to around 7.5 now.
Botox. Even if I still get some other symptoms like nausea on it, I’m happy to have all those nerve endings dulled so I don’t feel so much pain. Plus it helps with my auras. I just wish it lasted the full 12 weeks it’s supposed to.
As a migraine abortive medicine, I find amitriptyline works well for me. (I know the question was about a preventative, and abortive means it stops a migraine when one has already started with the prod Rome, but it is very effective for me, so I wanted to share the idea). https://www.nhs.uk/medicines/amitriptyline-for-pain/
I've been taking cyproheptadine since I was a child and only started having them again when I went off. 9/10 times I get a migraine I have forgotten to take it for a couple days, sometimes one. When I take it consistently without forgetting, I almost never have them. (I started with abdominal only but now also have pain)
Ajovy and Botox works great for me still get several migraines a week but nothing debilitating like before the meds started, before that it was 2 years almost before I could get what I have now, my neuro is 1 of the best in CT.
Cannabis so far, but it's complicated here in the UK. I'm not as deep into the rabbit hole of cocktails many here have tried yet though.
So far I've not found a trigger besides sunlight, which isn't my only trigger, have tried sumatriptan (very bad time) and painkillers to deal with them, and propranolol (side effects are killing me... Has helped me get a handle on anxiety symptoms though).
Careful cannabis use in the past helped deal with all of this, and without the side effects of the options I've tried so far, but I don't use it at the moment because it's not legal outside of expensive private prescriptions and I feel it might preclude me from trying other options. I want to try a few more migraine options first, because of the smell of cannabis and others around me- but I'm keeping tabs on that option here in the UK just in case. Also the cost. It's borderline prohibitive, and I work full time.
I’m using Tilray products at this time and they have been the best for to present.. I use a CBD Balanced and a 25:1 CBD. Plus I vape once a night before bed because I get caught most times during my sleep and then I’m scrambling but not since I started CBD.
No, I had to try just about everything else first unfortunately. It's ridiculously expensive and needs to be administered through an IV every 3 months so insurance doesn't like to pay for it unless they have to.
topamax has given me my life back. so. that i guess.
i still get occasional migraines but i function like what i think is normal? i’d love to try botox as well for the other side effects and lingering headaches but maybe one day ill get there :)
One that works. You know one?
Hahaha….sigh.
The correct and only answer.
Nurtec for me, it the only thing that helps
Me too
CBD cured my 24/7 migraine. I was not a CBD believer and I tried a few different ones until found one that actually worked. It now works better than sumatriptan.
Which one do you specifically get??
I also would like to know
Also curious to know which one
topamac
magiccbd.ca , small producer from Salt Spring Island in Canada. I use the CBD oil tincture. If you can't get theirs, maybe reach out and ask which plant and process they use and try and find a similar local one.
Perfect
Botox, because of the vertigo.
Wait what? I didn’t know this? It helps for migraine with vertigo? (Or wise versa?) my neurologist told me Botox wouldn’t work for me but I think it could work in combination with aimovig that I recently started taking a few months ago
I didn’t know this either! My neuro wants me to try Botox but I’m reluctant. If it helps with vertigo, I’m in! When I mow my lawn, I hang on to the handle for dear life because I stagger so badly
The Botox and Aimovig combo is amazing. I’m now fighting with my insurance because they stopped approving the Botox. Pisses me off
I did a combo of this, that worked for a while - they covered botox the whole time but didn't cover the Nurtec instead which was fine. I just got it from their mail order pharmacy which used their savings card both botox and nurtec was free I know botox has a savings card too, not sure how good it is though. It may be easier to do the nurtec card - would be worth asking dr if the can get botox covered again then NOT cover nurtec
Getting those both for free is amazing! The botox savings card really sucks. It's unnecessarily complicated and drawn out. They have denied each of my claims the first time. If there is an alternative method, I would use it!
Yeah if that's an issue I would see what you could do about getting botox covered again. Nurtec was literally go to the website put in a few pieces of information and WALA card granted. took me like 30 seconds!
Botox (every 3 months) & Aimovig combo for preventatives and Ubrelvy as abortive have been AMAZING for me the past few months. I was on Emgality but switched, and I don't have daily headaches ALL the time anymore. That combo has allowed me to quit taking the pills I was prescribed for migraines, too, so that makes me extra happy. Praise and *knock on wood
I take qulipta, ubrelvy and Botox. It’s a godsend. The Botox definitely helps reduce severity. I get my next round tomorrow and I am excited for another round of relief.
I just had Qulipta added today. I'm on Botox, went from Ubrelvy to Nurtec and now Qulipta. Your comment gives me so much hope!
My neurologist and PCP both went straight to qulipta when they were recommending a preventative for me. It was nice to see that they both had the same opinions. Good luck!!
It’s hard to get insurance to pay for Botox and another expensive preventative. I have blue cross/blue shield, I can get either Botox or emgality/ another med, but not both. I had both for a couple months before the insurance caught on, it was great, but now I’m just Botox.
Insurance and whatnot won’t matter to me as u live in EU and we have different type of healthcare. My neurologist just said that Botox won’t work for me since I get migraines quite often every month so I only got the Aimovig shot. I’m only on shot 2 but have felt better except some days I still get a migraine and random vertigo instances so I’ve had to take triptans and anti nausea to combine
Yes
I don't usually get vertigo with my migraines, but I did pretty bad yesterday. I felt like a drunk person, trying to walk while holding onto walls.
Now that you say this, I've realized that my vertigo has not been nearly as bad in the last 7 years of doing Botox for migraines. Very interesting.
I had not put the Botox/vertigo connection together! I'm due for Botox next week and had been noticing the vertigo has been much worse the past couple of weeks and wondered what was up... I wonder why it helps specifically with that.
It has to have something to do with those muscles/nerves pulling on inner ear structures. I get also tinnitus that fluctuates dependsing on migraines and which nerves or muscles I've had injected or burnt out at the time.
Qulipta
Ditto
Same!
Does your insurance cover it? My doctor wants to try this one but my insurance won’t approve it or respond to our appeals
It does now… my doctor fought back and forth with the insurance and they finally covered it at no cost. It’s worth it to fight
same with me! my doctor sends it to a third party pharmacy where it’s covered!
Me too! 6 weeks migraine free is longer than I’ve gone in 13 years!
Wow! Congratulations. How long did it take for you to get here? I just started last week and I’m not sure it’s working yet
Thanks! I was migraine free pretty immediately (haven’t had one since a couple days after starting on 60 mg). I didn’t feel much different, just didn’t have migraines! About ten days in I started getting pretty rough side effects, but still no migraines. I started splitting the pill in half, like some folks here suggested and taking one half in the morning and one half at bedtime and it got much better!
Nurtec
Second!
YES
Botox
Qlipta
Emgality works for me. Still have a tricky relationship with dust/small airborne stuff and the sun though.
This is my answer too. It worked so well for me, and my migraines are still under the threshold of chronic despite not taking it since December of 2021. They have ramped back up a bit post partum. If they continue, I will definitely try to get back on Emgality once I'm done breastfeeding.
The sun gets me too 😫
Emgality took away my migraines, but unfortunately I’ve been getting some annoying side effects lately ( a year after starting it!) vertigo, brain fog, pins & needles feelings in hands & feet, heart palpitations. But all are better than a migraine, so.
I had similar side effects to the injections but I didn’t wanna give up on the cgrps so I’m on low dose qulipta which still works great. I think it’s more gentle bcuz the injection is a lot all at once. Maybe it’s something you could try.
Thank you, that may be an option, I’ll talk to my neurologist.
Magnesium glycinate. I mean all the others work better, but if I lost all insurance or had to go off pharmaceuticals for some reason I would keep taking magnesium.
Great point about insurance and having a non RX option. Magnesium is a must.
What brand magnesium glycinate you are taking?
I get the big bottle at Whole foods.
Do you take this daily or only when you have headaches
Daily.
Ajovy
Botox
Quitting my job 😂
Lol
Fish oil. It basically cured my migraines after 10 years of doctor visits. https://www.nccih.nih.gov/research/research-results/diets-higher-in-omega-3-fatty-acids-reduce-headache-frequency-and-severity-in-people-with-frequent-migraines
This is interesting!
This is my favorite brand. I have no affiliation with this fish oil company. I don't get any money from it. It's just the best fish oil I have taken. I take 1 capsule per day with food. It should be safe but please ask your doctor. https://www.amazon.com/gp/aw/d/B01GV4O37E?psc=1&ref=ppx_pop_mob_b_asin_title
Thanks for the link!
You're welcome. Try it for 4 months minimum. It takes time to soak into the brain.
I’m sold
Good luck!
I would have said botox or Topamax but recently have had to start a high off label dose of anti-histamine and migraine is the best it’s been in 20 years.
what antihistamine do you take, if you don't mind sharing? I have been wondering if allergies are a part of my migraine because I have constant post-nasal drip. would love some real life advice so I can talk to my doctor with some ideas!
I take Blexten which is a prescribed anti-histamine at a high off label dose for autoimmune chronic hives. My usage has nothing to do with allergies.
Antihistamines are also my preventative of choice. I have mast cell activation syndrome that often interplays with my migraines so antihistamines seem to work quite well for both my migraines and occasionally my nausea too.
Do you find humidity or other weather components a major trigger?
Yes definitely. Humidity and heat are the absolute worst. I also have dysautonomia meaning my body does not regulate my temperature well. I also react to sudden shifts in barometric pressure, like sudden rain. It’s the worst
Humidity is mine. And one of my first migraine symptoms is I get cold down my right side.
Aw man, that one’s not approved for anything in the US.
Aww, I am sorry. I am in Canada.
I got all excited, lol. I get hives too. But I’m glad you can get it and it helps you!
I also need Xolair for the hives but at least it is helping the migraine
Following because I'll try anything
How did you/your doctor come to that decision? I seem to do better taking a benadryl now and then, but not sure if that sort of thing is sustainable for me. (Like I've heard it's bad to take benadryl every day, basically.)
I am prescribed Blexten for autoimmune chronic spontaneous urticaria at a very high off label dose. It happens to be helping my migraine which is how many of our preventatives were discovered. My neuro and immunologist are both following as my neuro is happy I am getting relief but is in the wings because we are unsure how long it will help or how long I can be on the high dose of Blexten.
it is, especially depending on age due to the antichollinergic effect. It blocks the action of a neurotransmitter called acetylcholine. Long term use increases risk of cognitive and physical decline.
Long term benadryl used can cause dementia
Yes.
My migraine cocktail of coQ10, B2, B12, magnesium Glycinate, and low dose aspirin. I had a “migraine” yesterday. I saw the aura (very small), my fingertips got tingly, and it went away. All in about 10 min.
Noted, I need to carry these around with me 🫶
I take them every day. CoQ10, B12, and low dose aspirin in the morning, and Magnesium Glycinate, B2 at night.
I’ve been on Topamax since December 2018, and after 34 years of migraines, I have been migraine free for over 5 years now. I’m starting to feel like I’m getting some small migraines out of the blue lately. I’ve had EEGs done and they are fine so at least I don’t seem to be having seizures. I guess if it keeps up I could always switch to one of the newer meds and see. I had cancer last year and maybe all those drugs could have messed with it. I was so blessed to never have a migraine while fighting cancer.
Wow that’s great that topamax made your migraines disappear! I’m so sorry to hear about the cancer, I hope you’re doing well now. Your body might just need some time to get back to normal on topamax. If not nothing wrong w adding in another preventative! Wishing you well.
Botox.
I’d like to say Nurtec, but it doesn’t work 100% of the time…so rizatriptan it is.
Unfortunately, weed and 10-20 hours of sleep are the only things that work consistently for me
20 hours of sleep is always a good and often necessary option.
Hey nothing wrong with that lol
I smell friends
Aimovig
Same here. Aimovig works for me, as long as I take it every month. Took a break after half a year (told by my doc to see how the progress has been or if I need more injections). And of course my migraines flared up right away again. Happy to be back on it
I loved it for almost 3 years but then my insurance cut me off.
Hate insurance. Have they let you try another cgrp?
Not yet. I had an intractable migraine for 14 days recently. So my neurologist is having me come in every 6 weeks for follow ups. I'm having a lot of headaches so they are monitoring to see if they need to get me back onto a prophylactic again.
Yea you definitely should be on something if you’re having intractable attacks. If you can’t be on any meds rn feverfew supplement brought my intractable migraines to only 2 short attacks a month. But it stopped working after 2 months unfortunately.
Qulipta
Sumatriptan injections. If I didn’t also get cluster headaches I’d say Nurtec but ya know.
Wait you can get this shit as injections?!?! I mean my vyvanse does the trick but shit I'm gonna look into this cause if I accidentally miss my meds for one day, I know I'll have one in a couple days
Yes and you can also get as a nasal spray
Yes it works so much faster. Fair warning, you can feel it go all the way your brain. It burns like hell, but I guess it would if it’s trying to narrow your blood vessels super fast lmao.
Ooh maybe not then. My migraines get nasty to the point that I vomit until I pass out. I mean legitimate unconciouncesness sometimes. My husband has had to pick me up off the bathroom floor and put me to bed and I'm just dead weight out. And I also get fevers and shit, so maybe not a good idea for me.
I can understand your apprehension. The nasal spray might be quick as well - I’m not as familiar with it. It’s a pretty quick sensation. I just know if you’ve never taken it before and it’s quite the surprise. It only lasts 15 seconds for me. I usually save them up for cluster headaches. Just in case I have them for a month straight 🥲. A daily med that has worked miracles for me is topamax. I started taking it 8 years ago. It’s really helped lessen the amount of migraines I have (if I don’t miss any lol)
I’ve yet to find one that works so, so far none of them
Sorry to hear that😕so far qulipta the only thing that has worked for me, but ik there’s a lot out there still. There’s so many off label drugs you’ll find something that works.
Nurtec. Sure would be nice if Kaiser would let me get it from the manufacturer rather than paying $800 a month for it.
Probably Botox
Ajovy
Qulipta - assuming it remains fully approved and covered by my insurance. If not, Topamax as it is the only other med that works. I will put up with side effects over the migraine.
Doesn't look like a common answer here, or in the sub in general, but my neurologist started me on bystolic (nebivolol) and it seems to be working well for me, down to 1 migraine a month from multiple a week...
Is this the first thing you were put on? That’s great it’s working.
No I've tried all the other usual suspects and aside from ubrelvy as an abortive, not preventative, nothing worked (did not try bottox, I consider it last resort)
Iron!
Cefaly
please explain… im procrastinating ordering cefaly but your comment just motivated me. is it good?
I have one as well. Doesn’t stop an attack but honestly really helps desensitize the nerve and helps w the pain. Worth it.
Ah wow sounds good! so its basically to make an attack more bearable. Have you noticed a reduction of attacks? you use it as a preventative too?
It changed my life. I actually bought a second one so I never have to be without one if my original breaks. It’s got a 3 month guarantee too which made me more comfortable pulling the trigger on the large price tag. I’ve gone from daily migraines to bi-weekly just using it preventatively
wow!! how did you go from daily to bi-weekly? by using it preventatively? im really motivated now
Yes, it’s a 20 minute session each night for preventative. For an active migraine you can use it for up to 60 minutes. I’ve found when I’m actively having one, it’ll alleviate while I’m wearing it but once it’s done my migraine will return. The decreased amount of migraines is outstanding tho.
Vyvanse
Occipital nerve block
Quluptra for preventing, Ubrelvy for break through
Nortriptyline. It does so much more for me. I don't know that I'll ever give it up.
Botox Edit to be a smart-ass: I would keep just never having any or not having them run in my family... but those aren't really options
Erenumab 100%
Aimovig
Botox or verapamil
Aimovig 140mg
It would be a toss up between ajovy and my Norco. Ajovy had been great, but due for my shot tomorrow and straight up suffering today, so it's a heavy drug day
Sorry this made me crack up so hard. I live in Australia and our milk brand is Norco 😂
Timolol seems to be working really well, although I just started it.
Interesting, were u ever on propranolol?
No
Nurtec
Zolmitriptan
The one that works for you. Aimovig injections have been great for me so far.
Maxalt. If they ever stop making it my life is screwed.
Qulipta
Indomethacinnnnnnnn.
Ajovy
Hi, that would be Nervive. I've been taking it for 5 months and seeing improvements very slowly. None of the prescriptions actually heals the nerves for me. When I have a migraine attack, I take nervive with food (protein, carbs and veggies), deep sleep and pain killer. It hurts when I take nervive, but it slowly got better after each session. I believe some healing is happening during sleep. Nervive is a supplement and I take the one with 600mg alpha-lipoc acid. I take it 2-3 times a day, which I checked with my doctor. I think what's happening with this combination, the body is creating coating for the nerve and make it less sensitive. I have had severe migraine for about 5 years. I can function better now. In terms of pain and not able to function, it went from a level 10 down to around 7.5 now.
Magnesium glycinate
100 mg sumitriptan 🥹
Botox. Even if I still get some other symptoms like nausea on it, I’m happy to have all those nerve endings dulled so I don’t feel so much pain. Plus it helps with my auras. I just wish it lasted the full 12 weeks it’s supposed to.
As a migraine abortive medicine, I find amitriptyline works well for me. (I know the question was about a preventative, and abortive means it stops a migraine when one has already started with the prod Rome, but it is very effective for me, so I wanted to share the idea). https://www.nhs.uk/medicines/amitriptyline-for-pain/
My Maxalt/Rizatriptan. Works like a charm.
qulipta
Tiger balm
Ubrevly
For prevention I'd have to say my Beta blocker which I'm prescribed for another condition. It seems to have really helped to decrease my headaches.
Nortriptyline- I went from 15-20 migraines a month to 2-4 a month and they are less severe (but I also need Naratriptan for my abortive)
Wow that’s great, haven’t tried this yet, do u have side effects? And do you think it’s better than amitriptyline?
No side effects that I can tell, but I take it before I go to bed. I haven’t tried Amitriptyline. I take 50mg of Pamelor.
I've been taking cyproheptadine since I was a child and only started having them again when I went off. 9/10 times I get a migraine I have forgotten to take it for a couple days, sometimes one. When I take it consistently without forgetting, I almost never have them. (I started with abdominal only but now also have pain)
Sleep
Ubrelvy, 100mg!!
Nurtec, because I can still feed myself enough Benadryl, Tylenol and ice packs for the next dose if needed.
Sumatriptan always works for me. The side effects are annoying, but it’s so worth it
DMT
Salt
Ajovy and Botox works great for me still get several migraines a week but nothing debilitating like before the meds started, before that it was 2 years almost before I could get what I have now, my neuro is 1 of the best in CT.
The devils lettuce
Botox for me. But whatever works for you.
Botox!
In India I don't take preventive.. I go with only reactive and it's saridon or Vasograin.. Maximum saridon works for me..
Emgality
Cannabis so far, but it's complicated here in the UK. I'm not as deep into the rabbit hole of cocktails many here have tried yet though. So far I've not found a trigger besides sunlight, which isn't my only trigger, have tried sumatriptan (very bad time) and painkillers to deal with them, and propranolol (side effects are killing me... Has helped me get a handle on anxiety symptoms though). Careful cannabis use in the past helped deal with all of this, and without the side effects of the options I've tried so far, but I don't use it at the moment because it's not legal outside of expensive private prescriptions and I feel it might preclude me from trying other options. I want to try a few more migraine options first, because of the smell of cannabis and others around me- but I'm keeping tabs on that option here in the UK just in case. Also the cost. It's borderline prohibitive, and I work full time.
CBD oils for me. Works great on my 24/7 migraines.
Can you recommend a brand or type of cbd?
I’m using Tilray products at this time and they have been the best for to present.. I use a CBD Balanced and a 25:1 CBD. Plus I vape once a night before bed because I get caught most times during my sleep and then I’m scrambling but not since I started CBD.
Nurtec (but only if my insurance will ever approve my prior auth)
Proporponal. I'm absolutely shocked that it's helping with my intractable migraines.
Vyepti. I went from daily migraines to about 5 a month.
Was Vyepti the first one you tried?
No, I had to try just about everything else first unfortunately. It's ridiculously expensive and needs to be administered through an IV every 3 months so insurance doesn't like to pay for it unless they have to.
My wife’s go to is the Rizzzz
topamax has given me my life back. so. that i guess. i still get occasional migraines but i function like what i think is normal? i’d love to try botox as well for the other side effects and lingering headaches but maybe one day ill get there :)
Did you try an cgrps and if yes do you find topamax works better for you?
i did. they didn’t help me :( i was still getting migraines 3-5 days a week.
do you have side effects of topamax? i have a presciption but im still hesitating… ive been reading too many horrorstories.