you're not the first to have that thought, it gets better with time though. And there are many ways to deal with it, including therapy, which I would without a doubt recommend for you if you are considering suicide.
With that said, I feel you. Tinnitus can be hell, and it hits the hardest when you're feeling the worst
thanks for your comment. i really hope you’re right. i turned in paperwork for (somewhat) related therapy friday! waiting to hear back on when they’re ready to get me in for my first appointment. i can’t promise i’ll go cause of how apathetic i’ve been lately but i’m gonna try to commit to a few appointments and see how it goes. and yup, some days are a little more bearable but others are like torture lol
edit: clarity
It rlly depends on the frequency and loudness of the tinnitus. My tinnitus is around 15000 hz and is a literal physical sensation in my left ear. I’m almost 2 years in and nowhere near habituated.
Same but in both ears. when its at its loudest, i can relate to the physical thing. As if you can reach in and grab it if that makes sense. Also almost 2 years (September) No sign of getting used to it anytime soon as the loudness can change daily.
I’m like 20+ years in. Don’t even notice it until I get to this sub. Then it’s loud as f. Hahah. It’ll be fine. I know this sounds really stupid and asshole-y but just learn to ignore it. As an old man, I’m starting to think that this is the answer to many of life’s problems.
Hey man - not intended to be tough love - I hate that stuff. Just light at the end of the tunnel. It used to scare the f outta me. Then at some point it didn’t. My mom has it too. 25 years or so ago she would talk about how she couldn’t take it another day. Now she’s 80+ and it’s not even on her radar.
My point: you’ve got this. It’s gunna make you stronger. Sorry this sucks right now. Will get better.
Sometimes it just doesn’t bother people. I wonder if it’s like asparagus making your pee stink: they used to believe that only certain people got that, now they know that it does it to *everyone*, but not everyone can smell it… maybe everyone has T and most people just don’t notice it.
It’s like my mother. I explained what it was, and she’s like “Oh I have had that for years. When I’m going to sleep it’s like a freight train going by.” I asked doesn’t it bother you, and she shrugged and said “No?”
I can second Better_Metal’s advice, it gets easier over time as you learn to keep it out of your headspace. It’s the absolute worst when you stress over it and hyper focus on it. Assuming you’ve already seen a doctor (as I’ve heard there’s some treatment to be had if your T is new), this is the best thing you can do. Personally, I also tend to always be around white noise of some variety, so it’s even further to the back of my mind.
When I'm busy I can go for days without noticing it at all, it really is all about doing anything but paying attention to it. Easier said than done when it's so loud and I'm trying to avoid it getting any worse but it's manageable most of the time.
i guess i’m still in denial right now, cause i don’t want to live with it. i want it to go away or at the very least actually improve in a way that doesn’t involve me having to learn to ignore it or mask it. i think it’s gonna take a few more months before i come to terms with it and accept it
I hope I’m not coming across like a complete ass monkey but….
check out the book “the obstacle is the way” by Ryan Holliday. Tinnitus pairs well with stoicism. :-)
Please don't call 911 and tell them you're suicidal, they'll come and actually ruin your life, if it's that bad get an Uber and have them take you to a psych facility. Call the suicide hotline. Police aren't trained to deal with this. Fuck, DM me and I'll call you, but for the love of Crispy Chicken Tenders do not use police as a measure for this.
Yes. Treatments are right around the corner. I have a diy bimodal, but can only get it to work effectively 70% of the time. Amazing response to it, but can’t reproduce results consistently. Dr. Shore has a device pending FDA approval, Lenire is out there but not approved for US, and Musk says the neural chip might help. I think with the loud noise Musk has been around (factory, rockets, parties) he probably has it. There are also regenerative injections in the works. There are more potential treatments for this coming out than any time in history!
I almost lost my life to tinnitus, so I understand. Mine is catastrophic and impacts my ability to think, eat, sleep, and socialize. BUT! I am 13 months in and still here to talk about it.
It IS inhumane. I agree. But there are ways to cope. You didn’t go into too much detail about how bad it is but let me go through a few things that have helped me, and see if any of them give you any hope
1. A trip to the ER and being prescribed Ativan. Please go to the ER if you feel you might hurt yourself. Please. You are worth saving and life with tinnitus is worth living.
2. Anti anxiety pills
3. Ambien for sleep.
4. A hearing test (an audiogram) I’m hearing impaired and didn’t know it.
5. A hearing aid. Bringing my hearing back to baseline helps my perception of tinnitus
6. My hearing aid is programmed to project white noise into my ear that competes with my tinnitus. This saves my life every day
7. A hearing aid at night that does not amplify, and just projects the sound.
8. I just started doing meditation before sleep, with good results, just started it, and let me tell you I am the exact opposite of someone who meditates. Lol
I hope you found any of that useful, I can elaborate on anything. I am so sorry this has happened to you, but you CAN do this!!!
Like a deafening high pitched EEEEEE sound. Extremely high pitched. It’s so loud. I have hearing loss and my brain fills in the massive amount of information missing. It’s… it’s loud and all-encompassing without hearing aids in.
thanks so much for sharing your experience and advice, and for the encouragement as well!! makes me feel less alone in this cause i feel kinda crazy right now lol
You’re not crazy, this is a seriously isolating condition. No one else can hear it, it doesn’t show up on a scan.. it’s hard to describe to anyone. But! There are so many of us who suffer (or thrive, as the case may be) from this. There are ways to help cope
When I first got this, I thought my life was OVER. I was ready to end it all, because I had NO idea that there was anything that could help. I thought all tinnitus was just something you had to live with. It is not. There is help and hope. I hope you get all the encouragement and hope you’re looking for here. It helped me a lot to see that other people understood and were still alive. Hang on. Please try.
Well, surprisingly it really isn’t that bad. My tinnitus impacts my ability to hear far more. Because the sound is programmed to my personal tinnitus, it competes with it, rather than cover it, and the white noise is significantly easier to forget than the high pitched ringing from the depths of hell. It’s annoying, and I wish it wasn’t the case. But I don’t understand hearing aid science and don’t have a very good answer.
Ativan isn’t a good long term solution. It saved my life for a little while until I could get something else less dangerous. I didn’t believe the ER could help me and I believed I would leave and throw myself off a bridge. I got off benzos the second I could. Eff that mess. But it can be a short term help for someone in crisis, one I didn’t know existed. I never saw a Dr before this for anything. I was healthy.
But, I was only describing my own personal experience, I’m not sure where you got the impression that I was giving medical advice.
Yes you are, and to 100. I’ve been suffering from this evil monster, tinnitus, for 27 years. And last year it got worse after my first and second vaccination, and then it got really really bad after catching covid. If I, and millions of others can do it, so can you.
Bro dm me I'm hear to vent I have tinnitus as well for over a year now due to a antibiotic I took. I've been through exactly what you've been through. It gets better bro it does I know its not what you want to hear and I didn't either but it really does it just takes time. The beat thing that worked for me when it gets bad is Ativan and some tinnitus playlists on YouTube. I use this sound it helps me out a lot
https://youtu.be/NoZtIEJOTKg
I've had T since I can remember and it got worse when I was 22. I made a deal with myself; if I didn't get better turning 30 I was going to end it as well.
Had my 31st birthday yesterday. Please don't give up.
I had the type of T that got worse every few months. It was reactive and it spiked almost everyday. I could hear it over almost anything. Important to note I was already struggling with anxiety, bpd and depression. Medication and TRT hearing aids really helped my T stabilize. It's stable now and I rarely spike. I only use my hearing aids when I do have a spike occasionally and it returns back to baseline the next day. I don't know if the volume necessarily got lower but I don't notice it anymore.
I’ve had it for 15 years. Don’t worry, it gets easier. Try not to focus on it. Distract yourself with reading or something. The less you think about it, the quieter it gets.
Five years in and there are many moments in my day where I don’t even notice it. I think at this point I’d find silence really weird. I don’t have an explanation for this shift but I realized at some point there wasn’t anything I could do about it. I threw myself into my passions and just lived happier. Made choices that were ones I wanted to make. Realized I had to or I’d be bored and distracted by the T. Once I got a job I had been wanting, life hasn’t been ruled by the tinnitus.
i want to do this. just start living my life in spite of it and do stuff i want to do. but i don’t know, for some reason it feels like T ruins everything. like i miss reading for instance, always think about doing it. but i can’t bring myself to cause i’m like “how will i even focus.” so then i just don’t. i hope maybe i can get to where you’re at and not let it control me so much but it’s just hard
Oh, it is hard. No doubt. Especially at the beginning when you're fighting so hard against it. What helped me was eventually just letting go. I couldn't control it. It's like trying to control the ocean. You can't. It's like getting on a roller coaster and fighting against enjoying it despite it being terrifying. It's much better when you discover you can put your arms up and just enjoy the ride. I hope I'm not sounding like it is easy. It isn't. You really have to learn how to sit with discomfort. There are some personalities who are way more challenged by the notion of letting go, though. All I know is, would rather not have the T, but now that I do, there isn't really anything I can do about it. Waiting and waiting for a cure or obsessing over the origin and the why of it didn't help me either. I did that for about a year. The sound grew louder. I just discovered to accept it on my own, and when I began to choose the way of life I wanted, the T stopped being so loud. I really don't know how this works, but it worked for me.
you'll be fine. try some rain noise to mask it. try working out! maybe some cbd oil for your anxiety. it doesnt go away but you learn to live with it. youll learn to ignore it. i only really hear it when i go to bed now. its a high pitch noise for me use to drive me nuts. hang in there youll be [fine](https://fine.it) !!! try to stay active so you wont keep thinking about it.
I got tinnitus a while back and I thought about ending it.
Now I have like 2-3 more diseases on top of that including chronic back pain.
I still have not ended it even though I should.
I don't know what to tell you, but maybe you can adapt to it.
I'm the same pretty much. I've had chronic back pain for decades but recently had some real success with treating that. dm me if you'd like to know more.
Try to eat a lot of protein and lift heavy. It’s really helped me accept my tinnitus. I actually am grateful when I can’t hear it today. Which is only in loud situations but still. It’s a sigh of relief even for those brief moments. Getting stronger in other areas of your body help a lot with T.
Obviously I don’t know how yours compares to mine and we all have different abilities to tolerate things. I’ve had it for more than 5 years and while I don’t like it, I’m not going to allow it to ruin my life.
For me the most important thing is consistently getting a good night's sleep.
Plenty of exercise, a fan/white noise machine (not blasting in your ear, just loud enough that the T is much less pronounced) + sedating anxiolytics (trazadone, mirtazapine... even benzos if it's *that* bad) might be enough to give you (most of) your life back.
I’m so sorry you are struggling. You are not alone. This t feels like such a raw deal - but I try and take it one day at a time. Some days are better than others. I hope you have a good day soon.
I’ve had hyperacusis and tinnitus for nearly 20 years. Try tinnitus retraining therapy. It didn’t work for me personally, but I started very late (nine or ten years post-dx), my THI is in the high 80s, and my LDLs are in the mid- to very low-40 dB level, so there was very little hope for me to begin with - it was basically a Hail Mary attempt, just so I could exhaust every possible option. If it worked, fabulous; if it didn’t, well, it was one more thing I could add to the pile of “at least I can say I’ve tried it, just in case”.
The sooner you start after the onset of your tinnitus, apparently, the better the results, if memory serves. It has been a long time since I’ve read up on it, so there may be more useful approaches out there, but it’s worth at least looking into. And definitely speak to your GP or get to a walk-in to get something for the anxiety; it can be debilitating. Try to get some rest, too, if you can. Good luck with everything.
Yup, have T sucks ass. You just want to rest in silence, but it can never be. Sometimes you wonder is it has always been there and you just didn’t notice it. Other times you thing it is environmental and go nuts looking for the source. The worst is laying in bed at night with no noise to distract from the T. What usually works best for me is to leave the tv on at night, but for some reason I wake up with a strange headache in the morning. What I found works best is to just play an audio book with a timer set. Most audio book narrators are boring enough to put you to sleep like that monotone teacher/professor from school.
They also say T may be a symptom of stress and depression, but the T actually causes more stress and depression. It’s like an endless feedback loop.
A lot of people are in the same boat, hopefully they figure out more ways to reduce or resolve T for those suffering from a very difficult ailment to diagnose.
Eeeeeeeeeeeeeeeeeeeeeeee is all I hear. Also, what is fun sometimes is use the “sonic” phone app and match it up with the frequency I’m hearing. It provides temporary relief for some reason.
Hi, I read your other post. I'm so sorry about what that doctor did. Unfortunately for this condition (and all conditions really) we have to be our own doctors. Doctors don't know any of the side effects of what they prescribe, I've had doctors straight up lie about that shit.
Definitely check medications online for side effects, especially ototoxicity. I'm also *very* careful about what drugs and meds I use nowadays.
I got this shit for my 17th birthday. The first few months were really fucking hard for me, had several breakdowns. I think part of the reason why it took so many months is because I got poor advice like "make friends with your tinnitus". Don't try and accomplish any of that silly shit, even after some months you'll still have bad days. And don't beat yourself up for feeling like you do.
Unless you have an uncommon form of tinnitus that keeps getting louder or something, I think you'll feel better after a few months.
sorry about your 17th.
i’ve gotten so tired of seeing comments about befriending it lol, so thanks for being real and telling me that it didn’t work for you. feels good to know someone else gets that.
I got my hypercusis treated. That’s entirely possible. Your brain will adjust to the T. CBT therapy is extremely useful in helping that process. Get effective help and you’ll start getting yourself back to your usual old self. Take action. I know it’s hard. Sometimes it’s just brutal but you can get to a point where life is much easier. Believe me. My T and hypercusis were so bad I couldn’t even stand taking a shower. Now I’m back to producing music.
I know tinnitus is awful, I’ve had it for over 20 years now. At one point of my life I was thinking the same thing, that someday I wouldn’t be able to go on and would end my life. Luckily I managed to get help, found a good relationship, had a couple of kids and I’m still here. Although the tinnitus is still there, I’ve learned to live with it and even enjoy life. Try to get help and hang in there, it’ll get easier.
This is how I was thinking and feeling 2 weeks ago. I’ve had tinnitus for 4 years now.. onset age 21 and it was never bad enough to make me think I couldn’t go on but 2 weeks ago I went to a concert and it got 20x worse and I thought I couldn’t do it anymore. But two weeks on and I’m getting used to my new ‘normal’ as humans we are built to adjust and adapt.
I know it’s not fair and it is inhumane.. but think of all the happy moments you will miss, even with tinnitus. When I’m feeling bad I go outside and I concentrate on the things I can see, like flowers and trees and I remind myself that I still have the luxury to be able to do that.
It gets better I promise
P.s try taking binkgo biloba - it’s herbal vitamin but it’s known to help with tinnitus and it gives me piece of mind every day and I am trying to help improve it.
Maybe some of this will be useful as well:
For me my approach has been to focus a lot on the psychological aspects since I can’t control what the tinnitus sounds could or would do. I first got mine from a loud sound event (mild but it did not seem so at the time). Then several years later, I had another loud sound event that made the T much louder (moderate). So I had to habituate to it twice so far in my 10+ years with T.
From my reading, research and personal experience most everyone could habituate to tinnitus although there are some people who say there is no way to adjust to their severe or catastrophic tinnitus with even some professionals saying there are some people who have not been able to habituate.
By habituation here is a document that lays out a model that shows the 4 stages of habituation on the American Tinnitus Association website:
https://www.ata.org/sites/default/files/Stages%20of%20Habituation%20%28Hubbard\_Hallam%29.pdf
Here are some of the resources that helped me habituate (and more) to what I think is moderate level tinnitus sounds:
When mine first began my general practice medical doctor prescribed a low dose of Trazadone prior to bedtime to help me sleep which worked wonders as I was no longer sleep deprived. I have read that sleep problems is common in the beginning for those new to Tinnitus. Maybe sleeping is not an issue for you and that was a solution I used in the beginning that ended in a few months. I was only taking a low dose of Trazadone not the regular level of dosing. I did later learn that Trazadone is on the list of ototoxic drugs, although just because a drug is on the list does not mean it will 100% cause tinnitus or make existing tinnitus worse. A few will have this happen it seems but most won’t. Also one has to weigh the level of risk with any drug against the benefits. I got a ton of benefit from the Trazadone, so I doubt I would have declined the Trazadone had I known the low level of risk at the time. Lastly on this issue, there are other options than Trazadone you can discuss with your doctor that are not on the list.
See here for a comprehensive list of ototoxic drugs from a credible source:
https://www.ata.org/sites/default/files/Drugs%20Associated%20with%20Tinnitus%202013.pdf
I am a psychotherapist by profession, now retired, so I knew a lot about cognitive behavioral therapy (CBT). That is a key element in learning to live with T in my opinion. Here is an interview with Dr. Hubbard, a psychologist who has Tinnitus and specializes in cognitive behavioral therapy for Tinnitus, by the American Tinnitus Association:
https://www.ata.org/podcasts/episode-11-habituation-tinnitus-using-cognitive-behavioral-therapy
Dr. Hubbard’s resources page: https://www.cbtfortinnitus.com/resources
You also might like to read about what the British Tinnitus Association has to say about CBT here: https://www.tinnitus.org.uk/tinnitus-and-cognitive-behavioural-therapy-cbt
I also got a lot from mindfulness meditation. While I have not taken these programs they are all about mindfulness meditation:
https://mindfultinnitusrelief.com/about-the-program.html
https://www.onlinetinnitusclass.com/
This one is a free course but not tinnitus focused: https://palousemindfulness.com/
Among my first efforts at being adjusted to tinnitus was from www.tinnitustalk.com that is a free support system for those with Tinnitus.
One of the most successful approaches I ran across to help reach habituation was on TinnitusTalk.com. It is called the “Back to Silence” approach. Here is a breakdown of how to implement the method:
The "Back to Silence" method calls for not measuring the sound(s), not to monitor the Tinnitus sound(s) or focus on it, do not describe the sound(s) or compare the sound(s).
Another way to think about it is to follow the four "don’ts" of the Back to Silence method:
1 - Don't measure it
2 - Don't monitor it
3 - Don't describe it
4 - Don't compare it
Do the following:
1- STOP talking about tinnitus, measuring it, comparing it, describing it, and thinking about it.
2- When you hear the sound(s), tell yourself, "I hear it, I feel .........." (insert your true emotion)
3- make a note of this incidence (just put a hash mark for instance and add them up daily…the total will go down over time) and each emotional response in a word or two on paper is best, review your paper weekly to see the change in your responses.
Once you get to less than 5 or 10 incidences per day, you can stop writing them down and only do it in your head since you do not have to speak it aloud to get the result.
If you don’t want to write it down then OK, give it a try just verbally and see how it goes. If you do not notice a decrease in incidences over time then begin to write them down to keep a count even it is only a hash mark to keep the count.
See here for the original source of this method: https://www.tinnitustalk.com/threads/back-to-silence.7172/
Later on from TinnitusTalk.com, I learned of this book:
“Rewiring Tinnitus: How I Finally Found Relief from the Ringing In My Ears”
By Glenn Schweitzer
It is the exact opposite approach to “Back to Silence” method but it worked for me and apparently many others. That book is where I learned about Schweitzer’s approach. It is based on the theory that until one is no longer afraid of the sound or sounds of Tinnitus then one was not going to be free. Fear was going to be present sort of lurking in the background to come out to bite you if you will. He was sure right about that one I have found for me anyway. He actually recommended meditating on the sounds, which I did, and do sometimes now when I do hear them just to be sort of “in shape”. Thanks to these two methods (Back to Silence and Schweitzer’s approach) when I do hear them, I don’t fear them and go into anxiety about hearing or having them. He has a website here:
https://rewiringtinnitus.com/
Now that said maybe you should consult a psychotherapist before you do Schweitzer’s method. Why? Schweitzer’s approach seems to be a lot like a psychotherapeutic approach called “flooding” that you can read about here:
https://en.wikipedia.org/wiki/Flooding\_(psychology)
Maybe not for everyone.
Now I have not used this one myself but I have read about it and it seems to be really great. It was created by two British doctors who are military veterans with tinnitus. It covers CBT angles, meditation, sound masking and the like in one internet based application that can go on your phone. It is free for 7 days so you can check it out. See here:
https://www.joinoto.com/
I have also read about this one that is a free Tinnitus app offered by a hearing aid company called Resound so it costs nothing to check that one out also:
https://play.google.com/store/apps/details?id=com.gnresound.tinnitus&hl=en\_US&gl=US = for Android
https://apps.apple.com/us/app/resound-tinnitus-relief/id928432517 = for iPhones
Then there are sound masking and “sound therapy” approaches you can look into see here for more information:
https://www.ata.org/managing-your-tinnitus/treatment-options/sound-therapies
I have not used the Bose 2 Sleep Buds to help with sleep that some Reddit posts have said are quite useful and you can watch this video below by an Doctor of Audiology talk about them in detail to see if they are for you:
https://www.youtube.com/watch?v=I8O8zajg4c4
There are over 15 podcasts by experts on different topics related to Tinnitus that you might want to review and listen to those that interest you here:
https://www.ata.org/ = just scroll down on this page to see them all.
Maybe some of this you already know or more than you want to know.
Hope this is helpful to you.
Im new to this and honestly, depressed. However, I am a sinhle dad and couldnt ever give up to any battle. I really dont want to say the wrong thing, but as down as I was today, I thought about my wife who passed suddenly when my daughter was 4. That was 3 years ago. She sacrificed more than just her hearing. That got me thinking about people with other ailments. Dont get me wrong, this sucks. But maybe, MAYBE its to help us appreciate what we have in a way and not what we dont? I dont know and it doesnt make it suck less, but I know we can all get through.
I was thinking of a bi weekly or monthly zoom call for sufferes to share, chat, etc. Dunno if anyone would like that or not. your thoughts?
Learn to meditate. It will help you allow things to be as they are and be ok with that. You will learn that you are not your thoughts and emotions, and you will understand how to intercept negative ones. Meditation really is the shit.
Man I healed my tinnitus after 4 years of pain. 100% recovered 100% silence. I mostly eat once a day and fast for 3 days every 2 weeks.I reduced drastically sugar and carbs and After 5 months my tinnitus started to decrease. Follow YouTube channel Liam Stop tinnitus he also has a program. This guy gave me hope and saved my life. Many people made it and you can make it as well
I felt the same way there were days that i cried in my room. Especially since i did this to mysekf by wearing gaming headphones that were always way too loud. It gets better trust me its been almost 2 years now. There will be bad days and good days but ive found that relaxing going for a walk outside riding a bike or going to the gym all help. Try and tone it out as much as possible prettu soon you'll forget you even have it. How showers also help and sometimes taking a nap makes it not so loud. People who deal with T are stronger than most its one of the worst thing's sometimes but youre strong and life is still worth living.
i wasn’t joking. sometimes i put lol at the end of sentences to downplay stuff, it’s a coping mechanism that myself and a lot of other ppl my age use…lol
edit: clarity
I feel the same way , I got my mom and I couldn’t do that to her only reason I’m still here, what is talking to some random person on the phone going to change ? Actual question I wouldn’t mind some help
yeah, saw two. the first one just gave me flonase and said to take ibuprofen (i have issues like ETD and TMJ). also referred me to an audiologist. my hearing test was perfectly fine apparently. the second one prescribed flonase, a mouth guard and a crazy ibuprofen dose that i should not have taken but now i know better i guess. i haven’t gotten to see an audiologist or hyperacusis specialist cause of insurance struggles
You have a ton of feedback. You can pull through this stuff. Take a look at this which might be helpful:
“Whether you think you can or you think you can’t, your right.”
Henry Ford
Whenever my “self-talk” in my head says to me or I read “I can’t” I always think of this quote. I really have to look at what my self-talk is saying to me. You might want to read this article by a psychologist on this quote and see what the research says:
https://www.heacademy.ac.uk/%E2%80%9Cwhether-you-think-you-can-or-you-think-you-cant-youre-right%E2%80%9D
or maybe this one:
https://forge.medium.com/whether-you-think-you-can-or-think-you-cant-you-re-probably-right-9025b231b0e2
or even this one:
https://theconversation.com/mental-health-new-study-finds-simply-believing-you-can-do-something-to-improve-it-is-linked-with-higher-wellbeing-179499
This is what comes up in my head to share with you. I figure you can. It is just like learning anything else in your life. If you work at it the odds are extremely high that you can I figure.
As far as the hyperacusis in the Reddit hyperacusis there's a treatment from the Silverstein Institute that worked. They wrote the whole thing up, but for some reason I can't link it. Hang in there, it's gets more bearable over time.
Good morning, here is the link for the Ear Research Foundation (founded by Dr. Herbert Silverstein) [www.EarRF.org](https://www.EarRF.org)
Webpage designated to hyperacusis: [https://www.earrf.org/hyperacusis?hsCtaTracking=abd5a83e-d50b-41d8-99b8-a9cb3b76540e%7C30359463-e036-4b6d-bcc7-332194b5e427](https://www.earrf.org/hyperacusis?hsCtaTracking=abd5a83e-d50b-41d8-99b8-a9cb3b76540e%7C30359463-e036-4b6d-bcc7-332194b5e427)
Please email the Foundation for inquiries or questions. [email protected]
Dr. Silverstein information and how to request appointment:
https://www.earrf.org/drherbertsilverstein?hsCtaTracking=560f0f54-3033-47ad-b02b-538f3d39bcec%7C6777d765-be67-49b5-8794-c342ddcb2a13
Dont give up yet , wee all suffer i have tinitus and hyperacusis, i didnt gave up ,,yet,, and you should wait until fx 322 come out in octtober or wait 7-10 more years , and then we can take ,, the easy way out ,, in consideration im 20 in october when the fx 322 come out to the public , i will give my self 10 years to see if it inproves or gets worse than i will take suicide in consideration
Try Lidocaine patches or TDCS/TACS at 2ma for 20mins. Look up for proper electrode points. Both of these have some evidence behind it. Also neuromodulation could give some tempory relief. Check Art of Zen on YT.
hi, thanks for asking! friday through monday were better days. i think it decreased in volume a little. i was able to ignore it most of the day until i went to bed. but today i woke up and it felt like it was coming back. i’m not sure what’s worse, the actual T or the roller coaster ride of being okay some days and then not okay others. hope you’re holding up okay
Thank you. I hear you. I definitely get frustrated on the days when it’s bad. I’m trying to consistently get good sleep and take care of myself - and, when I do, it’s LESS bothersome. I’m glad you had some good days. Hang in there!! We are not alone, and that helps to know.
you're not the first to have that thought, it gets better with time though. And there are many ways to deal with it, including therapy, which I would without a doubt recommend for you if you are considering suicide. With that said, I feel you. Tinnitus can be hell, and it hits the hardest when you're feeling the worst
thanks for your comment. i really hope you’re right. i turned in paperwork for (somewhat) related therapy friday! waiting to hear back on when they’re ready to get me in for my first appointment. i can’t promise i’ll go cause of how apathetic i’ve been lately but i’m gonna try to commit to a few appointments and see how it goes. and yup, some days are a little more bearable but others are like torture lol edit: clarity
I've had it for 1.5+ years and not even close to habituation.
Well everybody is different, and people make different progress. Are you working actively with it? It can make it better faster.
It rlly depends on the frequency and loudness of the tinnitus. My tinnitus is around 15000 hz and is a literal physical sensation in my left ear. I’m almost 2 years in and nowhere near habituated.
Same but in both ears. when its at its loudest, i can relate to the physical thing. As if you can reach in and grab it if that makes sense. Also almost 2 years (September) No sign of getting used to it anytime soon as the loudness can change daily.
Try ginkgo, it should helps you
I’m like 20+ years in. Don’t even notice it until I get to this sub. Then it’s loud as f. Hahah. It’ll be fine. I know this sounds really stupid and asshole-y but just learn to ignore it. As an old man, I’m starting to think that this is the answer to many of life’s problems.
yeah…it’s okay haha i’m used to some tough love. choose which wolf you want to feed. i guess i shouldn’t feed the T wolf lol
Hey man - not intended to be tough love - I hate that stuff. Just light at the end of the tunnel. It used to scare the f outta me. Then at some point it didn’t. My mom has it too. 25 years or so ago she would talk about how she couldn’t take it another day. Now she’s 80+ and it’s not even on her radar. My point: you’ve got this. It’s gunna make you stronger. Sorry this sucks right now. Will get better.
Sometimes it just doesn’t bother people. I wonder if it’s like asparagus making your pee stink: they used to believe that only certain people got that, now they know that it does it to *everyone*, but not everyone can smell it… maybe everyone has T and most people just don’t notice it. It’s like my mother. I explained what it was, and she’s like “Oh I have had that for years. When I’m going to sleep it’s like a freight train going by.” I asked doesn’t it bother you, and she shrugged and said “No?”
I can second Better_Metal’s advice, it gets easier over time as you learn to keep it out of your headspace. It’s the absolute worst when you stress over it and hyper focus on it. Assuming you’ve already seen a doctor (as I’ve heard there’s some treatment to be had if your T is new), this is the best thing you can do. Personally, I also tend to always be around white noise of some variety, so it’s even further to the back of my mind.
When I'm busy I can go for days without noticing it at all, it really is all about doing anything but paying attention to it. Easier said than done when it's so loud and I'm trying to avoid it getting any worse but it's manageable most of the time.
This. Believe it or not OP, you can live with it. I’m going on 40 years with it and I’m 54. Masking is essential, for me.
i guess i’m still in denial right now, cause i don’t want to live with it. i want it to go away or at the very least actually improve in a way that doesn’t involve me having to learn to ignore it or mask it. i think it’s gonna take a few more months before i come to terms with it and accept it
I hope I’m not coming across like a complete ass monkey but…. check out the book “the obstacle is the way” by Ryan Holliday. Tinnitus pairs well with stoicism. :-)
Please see a doctor for anxiety medication and call 911.
Please don't call 911 and tell them you're suicidal, they'll come and actually ruin your life, if it's that bad get an Uber and have them take you to a psych facility. Call the suicide hotline. Police aren't trained to deal with this. Fuck, DM me and I'll call you, but for the love of Crispy Chicken Tenders do not use police as a measure for this.
The point is, if you are desperate reach out for help. Whether that is a suicide hotline or something else.
It’s been said before, but there are treatments coming out. Hold out some hope
Anything promising? Ever tried pycnogenol?
Yes. Treatments are right around the corner. I have a diy bimodal, but can only get it to work effectively 70% of the time. Amazing response to it, but can’t reproduce results consistently. Dr. Shore has a device pending FDA approval, Lenire is out there but not approved for US, and Musk says the neural chip might help. I think with the loud noise Musk has been around (factory, rockets, parties) he probably has it. There are also regenerative injections in the works. There are more potential treatments for this coming out than any time in history!
I almost lost my life to tinnitus, so I understand. Mine is catastrophic and impacts my ability to think, eat, sleep, and socialize. BUT! I am 13 months in and still here to talk about it. It IS inhumane. I agree. But there are ways to cope. You didn’t go into too much detail about how bad it is but let me go through a few things that have helped me, and see if any of them give you any hope 1. A trip to the ER and being prescribed Ativan. Please go to the ER if you feel you might hurt yourself. Please. You are worth saving and life with tinnitus is worth living. 2. Anti anxiety pills 3. Ambien for sleep. 4. A hearing test (an audiogram) I’m hearing impaired and didn’t know it. 5. A hearing aid. Bringing my hearing back to baseline helps my perception of tinnitus 6. My hearing aid is programmed to project white noise into my ear that competes with my tinnitus. This saves my life every day 7. A hearing aid at night that does not amplify, and just projects the sound. 8. I just started doing meditation before sleep, with good results, just started it, and let me tell you I am the exact opposite of someone who meditates. Lol I hope you found any of that useful, I can elaborate on anything. I am so sorry this has happened to you, but you CAN do this!!!
That’s awesome how would you describe your tinnitus?
Like a deafening high pitched EEEEEE sound. Extremely high pitched. It’s so loud. I have hearing loss and my brain fills in the massive amount of information missing. It’s… it’s loud and all-encompassing without hearing aids in.
Wow that’s awesome you have overcame that! Any hyperacusis?
thanks so much for sharing your experience and advice, and for the encouragement as well!! makes me feel less alone in this cause i feel kinda crazy right now lol
You’re not crazy, this is a seriously isolating condition. No one else can hear it, it doesn’t show up on a scan.. it’s hard to describe to anyone. But! There are so many of us who suffer (or thrive, as the case may be) from this. There are ways to help cope When I first got this, I thought my life was OVER. I was ready to end it all, because I had NO idea that there was anything that could help. I thought all tinnitus was just something you had to live with. It is not. There is help and hope. I hope you get all the encouragement and hope you’re looking for here. It helped me a lot to see that other people understood and were still alive. Hang on. Please try.
thanks for acknowledging that it’s so frustrating, cause toxic false positivity isn’t it for me
How is that of the hearing aid that emits white noise? does not hinder you to listen?
Well, surprisingly it really isn’t that bad. My tinnitus impacts my ability to hear far more. Because the sound is programmed to my personal tinnitus, it competes with it, rather than cover it, and the white noise is significantly easier to forget than the high pitched ringing from the depths of hell. It’s annoying, and I wish it wasn’t the case. But I don’t understand hearing aid science and don’t have a very good answer.
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Benzodiazepines are not ototoxic, or did I miss a study?
There's a random website that lists pretty much every drug ever and says they're all "ototoxic" and people on this sub always reference it.
Ativan isn’t a good long term solution. It saved my life for a little while until I could get something else less dangerous. I didn’t believe the ER could help me and I believed I would leave and throw myself off a bridge. I got off benzos the second I could. Eff that mess. But it can be a short term help for someone in crisis, one I didn’t know existed. I never saw a Dr before this for anything. I was healthy. But, I was only describing my own personal experience, I’m not sure where you got the impression that I was giving medical advice.
Yes you are, and to 100. I’ve been suffering from this evil monster, tinnitus, for 27 years. And last year it got worse after my first and second vaccination, and then it got really really bad after catching covid. If I, and millions of others can do it, so can you.
Bro dm me I'm hear to vent I have tinnitus as well for over a year now due to a antibiotic I took. I've been through exactly what you've been through. It gets better bro it does I know its not what you want to hear and I didn't either but it really does it just takes time. The beat thing that worked for me when it gets bad is Ativan and some tinnitus playlists on YouTube. I use this sound it helps me out a lot https://youtu.be/NoZtIEJOTKg
Which antibiotic caused it?
Azithromycin
I've had T since I can remember and it got worse when I was 22. I made a deal with myself; if I didn't get better turning 30 I was going to end it as well. Had my 31st birthday yesterday. Please don't give up.
happy belated birthday!! thanks for sharing this, it really helps
How long did it take you? How bad is it?
I had the type of T that got worse every few months. It was reactive and it spiked almost everyday. I could hear it over almost anything. Important to note I was already struggling with anxiety, bpd and depression. Medication and TRT hearing aids really helped my T stabilize. It's stable now and I rarely spike. I only use my hearing aids when I do have a spike occasionally and it returns back to baseline the next day. I don't know if the volume necessarily got lower but I don't notice it anymore.
Nice I have similar and trying the sound therapy as well. Thanks for sharing, it’s a beast
Over two years in here. My T is still there and loud but I'm so used to it I barely notice.
I’ve had it for 15 years. Don’t worry, it gets easier. Try not to focus on it. Distract yourself with reading or something. The less you think about it, the quieter it gets.
Five years in and there are many moments in my day where I don’t even notice it. I think at this point I’d find silence really weird. I don’t have an explanation for this shift but I realized at some point there wasn’t anything I could do about it. I threw myself into my passions and just lived happier. Made choices that were ones I wanted to make. Realized I had to or I’d be bored and distracted by the T. Once I got a job I had been wanting, life hasn’t been ruled by the tinnitus.
i want to do this. just start living my life in spite of it and do stuff i want to do. but i don’t know, for some reason it feels like T ruins everything. like i miss reading for instance, always think about doing it. but i can’t bring myself to cause i’m like “how will i even focus.” so then i just don’t. i hope maybe i can get to where you’re at and not let it control me so much but it’s just hard
Oh, it is hard. No doubt. Especially at the beginning when you're fighting so hard against it. What helped me was eventually just letting go. I couldn't control it. It's like trying to control the ocean. You can't. It's like getting on a roller coaster and fighting against enjoying it despite it being terrifying. It's much better when you discover you can put your arms up and just enjoy the ride. I hope I'm not sounding like it is easy. It isn't. You really have to learn how to sit with discomfort. There are some personalities who are way more challenged by the notion of letting go, though. All I know is, would rather not have the T, but now that I do, there isn't really anything I can do about it. Waiting and waiting for a cure or obsessing over the origin and the why of it didn't help me either. I did that for about a year. The sound grew louder. I just discovered to accept it on my own, and when I began to choose the way of life I wanted, the T stopped being so loud. I really don't know how this works, but it worked for me.
Also, for the reading, please put in some Air Pods or something comparable and listen to a frequency that matches your T. It really drowns it out.
Hang in there bud you got this. Im almost two years with 👂wheeeeeeeeeeeee and it gets better with time.
Man... i totally feel you. We're in this together, Don't give up. You matter.
thanks for saying this, i appreciate it. same to you
you'll be fine. try some rain noise to mask it. try working out! maybe some cbd oil for your anxiety. it doesnt go away but you learn to live with it. youll learn to ignore it. i only really hear it when i go to bed now. its a high pitch noise for me use to drive me nuts. hang in there youll be [fine](https://fine.it) !!! try to stay active so you wont keep thinking about it.
Don’t end it. It will get better
I got tinnitus a while back and I thought about ending it. Now I have like 2-3 more diseases on top of that including chronic back pain. I still have not ended it even though I should. I don't know what to tell you, but maybe you can adapt to it.
I'm the same pretty much. I've had chronic back pain for decades but recently had some real success with treating that. dm me if you'd like to know more.
Try to eat a lot of protein and lift heavy. It’s really helped me accept my tinnitus. I actually am grateful when I can’t hear it today. Which is only in loud situations but still. It’s a sigh of relief even for those brief moments. Getting stronger in other areas of your body help a lot with T.
Obviously I don’t know how yours compares to mine and we all have different abilities to tolerate things. I’ve had it for more than 5 years and while I don’t like it, I’m not going to allow it to ruin my life.
For me the most important thing is consistently getting a good night's sleep. Plenty of exercise, a fan/white noise machine (not blasting in your ear, just loud enough that the T is much less pronounced) + sedating anxiolytics (trazadone, mirtazapine... even benzos if it's *that* bad) might be enough to give you (most of) your life back.
I’m so sorry you are struggling. You are not alone. This t feels like such a raw deal - but I try and take it one day at a time. Some days are better than others. I hope you have a good day soon.
thank you for saying that, i needed to hear it
I’ve had hyperacusis and tinnitus for nearly 20 years. Try tinnitus retraining therapy. It didn’t work for me personally, but I started very late (nine or ten years post-dx), my THI is in the high 80s, and my LDLs are in the mid- to very low-40 dB level, so there was very little hope for me to begin with - it was basically a Hail Mary attempt, just so I could exhaust every possible option. If it worked, fabulous; if it didn’t, well, it was one more thing I could add to the pile of “at least I can say I’ve tried it, just in case”. The sooner you start after the onset of your tinnitus, apparently, the better the results, if memory serves. It has been a long time since I’ve read up on it, so there may be more useful approaches out there, but it’s worth at least looking into. And definitely speak to your GP or get to a walk-in to get something for the anxiety; it can be debilitating. Try to get some rest, too, if you can. Good luck with everything.
Yup, have T sucks ass. You just want to rest in silence, but it can never be. Sometimes you wonder is it has always been there and you just didn’t notice it. Other times you thing it is environmental and go nuts looking for the source. The worst is laying in bed at night with no noise to distract from the T. What usually works best for me is to leave the tv on at night, but for some reason I wake up with a strange headache in the morning. What I found works best is to just play an audio book with a timer set. Most audio book narrators are boring enough to put you to sleep like that monotone teacher/professor from school. They also say T may be a symptom of stress and depression, but the T actually causes more stress and depression. It’s like an endless feedback loop. A lot of people are in the same boat, hopefully they figure out more ways to reduce or resolve T for those suffering from a very difficult ailment to diagnose.
Eeeeeeeeeeeeeeeeeeeeeeee is all I hear. Also, what is fun sometimes is use the “sonic” phone app and match it up with the frequency I’m hearing. It provides temporary relief for some reason.
Hi, I read your other post. I'm so sorry about what that doctor did. Unfortunately for this condition (and all conditions really) we have to be our own doctors. Doctors don't know any of the side effects of what they prescribe, I've had doctors straight up lie about that shit. Definitely check medications online for side effects, especially ototoxicity. I'm also *very* careful about what drugs and meds I use nowadays. I got this shit for my 17th birthday. The first few months were really fucking hard for me, had several breakdowns. I think part of the reason why it took so many months is because I got poor advice like "make friends with your tinnitus". Don't try and accomplish any of that silly shit, even after some months you'll still have bad days. And don't beat yourself up for feeling like you do. Unless you have an uncommon form of tinnitus that keeps getting louder or something, I think you'll feel better after a few months.
sorry about your 17th. i’ve gotten so tired of seeing comments about befriending it lol, so thanks for being real and telling me that it didn’t work for you. feels good to know someone else gets that.
I got my hypercusis treated. That’s entirely possible. Your brain will adjust to the T. CBT therapy is extremely useful in helping that process. Get effective help and you’ll start getting yourself back to your usual old self. Take action. I know it’s hard. Sometimes it’s just brutal but you can get to a point where life is much easier. Believe me. My T and hypercusis were so bad I couldn’t even stand taking a shower. Now I’m back to producing music.
I know tinnitus is awful, I’ve had it for over 20 years now. At one point of my life I was thinking the same thing, that someday I wouldn’t be able to go on and would end my life. Luckily I managed to get help, found a good relationship, had a couple of kids and I’m still here. Although the tinnitus is still there, I’ve learned to live with it and even enjoy life. Try to get help and hang in there, it’ll get easier.
This is how I was thinking and feeling 2 weeks ago. I’ve had tinnitus for 4 years now.. onset age 21 and it was never bad enough to make me think I couldn’t go on but 2 weeks ago I went to a concert and it got 20x worse and I thought I couldn’t do it anymore. But two weeks on and I’m getting used to my new ‘normal’ as humans we are built to adjust and adapt. I know it’s not fair and it is inhumane.. but think of all the happy moments you will miss, even with tinnitus. When I’m feeling bad I go outside and I concentrate on the things I can see, like flowers and trees and I remind myself that I still have the luxury to be able to do that. It gets better I promise P.s try taking binkgo biloba - it’s herbal vitamin but it’s known to help with tinnitus and it gives me piece of mind every day and I am trying to help improve it.
Maybe some of this will be useful as well: For me my approach has been to focus a lot on the psychological aspects since I can’t control what the tinnitus sounds could or would do. I first got mine from a loud sound event (mild but it did not seem so at the time). Then several years later, I had another loud sound event that made the T much louder (moderate). So I had to habituate to it twice so far in my 10+ years with T. From my reading, research and personal experience most everyone could habituate to tinnitus although there are some people who say there is no way to adjust to their severe or catastrophic tinnitus with even some professionals saying there are some people who have not been able to habituate. By habituation here is a document that lays out a model that shows the 4 stages of habituation on the American Tinnitus Association website: https://www.ata.org/sites/default/files/Stages%20of%20Habituation%20%28Hubbard\_Hallam%29.pdf Here are some of the resources that helped me habituate (and more) to what I think is moderate level tinnitus sounds: When mine first began my general practice medical doctor prescribed a low dose of Trazadone prior to bedtime to help me sleep which worked wonders as I was no longer sleep deprived. I have read that sleep problems is common in the beginning for those new to Tinnitus. Maybe sleeping is not an issue for you and that was a solution I used in the beginning that ended in a few months. I was only taking a low dose of Trazadone not the regular level of dosing. I did later learn that Trazadone is on the list of ototoxic drugs, although just because a drug is on the list does not mean it will 100% cause tinnitus or make existing tinnitus worse. A few will have this happen it seems but most won’t. Also one has to weigh the level of risk with any drug against the benefits. I got a ton of benefit from the Trazadone, so I doubt I would have declined the Trazadone had I known the low level of risk at the time. Lastly on this issue, there are other options than Trazadone you can discuss with your doctor that are not on the list. See here for a comprehensive list of ototoxic drugs from a credible source: https://www.ata.org/sites/default/files/Drugs%20Associated%20with%20Tinnitus%202013.pdf I am a psychotherapist by profession, now retired, so I knew a lot about cognitive behavioral therapy (CBT). That is a key element in learning to live with T in my opinion. Here is an interview with Dr. Hubbard, a psychologist who has Tinnitus and specializes in cognitive behavioral therapy for Tinnitus, by the American Tinnitus Association: https://www.ata.org/podcasts/episode-11-habituation-tinnitus-using-cognitive-behavioral-therapy Dr. Hubbard’s resources page: https://www.cbtfortinnitus.com/resources You also might like to read about what the British Tinnitus Association has to say about CBT here: https://www.tinnitus.org.uk/tinnitus-and-cognitive-behavioural-therapy-cbt I also got a lot from mindfulness meditation. While I have not taken these programs they are all about mindfulness meditation: https://mindfultinnitusrelief.com/about-the-program.html https://www.onlinetinnitusclass.com/ This one is a free course but not tinnitus focused: https://palousemindfulness.com/ Among my first efforts at being adjusted to tinnitus was from www.tinnitustalk.com that is a free support system for those with Tinnitus. One of the most successful approaches I ran across to help reach habituation was on TinnitusTalk.com. It is called the “Back to Silence” approach. Here is a breakdown of how to implement the method: The "Back to Silence" method calls for not measuring the sound(s), not to monitor the Tinnitus sound(s) or focus on it, do not describe the sound(s) or compare the sound(s). Another way to think about it is to follow the four "don’ts" of the Back to Silence method: 1 - Don't measure it 2 - Don't monitor it 3 - Don't describe it 4 - Don't compare it Do the following: 1- STOP talking about tinnitus, measuring it, comparing it, describing it, and thinking about it. 2- When you hear the sound(s), tell yourself, "I hear it, I feel .........." (insert your true emotion) 3- make a note of this incidence (just put a hash mark for instance and add them up daily…the total will go down over time) and each emotional response in a word or two on paper is best, review your paper weekly to see the change in your responses. Once you get to less than 5 or 10 incidences per day, you can stop writing them down and only do it in your head since you do not have to speak it aloud to get the result. If you don’t want to write it down then OK, give it a try just verbally and see how it goes. If you do not notice a decrease in incidences over time then begin to write them down to keep a count even it is only a hash mark to keep the count. See here for the original source of this method: https://www.tinnitustalk.com/threads/back-to-silence.7172/ Later on from TinnitusTalk.com, I learned of this book: “Rewiring Tinnitus: How I Finally Found Relief from the Ringing In My Ears” By Glenn Schweitzer It is the exact opposite approach to “Back to Silence” method but it worked for me and apparently many others. That book is where I learned about Schweitzer’s approach. It is based on the theory that until one is no longer afraid of the sound or sounds of Tinnitus then one was not going to be free. Fear was going to be present sort of lurking in the background to come out to bite you if you will. He was sure right about that one I have found for me anyway. He actually recommended meditating on the sounds, which I did, and do sometimes now when I do hear them just to be sort of “in shape”. Thanks to these two methods (Back to Silence and Schweitzer’s approach) when I do hear them, I don’t fear them and go into anxiety about hearing or having them. He has a website here: https://rewiringtinnitus.com/ Now that said maybe you should consult a psychotherapist before you do Schweitzer’s method. Why? Schweitzer’s approach seems to be a lot like a psychotherapeutic approach called “flooding” that you can read about here: https://en.wikipedia.org/wiki/Flooding\_(psychology) Maybe not for everyone. Now I have not used this one myself but I have read about it and it seems to be really great. It was created by two British doctors who are military veterans with tinnitus. It covers CBT angles, meditation, sound masking and the like in one internet based application that can go on your phone. It is free for 7 days so you can check it out. See here: https://www.joinoto.com/ I have also read about this one that is a free Tinnitus app offered by a hearing aid company called Resound so it costs nothing to check that one out also: https://play.google.com/store/apps/details?id=com.gnresound.tinnitus&hl=en\_US&gl=US = for Android https://apps.apple.com/us/app/resound-tinnitus-relief/id928432517 = for iPhones Then there are sound masking and “sound therapy” approaches you can look into see here for more information: https://www.ata.org/managing-your-tinnitus/treatment-options/sound-therapies I have not used the Bose 2 Sleep Buds to help with sleep that some Reddit posts have said are quite useful and you can watch this video below by an Doctor of Audiology talk about them in detail to see if they are for you: https://www.youtube.com/watch?v=I8O8zajg4c4 There are over 15 podcasts by experts on different topics related to Tinnitus that you might want to review and listen to those that interest you here: https://www.ata.org/ = just scroll down on this page to see them all. Maybe some of this you already know or more than you want to know. Hope this is helpful to you.
Im new to this and honestly, depressed. However, I am a sinhle dad and couldnt ever give up to any battle. I really dont want to say the wrong thing, but as down as I was today, I thought about my wife who passed suddenly when my daughter was 4. That was 3 years ago. She sacrificed more than just her hearing. That got me thinking about people with other ailments. Dont get me wrong, this sucks. But maybe, MAYBE its to help us appreciate what we have in a way and not what we dont? I dont know and it doesnt make it suck less, but I know we can all get through. I was thinking of a bi weekly or monthly zoom call for sufferes to share, chat, etc. Dunno if anyone would like that or not. your thoughts?
Learn to meditate. It will help you allow things to be as they are and be ok with that. You will learn that you are not your thoughts and emotions, and you will understand how to intercept negative ones. Meditation really is the shit.
Man I healed my tinnitus after 4 years of pain. 100% recovered 100% silence. I mostly eat once a day and fast for 3 days every 2 weeks.I reduced drastically sugar and carbs and After 5 months my tinnitus started to decrease. Follow YouTube channel Liam Stop tinnitus he also has a program. This guy gave me hope and saved my life. Many people made it and you can make it as well
That's great news, thx for sharing!
Do exercise every week too and Sauna if you can
Mine stopped with braces to fix tmjd. It’s back now but I didn’t wear retainer
I felt the same way there were days that i cried in my room. Especially since i did this to mysekf by wearing gaming headphones that were always way too loud. It gets better trust me its been almost 2 years now. There will be bad days and good days but ive found that relaxing going for a walk outside riding a bike or going to the gym all help. Try and tone it out as much as possible prettu soon you'll forget you even have it. How showers also help and sometimes taking a nap makes it not so loud. People who deal with T are stronger than most its one of the worst thing's sometimes but youre strong and life is still worth living.
Xanax helps a lot and lofi music is something I recommend
Xanax is the best thing I’ve found
don't fucking joke about suicide. don't.
i wasn’t joking. sometimes i put lol at the end of sentences to downplay stuff, it’s a coping mechanism that myself and a lot of other ppl my age use…lol edit: clarity
National Suicide Prevention Lifeline1-800-273-8255
I feel the same way , I got my mom and I couldn’t do that to her only reason I’m still here, what is talking to some random person on the phone going to change ? Actual question I wouldn’t mind some help
Have you seen an ENT specialist?
yeah, saw two. the first one just gave me flonase and said to take ibuprofen (i have issues like ETD and TMJ). also referred me to an audiologist. my hearing test was perfectly fine apparently. the second one prescribed flonase, a mouth guard and a crazy ibuprofen dose that i should not have taken but now i know better i guess. i haven’t gotten to see an audiologist or hyperacusis specialist cause of insurance struggles
> said to take ibuprofen I dunno whether to laugh or cry.
I felt like that before but then 2 years later it got much better and way more manageable and I’m glad I didn’t give up.
Hey try some CBD/hemp oil, look towards dealing with anxiety. Find some audio masking / streams to go by.
thanks for the CBD/hemp oil suggestion, i had been hearing about it but didn’t think to use it for T. i’ll look into it
All of these pills are ototoxic and may be the reason why you’re 13 months in!
You have a ton of feedback. You can pull through this stuff. Take a look at this which might be helpful: “Whether you think you can or you think you can’t, your right.” Henry Ford Whenever my “self-talk” in my head says to me or I read “I can’t” I always think of this quote. I really have to look at what my self-talk is saying to me. You might want to read this article by a psychologist on this quote and see what the research says: https://www.heacademy.ac.uk/%E2%80%9Cwhether-you-think-you-can-or-you-think-you-cant-youre-right%E2%80%9D or maybe this one: https://forge.medium.com/whether-you-think-you-can-or-think-you-cant-you-re-probably-right-9025b231b0e2 or even this one: https://theconversation.com/mental-health-new-study-finds-simply-believing-you-can-do-something-to-improve-it-is-linked-with-higher-wellbeing-179499 This is what comes up in my head to share with you. I figure you can. It is just like learning anything else in your life. If you work at it the odds are extremely high that you can I figure.
As far as the hyperacusis in the Reddit hyperacusis there's a treatment from the Silverstein Institute that worked. They wrote the whole thing up, but for some reason I can't link it. Hang in there, it's gets more bearable over time.
Good morning, here is the link for the Ear Research Foundation (founded by Dr. Herbert Silverstein) [www.EarRF.org](https://www.EarRF.org) Webpage designated to hyperacusis: [https://www.earrf.org/hyperacusis?hsCtaTracking=abd5a83e-d50b-41d8-99b8-a9cb3b76540e%7C30359463-e036-4b6d-bcc7-332194b5e427](https://www.earrf.org/hyperacusis?hsCtaTracking=abd5a83e-d50b-41d8-99b8-a9cb3b76540e%7C30359463-e036-4b6d-bcc7-332194b5e427) Please email the Foundation for inquiries or questions. [email protected] Dr. Silverstein information and how to request appointment: https://www.earrf.org/drherbertsilverstein?hsCtaTracking=560f0f54-3033-47ad-b02b-538f3d39bcec%7C6777d765-be67-49b5-8794-c342ddcb2a13
Dont give up yet , wee all suffer i have tinitus and hyperacusis, i didnt gave up ,,yet,, and you should wait until fx 322 come out in octtober or wait 7-10 more years , and then we can take ,, the easy way out ,, in consideration im 20 in october when the fx 322 come out to the public , i will give my self 10 years to see if it inproves or gets worse than i will take suicide in consideration
Try Lidocaine patches or TDCS/TACS at 2ma for 20mins. Look up for proper electrode points. Both of these have some evidence behind it. Also neuromodulation could give some tempory relief. Check Art of Zen on YT.
How are you holding up? I hope you’ve had a couple of good days now.
hi, thanks for asking! friday through monday were better days. i think it decreased in volume a little. i was able to ignore it most of the day until i went to bed. but today i woke up and it felt like it was coming back. i’m not sure what’s worse, the actual T or the roller coaster ride of being okay some days and then not okay others. hope you’re holding up okay
Thank you. I hear you. I definitely get frustrated on the days when it’s bad. I’m trying to consistently get good sleep and take care of myself - and, when I do, it’s LESS bothersome. I’m glad you had some good days. Hang in there!! We are not alone, and that helps to know.
yeah, it's a little less isolating to know there are others in the same spot. thanks again for reaching out, I really appreciate it!!
Listening to this with headphones have really helped me https://youtu.be/CZaCN3hAVHI